xmlns:og='http://ogp.me/ns#' Yeah. Good Times.: The Dive Bar Welcomes: The Poop Queen

Saturday, August 4, 2012

The Dive Bar Welcomes: The Poop Queen

Today's contributor wishes to remain anonymous, and so I have called her The Poop Queen. I really hope she thinks that's funny, because it was meant to be. And, I'd like to tell her, in response to that last line.... I'm very happy to have given you this opportunity to get this shit off your chest. That wasn't meant to be funny. I hate puns.


I live with a dark, stinky secret.

My son is encopretic.  In case you are lucky enough not to know what encopresis is (Oh, to be so blissfully ignorant!) allow me to fill you in.  Bear with me, I’m not a doctor.  I’m just a Mom who lives with it every day.

Encopresis is also known as “paradoxical diarrhea” which would be hilarious if it didn’t make me want to cry. 

It’s basically a condition that happens when children withhold stool to the point of becoming very badly constipated.  It can enlarge the rectum and damage the nerve endings to the point that voluntary control of the rectum is lost.   Then (and this is my favourite part) softer stool ends up leaking around the blockage which causes what Wikipedia delicately refers to as “soiling”.

That means that shit is a big part of my life.  It consumes most of my conscious thoughts.  I am constantly on the alert for the smell of shit to the point that I sometimes smell shit that isn’t even there.  I have to always know when he shits, how much he shits and whether or not he shits in his pants.  I have had to clean shit off of walls, toys and some furniture.   I am frequently scrubbing shit-smell out of my computer chair where he sits to play video games.  Sometimes when I sit on my couch I get up and my ass smells like shit because he was sitting there earlier.  And then I have to change my pants and scrub shit smell out of my couch.

One time, before we really clued in that something wasn’t right about his constant “accidents”, he laid a big turd in a heavy traffic area in the house.  Then my husband (who was wearing shoes at the time, thank God!) unwittingly stepped in it and tracked it all over the house before he notice the awful smell.  That was our turning point, when we knew we needed professional help.  Shortly thereafter we were told that our son has ADHD and encopresis.

You know, I can deal with ADHD.  It’s really tough but I can deal with that.  I love my son very much.  His ADHD is so much a part of him I’m often at odds with how much I resent the difficulties it gives him and how much fun his quirky impulsive behaviour can be.

But I cannot deal with the shit.

I cannot fucking deal with the shit.

I would really like to sit here and write something helpful and inspiring and wise.  I would love to sit here and talk about love for my son helping me to overcome our difficulties and do some actual good for people out there who are suffering and struggling with the same difficulties.  But for once, right now, I’m going to let myself be selfish and ugly and self-pitying because I’m so fucking tired of being strong and putting a smile on it so I can be the good Mom.

Fuck! 

Fuck! Fuck! Fuck!

It’s not fair!  It’s not fair that it’s my job to make my kid sit on the toilet every day at the same time and he hates me for it! It’s not fair that I have to fight with him about it every day and that sometimes he finds ways to punish me for it.  It’s not fair that I have to deny him things like summer camp because I’m afraid of what will happen to him if his friends find out.

I’m sick of everything smelling like shit!  I’m sick of forking over $100 a month on laxatives for years on end!  I’m sick of having to try to remove shit-smells that never seem to go completely away.  Febreze will always, for the rest of my life, be heavily associated with the smell of shit.  I’m sick of having to search all over the house for wherever he hid his shitty underwear!  I’m sick of worrying about what will happen to him if he shits himself at school!

I’m tired of living my life trying to pretend that everything is okay; trying not to compare myself to other Moms with other families who don’t have to deal with shit beyond the age of three.  I’m tired of having to remind myself not to think about “normal” or “should be” because if I do I might start screaming and not know how to stop.   I’m tired of being such a failure!

We’ve been at this for four years.  Four fucking years and no end in sight!  I’ve been doing everything the doctor tells us and fighting so hard to do it and I’ve got nothing but a pissed off kid and a load of shitty underwear to show for it.  And I’m just supposed to deal with that because that’s my job and that’s the shit end of the stick I was dealt. Because that’s what being a grownup means. 

