xmlns:og='http://ogp.me/ns#' Yeah. Good Times.: A letter to Elisabeth J.A.

Wednesday, December 19, 2012

A letter to Elisabeth J.A.

This screenshot has been making the Facebook rounds; I don't know where it originated from and I've done my best to remove the identifying information. Seeing this makes me want to start sobbing and run and hide from the world, but instead of lying on the floor in the fetal position, I thought I would try to calmly respond to this, in the hopes that Elisabeth might see it.


Elisabeth, my son is autistic; I call him Child 1. He's 10 years old, will be 11 in January. His autism affects him in a way that causes him to spend a good deal of time "lost" in his own thoughts. When you talk to him, he is very likely to respond to you in a way that involves whatever he is thinking about (elevators, subway trains, etc.) and oftentimes it doesn't make a lot of sense. He also flaps his hands and runs back and forth a lot. He doesn't like it when other people try to engage with him, particularly people his own age. He likes to be alone. If you were to meet him, it would be obvious to you almost immediately that there was something "different" about him. You wouldn't necessarily know what was going on, but you would know that there was something happening.

Sometimes he gets angry with me, usually because he doesn't get his way, much like any other kid, and when he does he will hit me. He doesn't hit hard, he doesn't cause injury, and he does it only to express his frustration. He feels frustrated because he's not getting what he wants but also because he has a very difficult time explaining to me how he is feeling. Have you ever been having a conversation and suddenly you can't find the word to describe what you want to say but you don't know why? You might say it's "on the tip of my tongue," or something similar. Imagine if all of your words were always "on the tip of your tongue." That's how my son feels almost all of the time, and as you hopefully are able to understand, that can be a very frustrating feeling. If you felt like that all the time, you might want to hit me, too: in the moment.

But then the moment is over, and my son's frustration will subside, and he will go about his business just as happily as before. This is typical autistic behavior, and it comes with differing levels of severity depending on the individual person. What is not typical autistic behavior is somebody who will irrationally direct violent rage onto a person who is not immediately connected to their situation. They will not spend any time plotting revenge, or planning what they will do next; they will not drive to a different location and shoot people they don't even know. When the frustration is gone, it is gone.

My son is who you're talking about when you refer to "these monsters," and I'm writing this now because it's so important to me that you know about him, and others likes him. Autistic people are not "sick fucks." My son is not a "sick fuck." He is a sweet, beautiful, smart child, who is funny and warm and caring, just like most autistic people are, regardless of their ability to communicate. Elisabeth, what happened in Connecticut didn't happen because the shooter was autistic.

Here's another point of information for you to know: 46% of autistic children have reported being bullied in middle school and high school. This happens for a number of reasons, most notably because 1. They are noticeably "different," as I mentioned about my son earlier, and 2. There is a good deal of misinformation out there about autism, a lot of which is being spread by an irresponsible media at the moment, and your words here cause harm. You are helping to spread incorrect information about my son and you are causing him harm. 

You need to know that my child has a much greater chance of being a victim of violent crime than of being a perpetrator. You need to know this, Elisabeth; you need to be aware of how your words cause harm. I understand your anger at the situation, I'm angry, too; and I understand your need to try to find meaning in why 20 babies and 6 adults had to die, but I promise you, Elisabeth, I promise: autism is not the reason for this. 

I'm happy to talk with you more about this privately if you'd like to contact me. jillsmo at gmail.com; I promise I'm a nice person and my goal here is to educate, not to cause a fight.



Comments (53)

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Fantastic post, Jillsmo. One of the best I've seen on this issue yet.
Sounds to me like Elizabeth needs some eye opening experiences. I am far from an autism expert but I have worked with autistic children and they are by far my most favorite. I have really made good connections with a couple of different children with autism and I have to admit that feeling is awesome.

I really don't know what causes people to do things like blowing up buildings and schools but I'm pretty certain that the autism wasn't at play here. Again, I'm no autism expert but every autistic child I've ever worked with...10-15 has been more docile than violent.
<3 you!
Dear Elizabeth, I am a special education teacher for children with disabilities such as ADHD, Autism and Asperger's syndrome. I would love to invite you to come to work with me for one day and to learn more about the wonderful kids that I am fortunate enough to learn from. Best, Nicole I've signed up to get your reply.
Awesome, Jill!
Just by the way,

'Imagine if all of your words were always "on the tip of your tongue."'

