xmlns:og='http://ogp.me/ns#' Yeah. Good Times.: My broken eyeballs

Sunday, April 1, 2012

My broken eyeballs

I used to have this eye disease called Keratoconus. Keratoconus (or "KC" as the cool KC kids call it) is an inherited, degenerative disease of the corneas which, in layman's terms, makes them all fucked up. I think probably a visual may help you at this point:



KC is bad enough as you can see, but, of course, I never do things half assed. No, if I'm going to have a degenerative disease, I'm going to have the worst possible version of it in the entire world.


I first started having trouble with my vision when I was in high school, so I've been going to eye doctors for about 20-25 years now. I'm an expert. The thing with KC is that there's really not much you can do about your vision except get really good at squinting. Glasses don't work, because the fucked up cornea is the problem and since it lies on the front most part of your eye, light is going to hit it first and then get all warped and shit. It's kind of like a broken prism; or, nothing like that. So, to fix your vision, the only thing that works is the hard/gas permeable contact lens, and it's a bitch to find a good fit, but, since I also have that astigmatism, hard lenses never fit me properly and they were always flying out and getting lost. I think at least 3 of them went down the shower drain in one year; until I figured out I probably should stop showering with my lenses in. (I'm slow.) I went through countless doctors and versions and varieties of lenses and the best I could ever get vision-wise was 20/80. Without anything it was something like 20/400. I don't even know because after a while they stop actually measuring and they just tell you your vision is 20/totally fucked.

There is a cure for KC, however, and that is a cornea transplant. Yep, that's right, first they wait for somebody to FUCKING DIE, then they slice off the front of your eyeball and sew the dead dude's cornea onto the empty space. Yeah. That IS as horrifying as it sounds, and I did it. Twice.


- FUNNY STORY INTERLUDE -

In early 2001, hubs and I were trying to get pregnant. I also have a condition that's supposed to make it difficult for me to get pregnant, and we had only been trying for 2 months, so we weren't really expecting anything yet. I had my first transplant surgery scheduled for May 23, 2001 (yes, I remember the date) and I was really freaked out about it. Did you see how I described it up there? Freaky shit. The day before, I thought I'd go to the store to calm my nerves and there, I bought an expensive bottle of champagne with which we would celebrate afterwards, and "fuck it, why not?" a pregnancy test, even though I had just taken one 2 days before and it was negative. I had nothing to do that afternoon, why not pee on a stick, right? So, pee I did. And then I looked at the result: it was supposed to be blue for not pregnant and pink for pregnant. Mine was purple. WTF?? Was I pregnant?? I PANICKED. I ran to my doctor and made them take ALL my fluids and put a rush on the test. Did I need to cancel my surgery? I had no idea what to do. I called hubs, crying (what a lovely way to learn your wife might be pregnant, am I right?) and he said "go to the store and get more tests." So I did. I went to CVS and bought 4 more pregnancy tests. The results on those were much less vague, so I canceled the surgery.

- END OF FUNNY STORY INTERLUDE -


So, I had my first transplant when Child 1 was 6 months old and my second shortly before I got pregnant with #2. The KC is gone but I still have the astigmatism, so I get to continue my journey with eye doctors, which I've been doing for so, so long now. The past few years I've been going to the eye clinic on campus, which means I see students who are learning, and they've always been very nice and sweet and it's a delightful place. This was my experience today, though.....

Yes, they're open on Sundays, because they're students and student labor is free so I guess they have to work whenever they're told. I was there 2 weeks ago and today I went back to try on some new lenses to see how they worked, but because my eyes are so football-like, it's hard to get a good fit. So, she put it on and I couldn't see a thing. She said "let's let it settle a bit" and then I still couldn't see a thing. She said "let me try to adjust it" and then she shines the fucking SUN in my face and says "Look directly at the sun while I nudge the lens" and then says "okay, now look at the eye chart, is that better?" And I'm like "NO, you fucking idiot! NOW all I see is an enormous purple BLOB where the wall used to be!" So we had to wait for the blob to go away. And then I still couldn't see. And then they dilated my pupils and I had to drive home completely blind. That was fun.

My eyes suck.

The end.



Comments (13)

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You suck at seeing stuff. I have an astigmatism, but it's like a diffuser lens on a camera. Everyone looks warm and fuzzy, like Liz Taylor. So I got glasses, and everything was in HD! I didn't like it. Frankly, I really don't want to see every blemish and pimple on your body. Without glasses, people look much better. So I stopped wearing them. Of course, all my wedding pictures are of me with glasses. And my wife tells people that I thought I would look smarter with them on... As punishment for wearing those weird dated 80's style glasses in her wedding pics.
Shit. You have some crazy eyes, yo. Also, when my mom died we donated her corneas (and everything else we could) and so it makes me sorta wish you got them because that would make me really damn happy.
1 reply · active 681 weeks ago
Would that make us sisters? you know, I mean... moreso?
Ughhhh. My eyes suck too. I feel for you.
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At least you don't have goat-eyeballs... That would just be creepy.

Remember, always a bright side. :D
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I love your drawing! I have an astigmatism too, but no KC.........I can't think of anything funny to say, so maybe I should just stop typing...
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Yep, my eyes are bad too. I don't have any cool names or conditions for what's wrong with my eyes. In hindsight, I guess I shouldn't have sat so close to the TV. Well, at least hindsight is still 20/20
I don't have KC, I do have messed up vision too! The only solution for me is a cornea transplant too! Glad to know it worked well for you!
I am new to this community, love your blog!
My mom has something funky with her eyes, some sort of degenerative thing, but it starts with an M & affects the lens, at the back of the eye(it actually detaches on it's own, causing eventual blindness)...it runs in the family - yippee for me, usually not noticed in her family until about age 40...hers was fixed with a permanent contact lens being sewn into the back of her eyeball. #endmyboringstory

Umm, anyways, crappy eyes suck. Mine are craptastic thanks to a head-dive I took from the roof of a barn at 13, mixed with a slight astigmatism. My only 'saving' grace is my husband wears the EXACT same soft contact lens prescription & eye glass script, so my glasses break I steal his. I run out of contacts...I steal his... #end2ndboringstory

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This stuff should be in the opthamology textbooks. Just hilarious!
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I thought I loved your Facebook sunglasses, but the feathers are even more super awesome!
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May your cookies and broken eyeballs be the bridge that bind us all together as one.
One day when the boy was about 7, I called him to come out to the porch to see the cute little twins across the street. Unfortunately, there was only ONE cute little kid - I was seeing double.

So now I get these super expensive glasses with a prism built into the lens...which works sometimes. Other times, I have to close my right eye so I see the proper number of people/things in my line of vision.
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