xmlns:og='http://ogp.me/ns#' Yeah. Good Times.: "I wish he was normal"

Sunday, July 15, 2012

"I wish he was normal"

I got a message on Facebook the other day; somebody was thanking me for my honesty. She said that she had spent some time with an NT kid and the thought had crossed her mind about how cool it would be to have a "normal" kid. And then she felt guilty for feeling that way about her own child. And then, she says, she thought about what I would say... and she felt better.

Okay, first of all? Wow. The fact that I could have that much impact on somebody whom I've never met blows my fucking mind. Seriously, blogging? Because... wow. And it made me think about what I'm doing here, as a bloggerish-type person, and what kind of responsibility I might have to my readers, most of whom I don't even know. I have people thank me all the time, for "saying what they can't," for saying what they feel but feel guilty about expressing, and I'd like to take this opportunity to say some more stuff that people might be thinking but are afraid to say.....

Sometimes I look at Child 1 and I think "I wish he was normal."

Yep, that's right, I just wrote that.

I love that boy; more than my own life. He is beautiful and wonderful and smart and perfect just as he is, and I love him so fucking much. I spend a lot of my time fighting for and defending his rights as an autistic person but sometimes? I wish he was "normal." Because his life would be easier if he wasn't autistic. Because my life would be easier if he wasn't autistic. Because there's a lot of hardship and pain headed our way, in addition to the hardship and pain that has passed by us already, and everybody's life would be easier, in general, without hardship and pain.

I just wrote that down for the world to see, because this is the truth; this is what I think sometimes. And it doesn't mean I don't love him or accept him, it just means that this is what I think sometimes. And there's nothing wrong with that, because the thoughts that go through my head are nothing more than that: thoughts. What's important is what I do with those thoughts: how I act, how I treat him, how I treat the world... how I treat myself.

See, the thing is, you can't fault yourself for your own feelings. Whoever you are, whatever your circumstances, the truth is that you feel what you feel. Feelings are normal, they pass through your head and throughout the course of the day you may have a billion of them. That's what human beings do, you can't stop feeling things any more than you can stop being a human being. What's not okay is anybody who tells you that you're not okay for having feelings. So I'm here to say that, whoever you are, if you occasionally look at your kid, or yourself, and think "I wish s/he was normal," that's okay. It's okay to think that. It doesn't mean you don't love your kid or yourself, it just means that's what you think at the moment.

And to anybody who would tell me that I'm part of the problem, or I'm helping to keep autistic people marginalized, or I'm personally offending you by saying this? First of all, this isn't about you, this is about me. You don't get to tell me that my feelings are wrong any more than I get to tell you that your opinion is wrong. Because they're both right. They are what they are. And the sooner that we can all learn to accept each other for how we feel and who we are, the sooner we can make this world a better place for you, and for my kid. And that's what I'm trying to do here.

So, thank you to the person who wrote to me on Facebook. You have impacted me more than you can ever know, and I hope that I can continue to make you feel better about things; to help make you feel normal. I'll keep trying to, anyway.



Comments (47)

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Absolutely beautiful, honest post. THANK YOU. My niece has asperger's and my sister-in-law (who's other child has severe juvenile diabetes - round the clock insulin, blood checks, etc) is so SO exhausted all. of. the. time. And mostly? It's from defending the right of her beautiful, perfect-as-she-is, challenging and wonderful daughter to be something different than "normal". Thank you for sharing this. I am going to pass your post along to her.
My recent post what lies beneath.
outstanding. I've been having a lot of those feelings lately myself. it's nice to see I'm not the only one.
My recent post Failure, and Lots of It.
I wish the rest of the world had a place for your kid. Because that is why he faces problems, and hardship, it's why you have to fight and it's what makes it hard for you. The fact that unless you are "normal", there is just no place in society for you. The Kardashians get a show, and those Jersey Shore people are famous.... your kid will have to fight for acceptance. I don't know, but it seems to me that "normal" looks a little overrated.
I guess you are chained to this blog now, since it does so much good for others. You have a duty to your fellow humans to give them more Jillsmo. Some are born to greatness, others have greatness thrust upon them.
Dixie Redmond's avatar