But for once, right now in this Dive, I’m going to complain Goddammit.  After all the shit I’ve been through, I think I deserve that much.



Comments (19)

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KidsDrDave · 660 weeks ago

As a pediatrician, I kind of figured that what what it would be like. Thanks for sharing.
1 reply · active 660 weeks ago
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KidsDrDave · 660 weeks ago

I went to college, I swear. "... that's what it would be like."
Have you ever heard of the Colorectal Center at Cincinnati Children's hospital? They are pretty friendly even if you live far away and seem to be on the cutting edge of dealing with poop problems in kids. http://www.cincinnatichildrens.org/service/c/colo...

Otherwise, hugs. My daughter is chronically constipated and incontinent, so we've been through all the laxatives in the world. It didn't help and was endlessly frustrating for both of us. Cone enemas have made a huge difference, but they are time consuming.
My recent post Spatial Awareness
oh my God the horror! You deserve to rant! It should have been my first clue that something was wrong with my son. I would come into his room and find him as a baby covered in shit, walls, crib, bedding, hair, face, EVERYTHING! Have you ever cleaned shit from the spindles of a wooden crib at 3 AM? OF COURSE YOU HAVE! Sucks doesn't it? THANK YOU sweet Jesus this is something he grew out of for the most part, now just occasionally on the floor or walls of the bathroom. I think that's mostly a lack of having the coordination to get it off of himself. I feel for you and pray you find a solution to your son's issues!
Mine was chronically constipated from birth. Years of everything from karo syrup to enemas to diets and we are just getting it under control at 7. Her autism gets out of fucking control after 4 days of not pooping so I was trying everything. After testing her poop and finding way too much bacterial overgrowth, I started treating with antibiotics (flagyl and vancomycin). Huge difference. Once I cleaned up her gut, everything in our lives got better. My life isn't as much about poop as it once was, but I still monitor her poop, consistency, smell (I can smell bacteria), when it happens, how often, where, etc.

I get it. Rant on. You deserve it. You're among friends here.
My recent post Getting my craft on
First of all, you are not a failure.

You have been dealt a hand of cards that would make anyone want to run out of the house, screaming. But you have stayed and hung in there and dealt with the situation as best you can (and held in all of the negative feelings as you clean it all up).

In the Mom category, you come up smelling like roses.

I sure hope it gets better soon - maybe the folks in Cincinnati can help.
My recent post Saturday Centus - 08/04/12 - Poetry for Pooches
I'm so sorry. Both of my children have moderate to severe autism, and they've both had poop problems their whole lives. My oldest used to have nearly chronic diarrhea, and my youngest has constipation issues, but they both take dumps and smear their shit on almost every surface of my house. I smell it all the time, and you're right, Febreze is now one of the worst smells in the world to me. I hate it as much as I hate the poop smell. I feel ya. (((hugs)))

Lyndsey www.gettingbusybeinggood.com
No words. Except fuck. Keep saying that one because, because based on my experience, it's sometimes the only word that does help.
My recent post Things one should never outgrow:
You're among friends here. I spent 2 years taking poop samples t the lab for testing trying to find out why my youngest was chronically constipated and would then have diarrhea I did everything the doctors said. Laxatives, diet change, ALL.OF.IT. Turns out his allergy tests FINALLY showed positives. While life isn't all glitter and rainbows, it's no longer foul smelling 4 days worth of shit in one day diapers anymore either. Like Dani above, I can now smell when there's a change and my child has eaten something that was labeled improperly (because we read EVERYTHING). I know when he was exposed to one of his allergens by the smell of his poop. When I was pregnant, I never thought I'd know this much about poop - ever.
My recent post Back to School
We have had TONS of poop problems too.....My son has always made big, huge, linebacker for professional football poops. Sometimes we have to pour bleach into the toilet and let it sit overnight to break down some or else it would get stuck in the toilet and flood the bathroom. Luckily he doesn't leak yet. We recently started giving him PB8 which is a pro-biotic that we purchased at Vitamin World at the mall. I'm not shitting you that stuff changed our lives. He now poops about 3 times per week and all his poops look soft and the circumference is only about one eighth of his 'normal' size.
My recent post Flipping Fragments
Later in the day--is it strange that the highlight of my birthday today was that my youngest daughter took a monster shit?
I swear to goodness just as I finished reading this, my son had "an accident" - he's six. We deal with constant "holding" - he hates to go and then he lets it all out and tears himself a new one (literally) at least once a week. I don't have the issues you do but I do understand. And no one judges here. Rant away. So thankful for this place!
My recent post Recognition and Rejection.
First of all I'd like to say that the anonymous poster here is not me....even though it could be.

