However, before Thanksgiving, I had asked Sunday, the incredibly awesome blogger mom who writes at Adventures in Extreme Parenthood, to write me something about how "picky eating" is a completely different ballgame with an autistic kid. It was inspired by me once having tweeted something about Child 1 not being able to eat anything without ketchup on it, and getting a response along the lines of "my kid puts ketchup on everything, does that mean he has autism, too?" That was a while ago, but it has festered in my brain ever since, even before the #youmightbeanautismparent awesomeness. I have 2 kids who are picky eaters, you see, and they both like to put ketchup on their food, but... it's different. It's different in a way that I don't think I'm capable of explaining, which is why I had to ask for help.
And on that note.... here's Sunday.....

Your kid is picky, my kid is Stalin.
One of the easiest ways to piss off an autism parent is to chime in after every struggle they voice with, "Well, my Johnny does that too!"
Case in point: The ever-popular "Which mom's kid is the pickiest eater" debate.
And to clarify... I WIN.
Or to be more exact, every single parent who has a child with autism (or other special need) will win that debate or ANY debate over the frustrations of child rearing. But not because we want to win it. Because the facts are so strongly evident in our favor.
My older son, Sam, is eight years old and since the age of 18 months he has eaten these foods:
- Grilled cheese or peanut butter and jelly sandwiches
- Animal crackers (but only a certain brand)
- Pretzels (none of those sneaky stick shapes! ONLY the traditional pretzel shape)
- Homemade chocolate chip cookies (which I bake on a weekly basis)
No candy, no ice cream cones, no birthday cake, cotton candy, or any of the other sweets most children beg and plead for ad nauseam.
Unfortunately, this means that he also will not eat any of the items typical children hate, such as: brussel sprouts, spinach, carrots, liver and onions, and anything with the word VITAMIN FORTIFIED blazing across the front of the package.
His younger brother, Noah, who is six has very much the same type of diet. However, he will at least eat bananas and a handful of other toddler-friendly foods like Goldfish crackers and fruit snacks.
Neither of my sons will eat anything that requires the use of a spoon or a utensil. If you offer them one they will either use it as a drum or throw it across the room aiming for the cat laying on the corner of your couch. So, it would be best to just keep those forks and spoons to yourself.
By far the WORST thing anyone can say to me (or any special needs parent) about their child's picky eating is this,
"You know Dr. Phil (my pediatrician, my grandmother, God almighty himself) said that if you just serve them wholesome, well-rounded meals three times a day they will eat it if they get hungry enough."
To which I would reply..... "You wanna bet?!"
When Sam was five years old and had been on his sandwich & cookie diet for three years straight his Pediatrician suggested I give him regular foods for each of his meals and in her words, "Chances are he'll get hungry after a day or two and give in"
Once again I replied..... "Wanna bet?!"
After three days I called the Pediatrician to check in and told her he still wasn't eating. She suggested I keep going. So, I made sure he had plenty of fluids and I kept offering him things like Eggo waffles for breakfast, mac and cheese with a side of apple slices for lunch, and for dinner something HORRIBLE like pizza and ice cream for dessert. He wouldn't eat any of it. Not.A.Bite.
After five days the Pediatrician told me to stop and give him the sandwiches and cookies he had grown accustomed to. She apologized and agreed that clearly this self-limited diet was much more than just a case of being picky about food. She said that clearly this was more of a phobia. Very rare, but not unheard of in children with autism.
In the years since then we've chosen to deal with this situation by not dealing with it. In other words, parenting is all about picking your battles. Even parents of special needs kids have deal breakers...for instance, fecal smearing. My boys both went through that stage and they learned really fast that Mommy is NOT happy and it is NOT okay. But, picky eating is one battle I am choosing not to fight. If Sam and Noah want to eat peanut butter and jelly sandwiches for breakfast, lunch, and dinner for four years straight that is A-OK with me. But shitting on my couch and spreading it on the walls will get you 86'd from my living room faster than you can say, "Don't squeeze the Charmin".
The point is that a parent of a child with special needs doesn't want to have their frustrations invalidated by someone insisting that their child does the exact same things...because they don't. Not on the same level that our children do and not coupled with dozens of other challenging behaviors all happening at the same time every day with no end in sight.
What we do want to hear is "Wow, that sounds really tough." and leave it at that.
Heidi · 694 weeks ago
My son will eat Vegemite toast (rarely peanut butter), hot chips, occasionally wheatbix, and milk arrowroot biscuits. He will have the odd lollipop or small piece of plain square chocolate. That is all. The only thing that keeps me sane is that I give him a multivitamin (liquid form in a drink).
We also tried not giving him options and it lasted 4 days before I went insane and gave up. They say kids won't starve themselves...... Ah yes they actually will!
@householdsix · 694 weeks ago
We went through a phase where my oldest, whose diet at the time was primarily grilled cheese and pizza, decided he no longer wanted melted cheese. The other parents and teacher at preschool tried to reassure me it was only a phase and in a couple weeks he'd be back to eating his favorite foods again. It was 11 months.