This is a REALLY good description of what it feels like to always kind of sort of not have the language you need for things.
2 replies · active 640 weeks ago
I would have left her full name, you're better than me. I was going to send her a message but there is no button to neither friend her or leave a message. People who say such hateful things are obviously not ashamed of their feelings and I would have called her out publicly, full name.
Way to go, Jill. That was a very respectful response to a woman who showed absolutely no respect to anyone.
I am so impressed that you were able to craft such a level headed,, incredible response. <3
My recent post Just a bit of random
I can't address this person. All I can do is use her, and others like her, as evidence of the stupidity and ignorance that required me to write a letter (thanks for the letter) to the school district.
Eloquent response to a very ignorant statement. Bravo!
I as well am a mom to a sweet, loving, handsome boy who happens to have autism.
I am truly amazed at your response. This type of education is clearly what is needed. However, how you managed to repond in such a calm, level headed manner is truly remarkable. I hope this "Elizabeth" will take this opportunity to learn and in turn educate others. From one Mom to another, I thank you.
Thank you for posting this. I found you through Finding Ninee, and I am really excited to follow your blog. You are right- people need to hear this message. I am not the parent of an autistic child, but I am a music therapist who works with autistic kids and I am very concerned about how the "information" about the shooter and a link to autism is going to affect the community, as people are often ignorant and fearful- a bad combination.
It's about time someone stepped up and expressed themselves. Often times people say stupid thins without knowing what they are talking about. I know a beautiful child with autism and to meet him would melt your heart. So, bravo Jillsmo for your heartwarming explanation to Elisabeth. Maybe she will think next time before she speaks.
Such a thoughtful, genuine and calm response. Even if the original person doesn't read it, you will have reached others with your post, so thank you, on behalf of both me and my son.
Or you could just message Elisabeth Jessica Acquaire directly on FB. Sorry couldn't help myself. Delete if you feel necessary :-) )) LOVE your response!
LOVE. You are handling this amazingly. Calm, cool, rational, and informative. Honestly, my reaction is to want to punch her in the throat. You are AMAZING.
Excellent post. Nice, calm and rational.
Excellent post. Nice, calm and rational.

My recent post I am going to use the R word.
You are a very impressive lady. Your whole blog is, but the way that you are able to react in that way- with grace and level-headed thinking - is what makes it amazing. I'd much prefer this to be spread around Facebook. Keep it up, I'll keep following.
My recent post Why my brain is different than yours, and why that's okay
I love you Jill. This day, you are the epitome of class ;)
Well done Sam's Mom....classy.. :)
I don't get it. You mean YOU removed her identifying info? Did you try looking her up on FB and sending her a personal message before blacking out her name? It'd make more sense to try to contact her directly and send her this great response rather than on your own blog where she'll never go.
1 reply · active 640 weeks ago
middlechild's avatar

middlechild · 640 weeks ago

I am so sorry these kinds of comments always seem to come your way. You are the sweetest and....well, people are just evil and ignorant. Even so....they shouldn't judge or be making assumptions. I do hope this person contacts you but I doubt any amount of explaining will change their way of thinking. Wishing you the best.....
Keep educating the world. It's the only thing that might actually change it for the better. You rock.
My recent post Things one should never outgrow:
I can't even imagine how hard (and how much work) it must be raise and love a child with autism. I think I said it before, but it is worth my admiration.

I'm sad that the uneducated are the first ones to jump to statements w/o full understanding on the subject or without the proper training on communicating. Sometimes they cause more hurt than imagined. I hope it doesn't become something bigger to the people with autism.

Hugs.
A neighbor once called my son a "sick fuck" - maybe Elisabeth has a sister.

My grandson (who also has Asperger's) was sitting on the couch and saw someone say that the shooter had it.

He asked his mom, "Will I do this too?"

We need a 24-hour news cycle defining what autism is...and isn't.

Like now.

Thank you for your eloquent response to someone who is ignorant and helping to perpetuate these lies.
Thank you for writing this. I've worked with so many lovely people with autism, adhd, and all kinds of "mental retardation" diagnoses. Yes, these people have issues, yes, they usually need adaptive situations, yes, they need our love and patience and most importantly our willingness to find a way for them to connect and communicate and participate.

