xmlns:og='http://ogp.me/ns#' Yeah. Good Times.: I am Different Mom

Saturday, June 15, 2013

I am Different Mom

Today was Child 1's last day of 5th grade; next year he moves on to Middle School. For the past few weeks I have been thinking of nothing but the fact of his getting older. How far he has come since we started Elementary school. How much (little) he spoke when he first walked through that door. How much help he needed just to navigate the day inside the classroom. Today he makes his way effortlessly on his own. He knows that school like the back of his hand; the places to hide when his aides are making him "work too much." The hallways he runs up and down when he gets his regular sensory breaks. The bathrooms he goes inside to escape from the crowds.

I remember that first Back to School Night of Kindergarten, sitting in those tiny little chairs with the other parents as they talked about what they wanted for their child who would also make their way through this experience of Elementary School. That one Other Mom, the one who made an impact on me. She talked about how she wanted her daughter to grow as a person, to learn, not only academic subjects, but Life Subjects, as well. She wanted her daughter to experience the world and learn that not all people were like her. To embrace differences, because that's what life was about. I remember, being so scared of Elementary School, and thinking how amazing it was that Other Parents actually thought about differences. What an amazing thing, for my child, that Other Kids might be ready to embrace his differentness.

The years went on, and Other Mom and I worked on projects for the PTA and became friends. I like her; a lot, actually. She's a great person and a great example of the kind of parent that lives in this town with me. She's nice, she cares about her community, she believes in giving back and she knows it's not all just about her and her family. She's so cool I could show her this post and she would be okay with it. And not a day goes by that I don't feel lucky and so grateful that I live in the town where I live; where people are open and accepting of differences, and they teach their kids the same. I know this city is unique in that respect, and I would never leave here or take my kids away from such an open, accepting, and diverse experience. The people here genuinely care, and I'm grateful for that. I am.

But still, we know these things; when we talk. We all know... that I am Different Mom. My kid is Different Kid. He isn't like the other kids, and when we talk to each other we are very much aware that my experience, and my child's experience, isn't the same as theirs.  It doesn't make us outcasts, but we're all still thinking about it. I pick a Middle School with different priorities; my kid doesn't have friends he wants to stay with through the transition. My kid will need support to make it through the day. To find the new bathroom to hide in when he wants to escape from the crowds. To navigate a new hallway when his aides are making him work too hard. These things are hanging heavy in the air when we casually discuss where we're going next. We all know that I am Different Mom. It's okay, of course it is. But it's still there. Hanging heavy.

And yesterday? Yesterday it was her kid on the stage at that promotion ceremony, introducing herself as Student Counsel President. And it's her kid, this evening, who goes to the parties to celebrate this occasion of graduating. And it's my kid who stays home, because he has no interest in sharing this event with his peers. And it's my kid who doesn't even want to talk about what he thinks about the whole thing. And we know, as we talk, that these are our differences. And we know, as we talk, that these things will always make us different.

And tonight... I don't want to be Different Mom; I want to be like them. I want to have the kid who celebrates with his friends that he's done with Elementary school. I want to have the kid who wants to stay up all night. Tonight I mourn my differentness, the one I wasn't born into but had thrust upon me by my child who was. Tonight... I don't want to be Different Mom.

Tomorrow will be different, of course. Tomorrow the memory of promotion ceremonies and graduation class parties will fade, and I will get back to thinking about summer and planning our transition to the next part of our lives, but tonight? Tonight I want to be like them. Tonight I want to be Other Mom, too.



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I feel you. I am Different mum, too. When they were all so exited about Junior disco, and we didn't even consider going...I felt exactly like that.
I truly understand. Terrific post.
It's strange,but my wife and I too often think about what it would be like if our son was regular. But then he'll make a joke and we both feel good about where we are today. Other than having an ASD, our son is healthy and happy, which is what parents really want.
*wiping tear*

this. just, beautifully this. my heart snuggles into this post, because it knows it, like home.
Yes. We are different. Of course, we kinda always have been, in our own ways. But this difference wasn't our choosing. That's the difference.
Great post. I'm so proud of Child 1. I'm proud of you for helping and supporting him to get to this place. I'm 4 school grades behind you. Thank you for leading the way.

