xmlns:og='http://ogp.me/ns#' Yeah. Good Times.: Some days you get the autism, and some days the autism gets you

Wednesday, September 12, 2012

Some days you get the autism, and some days the autism gets you

I was waiting for this morning; I've been waiting for 2 1/2 weeks now and somehow I was still surprised by it. It's the third week of school and the honeymoon phase is over. The harsh, cold reality of "there is school every day" has sunk in and Child 1 has begun to rebel. It started on Sunday night when he didn't want to go to bed by himself and lead up to this morning, when he had a meltdown (a meltdown for him, anyway; even his meltdowns are pretty mellow). He threw a bowl of Cheerios away, and he hit me. Although, saying he hit me isn't really that dramatic, since he's so skinny and weak and has that hypertonia going on, his "hit" doesn't really pack much of a punch, but still. He very rarely does anything even close to that, so when he's crying and hitting me it's something to take very seriously.

First I tried to get him to tell me exactly what the problem was, which is always a waste of time, because I know what the problem is: he doesn't like school! And he can't really get specific about that, at least not specific enough to satisfy me, although he does try. He threw out things like "this is the real reason why I don't want to go to school, because I have to do math," and "I have P.E." etc.

The truth is that he doesn't like school, and he didn't want to go. I tried to fight it but it just kept getting worse because the more I tried the worse his anxiety got. So, I hinted at him staying home, to see what kind of reaction I would get (duh). Unfortunately, Child 2 heard that and immediately says "If Child 1 doesn't have to go to school, then I don't have to go to school. That's not fair."

Well, shit. He's right, you know. Now, of course I always have the option of saying "because I said so" and forcing him in the car, but he's right that it's not fair. Child 1 isn't sick and even if Child 2 understood the nuances of autism, which he doesn't, he's still only 7 and uses 7 year old reasoning and 7 year old reasoning says that if his brother isn't sick and gets to stay home then he should, too.

It was at that point that I just said fuck it, everybody stays home. I didn't have anything to do that I couldn't reschedule (but I was sad, because Danielle and I were going to have lunch, and I don't often get to do fun stuff during the day :() and I just didn't have the energy to fight it.

So, fuck it. You win this round, autism. I admit my defeat, partly because I was caught unprepared for something I should have been prepared for but mostly because I just didn't have it in me to put up a fight. They both get to stay home today, but they're not allowed to do anything fun! No TV and no computer and no iPod until 3:00!!! That's how I put my foot down, I can't be a complete loser in this scenario. That, of course, didn't stop me from feeling like a complete loser, waste of a mom, totally defeated by failure.

I know that's not true, but that's how I felt.

Maybe tomorrow, right?



Comments (21)

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i have been defeated by autism a few times... my niece is autistic. Sorry you couldnt go hang out with a friend. you win some you loose somei guess. I think its good though that you were fair and didnt say because i told you so!
Hope the day is awesome and you get some more info about why school is no fun :)
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But what if they end up liking staying home and not doing anything fun? Then what? I need to know this because I'm sure this is coming my way at some point, and it's handy to have the answers ahead of time.
1 reply · active 654 weeks ago
They DO like that. Plus it's harder for me because I have to keep them entertained all on my own, without the crutch of electronics :(
We call them mental health days. For me and the kids. Sometimes, you just have to give ourselves a break because the fallout of not is worse than the fallout of one day home. Hope tomorrow is better.
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1 reply · active 654 weeks ago
My 3.5 yo old glared and told me, "I HATE school." in the car today. It is the second week of school. And she's only in preschool for 2.5 hours. I hope tomorrow is better for everyone.
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1 reply · active 654 weeks ago
You're an awesome mom. That is all.
1 reply · active 654 weeks ago
Thank you :)
I totally get this. I'd think about it as giving you the space necessary to create a new battle plan.
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Not sure if it'd work, etc, because I'm just really clueless when it comes to autism & kids hating school in general even, but just from what I've read of your posts about Child 1 & his teacher...would it work to 'slyly' 'guilt' him into going...such as putting a spin on, if he's not going to be at school, then who's going to be updating the calendar & that sort for the class, since that was given as his responsibility?

It's also totally okay to tell me I'm completely crazy & don't know what I'm talking about, because it's true. ♥

But, I also agree with mental health days - sometimes they're just needed, spectrum or not. ♥
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Oh God, I woke up this morning and I WISHED that I could have just stayed home. If we lived near each other, I could have just come over to your house and pestered all three of you all day long, and then you'd never have this problem ever again. (((hugs)))
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handflapper's avatar

handflapper · 654 weeks ago

Mental health days are okay, but it's also okay to make Child 2 go to school when Child 1 doesn't and vice versa. Life ain't fair, kiddos. Life is different for everybody and that's OKAY.
I did this so many times before we bailed completely for homeschool (best decision I ever made). But you know what? I don't think autism won, I think you did.
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My son will be staying home from school tomorrow, at the request of said school. He's been unpredictable and irritable and awful and they're having field day tomorrow and don't want him to lose his shit in a public park and create mayhem and cause untold damage and injuries to all involved.

He thinks he won the lottery.
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We bailed completely too for home/cyber school. After six years of fighting a broken system and my oldest and I were DONE. We made the decision for the younger one. He didn't even get to try the public school system. I didn't even want to attempt it with him because he has way more needs and would need way more accommodations than his brother,and if they couldn't deal with my older child, how would they ever handle my younger one? They wouldn't, that's how.

Not to say this isn't all an adjustment either, because it is, but the cyber school is way more cool about it and meeting the kids' needs than the "regular" public school was.
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Oh shit girl, you are not a failure! Some days the best answer is to say "fuck it" and take the path of least resistance!!
Spending time together (without a holiday or weekend) can be educational in its own way...

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