Okay, first of all? Wow. The fact that I could have that much impact on somebody whom I've never met blows my fucking mind. Seriously, blogging? Because... wow. And it made me think about what I'm doing here, as a bloggerish-type person, and what kind of responsibility I might have to my readers, most of whom I don't even know. I have people thank me all the time, for "saying what they can't," for saying what they feel but feel guilty about expressing, and I'd like to take this opportunity to say some more stuff that people might be thinking but are afraid to say.....
Sometimes I look at Child 1 and I think "I wish he was normal."
Yep, that's right, I just wrote that.
I love that boy; more than my own life. He is beautiful and wonderful and smart and perfect just as he is, and I love him so fucking much. I spend a lot of my time fighting for and defending his rights as an autistic person but sometimes? I wish he was "normal." Because his life would be easier if he wasn't autistic. Because my life would be easier if he wasn't autistic. Because there's a lot of hardship and pain headed our way, in addition to the hardship and pain that has passed by us already, and everybody's life would be easier, in general, without hardship and pain.
I just wrote that down for the world to see, because this is the truth; this is what I think sometimes. And it doesn't mean I don't love him or accept him, it just means that this is what I think sometimes. And there's nothing wrong with that, because the thoughts that go through my head are nothing more than that: thoughts. What's important is what I do with those thoughts: how I act, how I treat him, how I treat the world... how I treat myself.
See, the thing is, you can't fault yourself for your own feelings. Whoever you are, whatever your circumstances, the truth is that you feel what you feel. Feelings are normal, they pass through your head and throughout the course of the day you may have a billion of them. That's what human beings do, you can't stop feeling things any more than you can stop being a human being. What's not okay is anybody who tells you that you're not okay for having feelings. So I'm here to say that, whoever you are, if you occasionally look at your kid, or yourself, and think "I wish s/he was normal," that's okay. It's okay to think that. It doesn't mean you don't love your kid or yourself, it just means that's what you think at the moment.
And to anybody who would tell me that I'm part of the problem, or I'm helping to keep autistic people marginalized, or I'm personally offending you by saying this? First of all, this isn't about you, this is about me. You don't get to tell me that my feelings are wrong any more than I get to tell you that your opinion is wrong. Because they're both right. They are what they are. And the sooner that we can all learn to accept each other for how we feel and who we are, the sooner we can make this world a better place for you, and for my kid. And that's what I'm trying to do here.
So, thank you to the person who wrote to me on Facebook. You have impacted me more than you can ever know, and I hope that I can continue to make you feel better about things; to help make you feel normal. I'll keep trying to, anyway.
beginfromhere 17p · 662 weeks ago
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Becky · 662 weeks ago
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@Handflapper · 662 weeks ago
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Cactusinyrpants 59p · 662 weeks ago
I guess you are chained to this blog now, since it does so much good for others. You have a duty to your fellow humans to give them more Jillsmo. Some are born to greatness, others have greatness thrust upon them.
Dixie Redmond · 662 weeks ago
I wish life were easier.
I wish he were accepted.
And much more.
unlockingdoors 12p · 662 weeks ago
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Bec · 662 weeks ago
just dont seem to give a rat's ass. They dont see what we do or what his dialy struggles are. Understanding and compasson would help!
ps. dont ever think of chucking this, SRMM .!
BabyWeightMyFatAss · 662 weeks ago
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littlebitquirky 53p · 662 weeks ago
However, the fact that most of us spend huge amount of time and resources pursuing therapies for our kids speaks for itself.
While the reality is that my daughter will never be absolutely "normal" I want to get her as close as possible. I want her to have friends and be loved by other people. I want her to have an easier time adapting when things don't go her way. I want her to learn problem solving skills that do not involve crying or tantruming. The quirkiness? That I do embrace fully. If other kids don't get that, then they're not the right friends for her. But everything else? Yeah, I want as normal as possible.
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thissideoftypical 57p · 662 weeks ago
we have become such a FRIGHTENED group of people that we are afraid to own honesty. And i don't mean moms of autistic kids, i mean people in general. If we cannot honestly own up to what we feel, how can we ever be authentic?
so beautiful--this piece and you. hearts and kittens and an ass slap or two...
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profmomesq 50p · 662 weeks ago
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Bec · 662 weeks ago
jillsmo 103p · 662 weeks ago
Dani G · 662 weeks ago
normal seems easier. I want easier.
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smili76 42p · 662 weeks ago
Michelle @OzMumSpeak · 662 weeks ago
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chaoticmum 20p · 662 weeks ago
I'm new to your blog (and to the online autism community and associated politics...) and will be following it from now on :-)
Jennie b · 662 weeks ago
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Walt · 662 weeks ago
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mscheevious 16p · 662 weeks ago
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whacamolemom 53p · 662 weeks ago
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jillsmo 103p · 662 weeks ago
whacamolemom 53p · 662 weeks ago
@suburp · 662 weeks ago
i just wrote to a friend of mine that i still fail to see his impending Asperger's diagnosis as a 'gift' and while he is 'beautiful' and awesome and everything, i am sure he would be without the autism, at least to me, cuz he is, you know, my child..but I have so much to worry about on top of the normal parent worry.. sometimes, I am just sick of it and yes, i wish he was normal. sometimes more, sometimes less. i don't even see why i should be ashamed of this wish.
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dbs · 662 weeks ago
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Autism Mama · 662 weeks ago
whacamolemom 53p · 662 weeks ago
whacamolemom 53p · 662 weeks ago
Kerri · 662 weeks ago
I will even go as far to admit I would really like a day without someone in the grocery store giving me a strange look because Boo is shouting with glee in the frozen food section for no apparent reason.
But why should we feel guilty? If our child had cancer wouldn't people understand that we want them to be healthy and live a 'normal' life!
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reichmaria 15p · 662 weeks ago
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margaret · 662 weeks ago
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solodialogue 73p · 662 weeks ago
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Lana Rush · 662 weeks ago
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extremeparenthood 87p · 662 weeks ago
Kelly Hafer · 662 weeks ago
Thank you for saying this. I would give a whole lot for Ted to be normal.
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Crack You Whip · 662 weeks ago
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Cheney · 661 weeks ago
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findingninee 79p · 642 weeks ago
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