*index finger to my head, looking for a miracle*
Such an honest and open post.
Graduation for Natalie is on Monday. I wish I could be Other Mom too..even if it was just for a day..or an hour. (((HUGS)))
Thanks so much for your honesty and vulnerability! Beautiful post! Congratulations to you and Child 1! Sending you all the best wishes for the next steps ahead!
Jill, I feel this too. Not as a "Different Mom", but as a "Different Person" because of my own disability. And my husband's health problems. Most of the time it's fine, but sometimes? Sometimes I just want to be like everyone else.
Thank you for sharing. Although I know there are a lot of us Different Moms out there in the world, there are not many at my son's school. So in addition to being "Different Mom" I am often "Difficult Mom" too because of the fight to have my kid included and understood.

The truth is no matter how pleasant any "Other Mom" can be, she will never really understand how hard it is for us or how sad some milestones can make us because there is no way to describe the minutia we" Different Moms" have to address on a daily basis. Even with all the accomplishments our children make, I think it is only natural that from time to time we all wish we could be "Other Mom".

This is a huge milestone. Congrats to you and your family and especially to Child #1.
Congratulations on such a huge accomplishment, it's an absolute testament to your courage and "mom-ness" to make it through. School sucks, there's no getting around it, and you guys made it. I love reading your posts. I have had a long history of feeling different, wanting to be like The Others, ever since I was about 13, and I have ALWAYS felt like how you have expressed in this post. And I mean for 24 hours, 7 days a week, for decades. And that was even before my kids were born. My older kid is a little different - he's a lot like me - not so obvious to others, but hugely so on the inside, where the tidal waves of emotion crash out of control. And yet, finally, at a time my hair is mostly gray (still have it though yay) I've started to realize that The Others have the same, if not greater, emotional challenges than I do. In a weird way, my unscientific belief is that those of us who have to confront emotional challenges more openly are in fact more closely connected to , I dunno, God, reality, or whatever you want to call it. Other People have their own coals to walk over, I just can't see it or they don't show it, or choose to ignore it.... (As an aside my younger kid is definitely NOT like me, whew!). It doesn't make it any easier, but it does remind me that I'm not a freak and neither is my kid. And then I sleep a little better.
I am "Different Mom" too, but on the other end. My Big Boy will start Middle School in September too, and I worry, as you do, about the transition. I worry about how he will fit in. Where he will go to decompress when it all gets too overwhelming for him. Who he will talk to when the rules to the game aren't his and no one will follow them and he melts down. I worry that the other kids will take his quirks as a sign of weakness and he will have to risk suspension and use the Tae Kwon Do training I pay so much for to defend himself against a bully.

I send you lots of hugs and love and I will follow your story and I hope Child 1 has a seamless transition to Middle School. Congratulations to you and yours. You've come a long way.
((hugs)) as always your brutal honesty is beautiful.
Such a heartfelt post. Thank you.

I've been Other Mom - it is not all sunshine and unicorns and rainbows. Our NT children still have fears and get left out, maybe they're not invited to the one party they want, or their best friend quits liking them. There's drama and angst and ugly competitions and winners and losers.

It's almost easier to be Different Mom - my son doesn't care about the parties and his one friend is not someone who is going to suddenly dump him for the bright and shiny popular kid. Sure, his journey is different from that of his siblings - but it's not lacking in special moments. As he starts his Senior year in high school, I marvel at how much he's matured - and although I can't quite imagine his future, I do see progress, and I'm hopeful.

As long as Child1 has the supports that he needs, he'll have a fighting chance of success in middle school - because you'll be there to help.
Jill,

Ah, the emotions. I get it! We just celebrated my son's graduation from high school. We did it in a private ceremony with his family and past teachers attending and it was beautiful. Different, but beautiful.

Dixie
BlightyBird's avatar

BlightyBird · 614 weeks ago

Thank you for putting this into words. My daughter here in England is just moving on to her sixth form studies in the Autumn and although she will be attending prom it will be with extra support, with me hidden away in the building just in case, with her carrying her emergency revival meds and wearing her light exclusion glasses and avoiding the disco. I love her to bits and wouldn't change a thing about her but sometimes I just have a few seconds of wishing "if only". Wishing a wonderful future to you and your gorgeous fellow.
Hugs..... I sometimes want to be the other mom too <3
I was Other Mom with my daughter. I am you with my son. My daughter had HUNDREDS of people show up for her graduation party and she had a blast sitting for her senior pictures. My son is flat out refusing to get senior pictures taken and when he graduates in May 2014, we'll have TENS of people show up (if we are lucky).

