xmlns:og='http://ogp.me/ns#' Yeah. Good Times.: Autism dreams

Sunday, February 10, 2013

Autism dreams

I had this dream last night that I was with the boys at what was probably a school (not our school, we weren't familiar with it) and we were all hanging out in the library. Child 1 was lining up books and making a BART track and Child 2 was playing on his iPod.

At some point, I don't know exactly why, I took Child 2's iPod away from him (probably because he was yelling curses at it) and he got mad at me and ran out. On my way out to find him I ran into a group of people who I think was our IEP team. They informed me that we were finally going to have that meeting I've been wanting and let's go into this conference room and close the door.

I objected, because I needed to go find Child 2 and make sure he was okay. He was probably locked up in one of these classrooms crying his eyes out. They let me check a few rooms but the clear message was that I needed to go into the conference room immediately or the meeting would never happen.

I felt panicky, because I didn't know where he was. In my dream mind I thought that it was likely that he had found some kids, had forgotten all about being mad at me and was probably having a great time (this is very likely). But the pressure was on and I was being asked to make a choice: my NT kid's needs vs. my autistic kid's needs.

In the non dream world of course this seems silly; the answer is to say screw the meeting I need to go and find my kid. In the dream world things are never that simple and I don't actually know what I ended up doing. I either made a choice or the dream morphed into something else and suddenly we were at our house but it wasn't our house, it was McDonalds, or something like that. But I woke up pondering what my subconscious was telling me.

Do I feel pressure to make a choice between my kids, because of their different needs? I don't feel internal pressure, but I have to say that there is external pressure towards all autism parents. The choice isn't as specific as one kid over the other, it is between the autism world vs. the non autism world.  We're supposed to be looking at the world as if autism is the only thing that exists in it. We're supposed to be activists on behalf of the autism community, and if we're not then we're doing something wrong. This reality, that autism is all encompassing, is certainly true for some people; people who are autistic themselves or who do not have typically developing kids, but in general it is not true for the majority of autism parents. We have other kids, we have other things going on, we can't give up our entire lives to autism acceptance; some of us are just trying to make it from one day to the next, we don't even have any choices at all.

I don't like that pressure, not just because I don't agree with it, but because it is MY choice how I raise my kids and live my life. I object to the idea that somebody who doesn't know me would judge me as lacking simply because I don't toe their particular line. I have my own line, and my responsibility is first and foremost to my family.

I wish I could go back into the dream and tell those people that they can fuck their meeting because I'm going to go find my NT kid. Sure, he doesn't have the same issues and needs as his brother, but he has issues and needs of his own and I will not choose one or the other. I will respect them both for who they are and what they need, for as long as we all live.



Comments (8)

Loading... Logging you in...
  • Logged in as
I cannot love this hard enough. This part: "We have other kids, we have other things going on, we can't give up our entire lives to autism acceptance; some of us are just trying to make it from one day to the next, we don't even have any choices at all." Speaks to me. The reality, for me, is that autism impacts every. single. aspect. of my son's life. It makes every. single. action. challenging, deliberate, and, often times frustrating for him. It (autism) therefore affects our choices as his parents - and our choices for our non-autistic kiddos. It's a delicate balance. And, to be honest, I often fail miserably at achieving that balance.
So on point Jill, as usual. I struggle with a lot of the same issues and concerns as you touch upon here, and our NT son Ian has had to "suck it up" on more than one occasion. The reality is, Andrew, our son with autism, needs way more day-to-day accommodations and they often come at the expense of his sibling. We try super hard to balance it out, but the universe just doesn't provide an even playing field, so we do the best we can. But that doesn't make it any better, for any of us. Thank you so much for bringing this very important subject to light for others.
This, "I don't like that pressure, not just because I don't agree with it, but because it is MY choice how I raise my kids and live my life. I object to the idea that somebody who doesn't know me would judge me as lacking simply because I don't toe their particular line. I have my own line, and my responsibility is first and foremost to my family." I really like.

Both my youngest are Aspie, but even still their competing needs can be tricky. None the less I refuse to live a life boxed in by their labels. I want them to know their identities as autistic people are not intrinsic to their self worth. If they want to go into autism advocacy down the track and claim their status as out and proud autistic people then fine, thats up to them, but I'll be just as happy if they choose a very different path where its nobodies business but theirs that they happen to have a neurology different from the majority of the population. I'm not choosing an 'autism' lifestyle, over an NT lifestyle. Im raising my kids to be as self sufficient and confident as I can, what they choose to do with that is up to them. I don't give a shit if someone somewhere thinks I should be making them poster kids for autism awareness/acceptance. They are both so much more than that.
It's strange how ones child and their issues can affect everything in a parents life. And they can even make their way into our dreams. I too, have dreamt about autism, which is strange, but I take it as a sign that I've accepted my sons autism into my life.
This is so good. So good and exactly what my husband and I talk about often, especially lately. We do feel that same pressure and sometimes I really struggle with finding my place because to some we are "not special needs enough" (in that we don't advocate or live and breathe Autism the same way they do) and to others we are "too special needs" (if that makes sense). I love what you said " I will respect them both for who they are and what they need, for as long as we all live." Thanks for writing this.
1 reply · active 632 weeks ago
Thank you for commenting :)
I struggle with this as well. I am always wondering if I'm short-changing them at the expense of the other. Hugs.
Even when the boy was still falling under the autism spectrum criteria, we were not "good" at being special needs parents. I suppose you could say we didn't embrace it. But I think that's sort of also what led us to get to where we are today, with him doing as well as he is. The funny thing is, it didn't matter what we called ourselves or how many awareness walks we went on. We were still neck high in it. And I can't tell you that our daughter's life wasn't altered during that time because we were so deep into dealing with him. However, I don't know if she "suffered" as a result. She's a different person -- almost definitely an even better one -- because she has her brother.

I have no doubt Child 2 is getting gifts from his life with Child 1 that none of us will ever understand. And vice versa. Kids don't need to be treated equally in a family. They need to be treated for who they are. And you're great at that. xo

Post a new comment

Comments by