I live with a dark, stinky secret.
My son is encopretic. In case you are lucky enough not to
know what encopresis is (Oh, to be so blissfully ignorant!) allow me to fill
you in. Bear with me, I’m not a
doctor. I’m just a Mom who lives
with it every day.
Encopresis is also known as “paradoxical
diarrhea” which would be hilarious if it didn’t make me want to cry.
It’s basically a condition that happens
when children withhold stool to the point of becoming very badly
constipated. It can enlarge the
rectum and damage the nerve endings to the point that voluntary control of the
rectum is lost. Then (and
this is my favourite part) softer stool ends up leaking around the blockage
which causes what Wikipedia delicately refers to as “soiling”.
That means that shit is a big part of my
life. It consumes most of my
conscious thoughts. I am
constantly on the alert for the smell of shit to the point that I sometimes
smell shit that isn’t even there. I
have to always know when he shits, how much he shits and whether or not he
shits in his pants. I have had to
clean shit off of walls, toys and some furniture. I am frequently
scrubbing shit-smell out of my computer chair where he sits to play video
games. Sometimes when I sit on my
couch I get up and my ass smells like shit because he was sitting there
earlier. And then I have to change
my pants and scrub shit smell out of my couch.
One time, before we really clued in that
something wasn’t right about his constant “accidents”, he laid a big turd in a
heavy traffic area in the house.
Then my husband (who was wearing shoes at the time, thank God!)
unwittingly stepped in it and tracked it all over the house before he notice
the awful smell. That was our
turning point, when we knew we needed professional help. Shortly thereafter we were told that
our son has ADHD and encopresis.
You know, I can deal with ADHD. It’s really tough but I can deal with
that. I love my son very
much. His ADHD is so much a part
of him I’m often at odds with how much I resent the difficulties it gives him
and how much fun his quirky impulsive behaviour can be.
But I cannot deal with the shit.
I cannot fucking deal with the shit.
I would really like to sit here and write
something helpful and inspiring and wise.
I would love to sit here and talk about love for my son helping me to
overcome our difficulties and do some actual good for people out there who are
suffering and struggling with the same difficulties. But for once, right now, I’m going to let myself be selfish
and ugly and self-pitying because I’m so fucking tired of being strong and putting
a smile on it so I can be the good Mom.
Fuck!
Fuck! Fuck! Fuck!
It’s not fair! It’s not fair that it’s my job to make my kid sit on the
toilet every day at the same time and he hates me for it! It’s not fair that I
have to fight with him about it every day and that sometimes he finds ways to
punish me for it. It’s not fair
that I have to deny him things like summer camp because I’m afraid of what will
happen to him if his friends find out.
I’m sick of everything smelling like
shit! I’m sick of forking over
$100 a month on laxatives for years on end! I’m sick of having to try to remove shit-smells that never
seem to go completely away.
Febreze will always, for the rest of my life, be heavily associated with
the smell of shit. I’m sick of having
to search all over the house for wherever he hid his shitty underwear! I’m sick of worrying about what will
happen to him if he shits himself at school!
I’m tired of living my life trying to pretend
that everything is okay; trying not to compare myself to other Moms with other
families who don’t have to deal with shit beyond the age of three. I’m tired of having to remind myself
not to think about “normal” or “should be” because if I do I might start
screaming and not know how to stop. I’m tired of being such a failure!
We’ve been at this for four years. Four fucking years and no end in
sight! I’ve been doing everything
the doctor tells us and fighting so hard to do it and I’ve got nothing but a pissed
off kid and a load of shitty underwear to show for it. And I’m just supposed to deal with that
because that’s my job and that’s the shit end of the stick I was dealt. Because that’s what being a grownup means.
But for once, right now in this Dive, I’m
going to complain Goddammit. After
all the shit I’ve been through, I think I deserve that much.
KidsDrDave · 660 weeks ago
KidsDrDave · 660 weeks ago
Mama Meerkat · 660 weeks ago
Otherwise, hugs. My daughter is chronically constipated and incontinent, so we've been through all the laxatives in the world. It didn't help and was endlessly frustrating for both of us. Cone enemas have made a huge difference, but they are time consuming.