It's such a strange place to be in....and you write so eloquently about it.
Mosaicsbysharice 's avatar

Mosaicsbysharice · 614 weeks ago

This is me. I LOVE my friends, my village, and they do their best to be understanding and accommodating. But, like you, I am different. There's so much more that can be said, but you captured the essence of it all. I take huge comfort in knowing that Im not so different after all for feeling like this. Thank you and hugs.
I too am a the mom of a "Quirky Kid" and a NT kid. I dread next years middle school graduation, thinking about how wonderful my older son's celebration was with so many friends and families, all happy and supporting one another. By contrast I know that next years celebration will just be our family alone, and the ceremony itself will be fraught with difficult emotions as I sit and watch not just my beautiful boy graduate, but have to see the faces of all those other boys who were unkind and mean. Families will be there who had the opportunity to reach out but didn't. Friends I thought I could count on, but disappeared after their kids turned on my son. My best friend is included in this group, who I last remember telling me "M. doesn't understand his Asperger behaviors and doesn't want him to call of see him anymore". before she herself disappeared two years ago. I know there are supportive communities out there who would rally around a family with disabilities, who would see this as a teachable moment of how to understand and be compassionate, just not my community.
1 reply · active 614 weeks ago
I feel your pain, my son will begin 5th grade this year and I am already holding my breath (so to speak.) Hugs to you.
My ASD kid's elementary school graduation/"social" party is tonight too, and I am making him go anyway even though he's not that thrilled about it, because in addition to being Different Mom I am also Suck It Up Sometimes Mom, and I want to go. We will probably only make an appearance.
My son is going into 5th grade this fall and I am dreading all the transitions that come with this year. Of course everyone on his team is reassuring me not to worry about it, don't stress, but... Yes, for the most part the years have gone more smoothly the older he has gotten and the more aware and involved his team is in his day to day interactions but it has not always been this way. His first three years of elementary school were not easy ones and I know what transition does to him. There is the transition to a new teacher this year and then shortly after school starts 5th grade camp (5 days with just peers and teachers), and switching between the three 5th grade teachers for various subjects during the course of each day. I am bracing myself for a rocky year, I hope I will be pleasantly surprised but as the saying goes, "hope for the best, prepare for the worst." Thank you for reminding me that I am not alone and isolated in my feelings.
How many times I have wanted to be Other Mom or just any mom for that matter. Our differences are our own. Your from hers. Mine from yours. Even though we share in parent hood. Even though you and I share in ASD. But then we realize, our difference are OUR own and nobody knows them better than us and we make it through - even for just one more day ((HUGS))
laura hirsch's avatar

laura hirsch · 611 weeks ago

This post was so beautifully written. I hear you, I feel you, it matters and sometimes we just have to sit in our reality and admit we have moments when it just stinks. And it hurts. And you're right, by the time you have read this response, you have moved forward in your life and that moment is where it belongs, in the past. I just wanted to reach out and say, even when it feels like you are all alone, you're not. There is an entire family out here loving and supporting you.

By the way, congrats on the people's choice award, I'm sorry about the airline tickets, that stinks, I've seen worse things on our slide than spaghetti noodles and I love the chip clip. Be well. Laura P.S. please stop punching kittens...they are too cute.
1 reply · active 611 weeks ago
Thank you Laura :)
This post just breaks my heart, Jilly. I'm there. Right now, this very minute, I am Different Mom. Because the parents on my cul de sac street have decided to gang up against my beautiful, bright, funny, silly, angry, sensitive, creative, loving son. Two weeks ago, he knocked on the door of his best friend. These kids live on the same street, and they're like 2 peas in a pod. They have fun digging in the dirt for HOURS. Well, Joe's little sister Chloe (4 y/o) answered the door, and she told Zach that Joe couldn't play. Zach said, "Ok" and started back down the steps.

Just then, Joe's (asshole) dad was walking up the driveway. And when he heard what Chloe told my son, he said, "Good job, Chloe."

I just found out about this last night, after asking Zach why he hasn't played with Joe in the past 3 weeks. When Zach told me this, I asked, "What do you think Todd (dad) meant?"

Zach said, "I think he told everyone to tell me that Joe can't play, but he really means he doesn't want Joe to play with ME. Then he gave a big sigh and turned back to the t.v.

My heart breaks.

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