In my experience, it's always worth it, even when it's hard, to find that way. Sadly, it sometimes it seems too hard.

There can be drama, oh yes. That said, it's rarely -- and I'm grateful to say, NEVER in my experience -- about violence, or hatred for itself. It's about frustration, and lost control. And hey, frustration is one thing we all understand. Life can be shitty and irritating and hard...you know, frustrating.

When I heard some of the details about this terrible event in CT, once I got through the pain of thinking about the victims, it occurred to me, "Oh, he had a terrible -- TERRIBLE, PAINFUL, HIDEOUS -- amount of pain and anger that had to find a way OUT of him." Obviously. It's tragic, and frightening. Only a broken person does something so horrible. But I can't begin to imagine how or why or in what ways this boy was damaged. This was unique and specific damage. And i think we, as a community, get that.

Harder to consider is that even though terrible pain and anger often happen at the same time as cognitive or development delaysm or other challenges, they are not the same as those challenges. Correlation does not prove causation. People are individuals.

Not every kid with autism turn out to be a mass murderer. MOST OF THEM DON'T. I know so many who are wonderful, productive, quirky, valuable members of communities. On the other hand, there are plenty of hardened, dreadful criminals seemed like GREAT, "NORMAL" kids at some point. Who knows how or why it will play out?

In life, we just have to do our best, really REALLY do our best, to treat all kids as kindly and with as much support as we can. And then we hope. Maybe we can love, and maybe we can help.

Just: people, be kind. Default to kind. It will pay off more often than it doesn't. It has to.

My recent post Sweden Rainbow
I just edited this now. I AM SPEECHLESS, ONLY NOT IN A GOOD F*CKING WAY. PLEASE, LET US EDUCATE PEOPLE. I DON'T EVEN KNOW WHAT TO SAY. WTF. I'm sorry.

My recent post Grab Ass
Why react to idiots? You can always find more idiots to react to. Don't feed the trolls.
1 reply · active 640 weeks ago
Very well said. The really scary people out there are the ones like this Elizabeth. Ignorance is probably the biggest monster of human personality there is.
My recent post And Yet I Survived To Make It To Adulthood.
Well said, that status post made me want to cry! Thus the reason I preach autism awareness AND EDUCATION :) (courtney from A Legion for Liam)
Beautiful response. Brought me to tears. Thank you.
Jill, you rock! I hope she takes your advise and speaks with someone, anyone about her misconceptions.
My recent post How I Imagine it Would Go Down
Your words are always so much more eloquent than mine would be and I so appreciate you writing this. Thank you.
Im a mom of a 7 year old beautiful autistic son. I also sub for schools when needed. Im not ashamed to say that I rather sub for a class full of autistic children then 'normal' children. Jill, your more a human then me because all I want to do is punch this women and wish all the bad things possible on her. I cannot believe that she would even post this. The 'Autistic Family' will be strong. I pray that karma finds her.
<3
Beautiful...and for the people I love, thank you.
Bubba's Momma bear's avatar

Bubba's Momma bear · 640 weeks ago

This has probally already been addressed here but I would like to know the name of the cousin that is working with autistic kids and have her removed from the school... IDK about anyone else but I wouldn't want anyone who felt that way about my child teaching them :(
Sonyia Noah's avatar

Sonyia Noah · 640 weeks ago

Jill thank you, I do believe that stupid woman won't understand, I pray God opens her heart, eyes,ears. I knew nothing about autistic kids until the child I am fostering was diagnosed with Aspergers, I made it my priority to learn as much as I could about Autistic children, maybe you should as well Elizabeth.......
I'm glad that you addressed this, and I can only hope that this woman reads it, and all the comments from people like us, who actually deal with autism on a day to day basis. I can't believe that she had the audacity to put those words on the internet for the whole world to see.
My recent post Against Benefitting From Tragedy
Thanks for writing this Jill and for sharing it on your blog for EVERYONE to see and not just Elisabeth. I have worked with several autistic or asperger's kids during teaching and while they are different, they are not typically violent nor do they plot revenge or plan violent acts. The worst I have seen is them speaking too candidly about someone else which may hurt feelings but does not cause physical harm.
My recent post ON THE ROAD AGAIN
I believe that the children entrusted to us then we are not just like them to be part of the fun. Love them as our friends and they will be a good friend to us

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