My son, Noah, is 7 and also has encopresis. We've been at this for 5 years and besides spending a fortune in Miralax and diapers we haven't seen any improvement at all.

Secondly, you are SO not alone in this.
HELL YES you deserve to rant; you could've traded that kid in for a puppy years ago but you've stuck it out! Hope it gets better.
Poop Queen:

I KNOW. My daughter Elise suffers from encopresis as well, intermittently, thankfully. She seems to go through bouts of it in times of stress and change, which pretty much means the entire last two years, minus a few weeks here and there. Elise does not leave her poop around, or hide underwear or things like that, so the smell of poop doesn't really bother me, as crazy as it is to say - but nonetheless, dealing with the encopresis has been as hard if not harder than dealing with her recent PDD-NOS diagnosis.

I have never in my life talked to anyone about this besides Elise's father, grandparents, and my old roommate who was an unforgiving bitch. Let me say that again - my old roommate, who Elise and I unfortunately were stuck living with for a year and a half because we could not afford a place of our own at the time, was an unforgiving bitch. I (and my parenting skills) (the lack of them apparently) were entirely blamed for Elise's problem.

Elise started off by soiling herself in halfway through her first year of kindergarten. I was shamed by her teacher, her school nurse, and even her school principal who called to tell me that Elise shouldn't be enrolled in school if she wasn't potty trained. I was brought to tears by the shame that was put on me by adults who were supposed to be her protectors and supporters. She was sick, and I was being punished for other people's ignorance. People thought it was my fault that she wasn't potty trained (she was trained at 3 and had no problems til almost 5) people thought it was my fault because her diet didn't include enough healthy foods to keep her regular (in reality, Elise plainly admits that "she doesn't like pooping") people blamed me - and still blame me - for all of Elise's problems, including the encopresis.

You know, I would like, for once since this all began, to be told that Elise's constant shitting of herself ISN'T. MY. FUCKING. FAULT!!!
UGH!!

Jill - please make sure Poop Queen sees this comment if you don't mind, and pass along my email address. Anyone else who wants to talk poop issues with me, I would be thrilled for the company in this shitty hell over here: cheneymabel@gmail.com
My recent post 8
My son doesn't have encopresis but I am very familiar with the shit smell and cleaning it like crazy. My son has severe Autism and has a smearing problem. I woke up one time and checked on him and there was shit all over his mattress, all over the floor, walls, closet. . .
and the worst part?

He was eating it! I spent 20 minutes cleaning shit out of every crack of his body and out of his teeth. . .

and he's laughing the whole time. . . .

Rant on!
oh my God the horror! You are entitled to to rant! It should have been my first hint that something was incorrect with my son. I would come into his space and discover him as a child protected in crap, surfaces, bed, bed linens, locks, experience, EVERYTHING! Have you ever washed crap from the spindles of a wood made bed at 3 AM? OF COURSE YOU HAVE! Absorbs does not it? THANK YOU lovely Christ this is something he increased out of for the most aspect, now just sometimes on the ground or surfaces of the bathing space. I think that's mostly a deficiency of having the sychronisation to get it off of himself. I experience for you and wish you take action to your son's issues!

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