Dixie Redmond · 662 weeks ago

Jill. Thanks for writing this. I have many more thoughts which I won't say out loud. ;-) . That's the thing about thoughts, they aren't always of our own volition, but after we think them we get to decide whether to act on them or not. In this particular case, the thought "I wish he were normal" for me would be:

I wish life were easier.
I wish he were accepted.
And much more.
This is spot on. I don't think enough people are as honest with themselves as you just were to the world. That takes a lot of courage and I thank you for sharing your thoughts on the matter.
My recent post In the Public Eye
yep---it is the ebb and flow of life. we had a faimly reunion recently. mostly a yucky time. for our aspie teen grandson. My heart has been broken that so many of "family"
just dont seem to give a rat's ass. They dont see what we do or what his dialy struggles are. Understanding and compasson would help!
ps. dont ever think of chucking this, SRMM .!
I've written that out to as well. I don't apologize for it either. Yesterday though someone said to me "I'm sorry" when I told them my daughter was Autistic. I was like why? She's not on a ventilator, or in a hospital, or has a life expectancy of a few years.
My recent post Oh I'm Sorry
We don't say we want our kids to be "normal" because it's not the PC thing to do.

However, the fact that most of us spend huge amount of time and resources pursuing therapies for our kids speaks for itself.

While the reality is that my daughter will never be absolutely "normal" I want to get her as close as possible. I want her to have friends and be loved by other people. I want her to have an easier time adapting when things don't go her way. I want her to learn problem solving skills that do not involve crying or tantruming. The quirkiness? That I do embrace fully. If other kids don't get that, then they're not the right friends for her. But everything else? Yeah, I want as normal as possible.
My recent post Health Care Is So Expensive!
this is flippin flapping the most awesomest thing ever written. The magna Carta? The Declaration of independence? The Cogito Ergo Sum? useless scraps of paper.

we have become such a FRIGHTENED group of people that we are afraid to own honesty. And i don't mean moms of autistic kids, i mean people in general. If we cannot honestly own up to what we feel, how can we ever be authentic?

so beautiful--this piece and you. hearts and kittens and an ass slap or two...
My recent post Flashback Friday: Yesterday
This was so brave, you! I started writing a comment, but it got too long. Let me just say for now that this post makes me so happy I know you. I think you are wonderful, and I think both Child 1 and Child 2 are lucky to have you as a mom.
My recent post The Nail Hole and the Accidental Fourth of July
jillsmo, i confess---i was confused. but not about the post---all that is true. i fell asleep at FB when i , or someone, wrote SRMM. I do know the difference, really.
1 reply · active 662 weeks ago
What is SRMM?
yes. yes. a million times yes.

normal seems easier. I want easier.

My recent post *This Moment*
I love your honesty. I can relate. I love, love, love my kids...love who and what they are, but I, also, wish they were "normal" or "typical" sometimes. It would be easier...I think. Thanks for being honest.
Michelle @OzMumSpeak's avatar

Michelle @OzMumSpeak · 662 weeks ago

Thank you so much for this post! You flipping rock! That is all. Xxx
My recent post 3 Little Bitches
Thank you so much for this post, for having the courage to say out loud what surely most of us must feel at one time or another!
I'm new to your blog (and to the online autism community and associated politics...) and will be following it from now on :-)
I feel the same way about other words too, like "grief." We aren't supposed to grieve, aren't supposed to wish for normal, etc. But when someone is condemned for their feelings the feelings don't go away, they just feel guilty about it. And that is a vicious cycle.
My recent post Always Moe
I love you and I love this post! That is all.
My recent post Body Confidence
I wish I was normal.......nah not really.......I have too much fun being me
I vacillate so much on this topic. But what it boils down to is what you said: I want my son's life to be easier. And as selfish as it sounds, I want MY life to be easier too. I would love for society and people to accept my kid for the wonderful, beautiful person he is, but really? It would be so much easier if he were just normal. No more sensory issues, no more learning disabilities, no more communication problems. Thank you for your honesty--I feel a lot less alone!
My recent post Review: Lunch Money's 'Spicy Kid'
you rock. great post.
I need time to digest this reply, but meanwhile, let's hear it for "TJElevatorFan" for providing hours of YouTube entertainment for "not normal" kids everywhere. Like my daughter. I'm guessing you know who I'm talking about...
No, no, no... BerkeleyBARTFan1296 :)
And here I thought all of those views were ours alone. Sounds like the makings of a social club to me, Lord help us all!
Whenever I stop by here to read a post you always amaze me.
My recent post Let's be Honest (Teen Edition)
Autism Mama's avatar