My recent post Spatial Awareness
Amy Knox · 660 weeks ago
Dani G · 659 weeks ago
I get it. Rant on. You deserve it. You're among friends here.
My recent post Getting my craft on
flirtingwithnormal 27p · 659 weeks ago
You have been dealt a hand of cards that would make anyone want to run out of the house, screaming. But you have stayed and hung in there and dealt with the situation as best you can (and held in all of the negative feelings as you clean it all up).
In the Mom category, you come up smelling like roses.
I sure hope it gets better soon - maybe the folks in Cincinnati can help.
My recent post Saturday Centus - 08/04/12 - Poetry for Pooches
Lyndsey · 659 weeks ago
Lyndsey www.gettingbusybeinggood.com
dbs · 659 weeks ago
My recent post Things one should never outgrow:
confessionsfromhh6 43p · 659 weeks ago
My recent post Back to School
Rebecca · 659 weeks ago
My recent post Flipping Fragments
Kelly Hafer · 659 weeks ago
My recent post
Lyndsey · 659 weeks ago
Jenny Saul-Avila · 659 weeks ago
And I can totally see you associating Febreze w/ poop. For years, when "potpourri" air freshners were all the rage, we used them at home to mask the cat litter. Now anything remotely potpourri scented just smells like cat piss & poop to me. I can't imagine all the emotional baggage & frustration that comes w/ it being your kid's poop. I also know what you mean about smelling phantom poop. After a bout of stomach flu went down in my house, I smelled puke for ages...and you deal w/ it so much more.
I won't go into all the details of the fun we have with constipation in our house - we don't have the poop to clean up that you have. I'll just say poop is such a pain. In so many ways.
Good luck to you! I hope something changes fast for your family.
solodialogue 73p · 659 weeks ago
My recent post Recognition and Rejection.
extremeparenthood 87p · 659 weeks ago
My son, Noah, is 7 and also has encopresis. We've been at this for 5 years and besides spending a fortune in Miralax and diapers we haven't seen any improvement at all.
Secondly, you are SO not alone in this.
cyndynewsome 33p · 659 weeks ago
cheneymeaghan 15p · 659 weeks ago
I KNOW. My daughter Elise suffers from encopresis as well, intermittently, thankfully. She seems to go through bouts of it in times of stress and change, which pretty much means the entire last two years, minus a few weeks here and there. Elise does not leave her poop around, or hide underwear or things like that, so the smell of poop doesn't really bother me, as crazy as it is to say - but nonetheless, dealing with the encopresis has been as hard if not harder than dealing with her recent PDD-NOS diagnosis.
I have never in my life talked to anyone about this besides Elise's father, grandparents, and my old roommate who was an unforgiving bitch. Let me say that again - my old roommate, who Elise and I unfortunately were stuck living with for a year and a half because we could not afford a place of our own at the time, was an unforgiving bitch. I (and my parenting skills) (the lack of them apparently) were entirely blamed for Elise's problem.
Elise started off by soiling herself in halfway through her first year of kindergarten. I was shamed by her teacher, her school nurse, and even her school principal who called to tell me that Elise shouldn't be enrolled in school if she wasn't potty trained. I was brought to tears by the shame that was put on me by adults who were supposed to be her protectors and supporters. She was sick, and I was being punished for other people's ignorance. People thought it was my fault that she wasn't potty trained (she was trained at 3 and had no problems til almost 5) people thought it was my fault because her diet didn't include enough healthy foods to keep her regular (in reality, Elise plainly admits that "she doesn't like pooping") people blamed me - and still blame me - for all of Elise's problems, including the encopresis.
You know, I would like, for once since this all began, to be told that Elise's constant shitting of herself ISN'T. MY. FUCKING. FAULT!!!
UGH!!
Jill - please make sure Poop Queen sees this comment if you don't mind, and pass along my email address. Anyone else who wants to talk poop issues with me, I would be thrilled for the company in this shitty hell over here: cheneymabel@gmail.com
My recent post 8
Bethany Seward · 659 weeks ago
and the worst part?
He was eating it! I spent 20 minutes cleaning shit out of every crack of his body and out of his teeth. . .
and he's laughing the whole time. . . .
Rant on!
aminta · 565 weeks ago