Autism Mama · 662 weeks ago

Wow, finally!!! Someone says the trust about feeling and autism. Lately I have been feeling like the only Autism Mom who believes autism sucks even though she loves (adores) her autistic child. Yeah! I wish my boy was NEURO-TYPICAL too. Let’s used the bid word NEURO-TYPICAL because I don’t really know anymore what it’s normal. I applaud you for your honesty. You just have got another follower…
1 reply · active 662 weeks ago
Trust me, you are far from alone.
But of course! Sure, normal can be boring, but doesn't boring sound blissful sometimes? I heart you.
You are so right! Yes, I admit I want my child to be normal like her older sister. I want her to be able to accomplish things without so much difficulty. I want her to be able to tell me she is hitting her head against the pavement for a reason.

I will even go as far to admit I would really like a day without someone in the grocery store giving me a strange look because Boo is shouting with glee in the frozen food section for no apparent reason.

But why should we feel guilty? If our child had cancer wouldn't people understand that we want them to be healthy and live a 'normal' life!

My recent post Thank goodness Boo took a right turn!
I think it is a natural behavior if you wish that your kid was normal. It doesn't change your feelings about him, actually, these kind of love could be much stronger than with the 'normal' ones. And you don't have to feel guilty about that sentence, it's natural.
My recent post Falls wir unerwartete Gäste hätten…
Great post. I love my son more than anything, but I cannot help wondering how much easier our lives (his as well as my own) would be if he didn't have Autism.

My recent post A Song That I Used To Love
My favorite part - "..the sooner that we can all learn to accept each other for how we feel and who we are, the sooner we can make this world a better place for you, and for my kid." Acceptance of those with whom we don't agree - that's the key. xo
My recent post Have it Your Way.
Good stuff! Well said! Bravo!
My recent post Vacation Lifesavers
A-FREAKING-MEN!
Spot on! You rock!
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You totally rock, and I totally feel the same way about my daughter. And frankly, those who say otherwise are hard to believe.
So, yeah, ummm, yep. I have that same thought at least 254 times a week. I would never change my son. If given the opportunity, I'm not sure that I could follow through, because taking away what makes him "abnormal" is taking away what makes him, well, him. But holy shit wouldn't it be nice to not have to perfectly align the toothpaste with the bristles? Although I love every single aspect that makes him unique, I always wonder about what life would be like "on the other side". It's the same as wondering what life would be like if I wasn't balding, had 24" biceps, and a tanned six pack. We will always wonder what life would be like on the other side, but, honestly, we'd just bitch about something else. Great post, as always.
I can relate. Sometimes I wish I was normal so much that I cry. Because sometimes it's really, really hard--and I know it can be hard as a NT person.. intellectually speaking, anyway--because I don't *know* and that frustrates me. If you were my mom, I wouldn't blame you, or any other mom, for thinking that from time to time.
My recent post Reading Rage Tuesday: Goodreads “bullies” and why authors need to stop the crusade.
Jill, THANK YOU for writing this. I found your blog just a few months ago after I started my own and realized I didn't know what I was doing. So for the most part, I've just had the pleasure of reading your hilarious posts about how you almost threw a dead mouse on your own head. But today, after an old friend asked me how my son is doing, and I wrote a post about how I had no idea how to answer her (she has never met him, has no idea he's ASD), I wanted some autism posts, so I came here. And found this one. Which makes me feel so much better. Justified, somehow, for wishing my son were normal, too. So thanks for this. Although you posted it months ago, the fact that it is HERE, NOW, when I so needed it is awesome. Again, thank you.
My recent post How do I answer?
Yes! Exactly! <3 !!!

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