Food just hasn't been a battle I want to fight either. I was always afraid if I did I'd give my kids some sort of weird food complex or eating disorder. I'd rather just let them be.
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extremeparenthood 87p · 694 weeks ago
CalyCoRose · 694 weeks ago
Her favorite food is Chicken Nuggets. She doesn't care where we get them, or how they're made (McDonald's, Burger King, some chain restaurant, a local restaurant, Mommy makes them), if they're chicken and they have coating and she can pick them up with her fingers, she'll eat them.
She just started eating peanut butter and jelly at 6 years of age. Which is funny as that's all I ate for my first 2 trimesters of my pregnancy with her. Nothing else would stay settled in my stomach except for pb&j. :D
And heaven forbid if I give her red meat. She won't even eat the little burgers from McDonald's some kids seem to love. Hamburger Helper? She'll pick out all the ground burger and eat the noodles/sauce and that is it. There are only a few veggies she'll eat.
Fortunately, she loves to take her vitamins. She takes them once a day.
But using utensils? Not on your life! Even if it's chopped up pieces of chicken or pork chop and you use a fork to pick them up? Nope. Spaghetti? She looks like she rolled in it because she's used her fingers for that! Though, she does use a fork for eggs.
No gum chewing in our house neither. She hates the sound of people chewing it. Yes, my daughter has Super Sensitive Hearing. I know people look at me in amazement, but it's true. (Okay, people with either NT kids or no kids usually look at me like I'm crazy).
And don't get me started on syrup! K wont' eat it. It's fine when we go to IHOP because they have syrup on the table. But when we go anywhere else, and the waitress brings the syrup, K will either have a meltdown or practically throw the syrup at the wait person or I have to step in quickly and hand it back to the bewildered person. We always order the kids pancakes WITHOUT SYRUP. We stress this. I cannot count how many waiters/waitresses says "But I thought you were kidding". Nononono. You see this now highly agitato child sitting next to me? It's because syrup is now on her plate. And it's touching her pancakes. Now we have to do a lot of overtime soothing and crooning, and I'm now the Holly Hugs-A-Lot dolly for my child.
Sorry ... Needed to vent.
pugariffic 41p · 694 weeks ago
I enjoyed reading your vent! Thanks for sharing :)
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Yeran · 694 weeks ago
And that final line of : 'What we do want to hear is "Wow, that sounds really tough." and leave it at that', well that is exactly what everyone else should know to say when they talk to us ;-)
Mayor Gia · 694 weeks ago
But seriously, that sounds really tough. Honestly.
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thissideoftypical 57p · 694 weeks ago
we JUST got our boy to eat cheese pizza. to which all my friends, and his therapists always respond "really?". No. I've been making it up all this time. Right now he's diving into a plate of foie gras. asshats.
and yeah--i want to hand out a little "how to respond card with the following options: a) wow, that' sounds difficult. b) that must frustrate you. C) let's have a cocktail to ease your stress
to which i would no doubt get the response, "well, that card would work with anything"
My point exactly.
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Sarah · 694 weeks ago
Your post reminded me of it -- it's worth a read.
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XLMIC · 694 weeks ago
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jessica · 694 weeks ago
Jen · 694 weeks ago
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thoughtyautie 29p · 694 weeks ago
YES! This is so true for those of us with autism as well. I can't count how many times I've heard "but a lot of people are like that" or "I have trouble with that too" or "oh, that sounds just like [person-without-autism]" My personal favorite (and by favorite I mean DO NOT SAY THIS IN MY PRESENCE EVER EVER EVER) is "I think everybody is on the spectrum to some degree."
I can definitely sympathize with your frustration over hearing the same thing from other parents. Comments like that make a frustrating situation so much worse.
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Julia · 694 weeks ago
As an OT treating kids with ASD and SPD, it gives me masses of insight..the most severely restricted diet I've come across was an 8 yr old who drank milk in the morning and ate chicken nuggets and chips from mcdonalds at night..because the plate he used to eat off broke. We got him to try some biscuits and also wear new clothes (he had refused to wear anything different for 18 months)
mamafog · 694 weeks ago
I can tell when a tomato has touched my hamburger too. Ick.
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Jennie B · 694 weeks ago
solodialogue 73p · 694 weeks ago
Serenity Now · 694 weeks ago
He recently ate a piece of ice cream cake at school for a kid's birthday, and I was SO EXCITED! The teacher was like, whoa...it's cake. But he had never willingly eaten ice cream before.
I always hear parents complaining about how unhealthy McDonalds is, but I would love to be able to get my son a happy meal every once in a while. When we go out, I have to carry english muffins and warm vegetarian sausage links in my purse. Sigh.
Lisa · 694 weeks ago
Claire · 694 weeks ago
Cxx
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Cactusinyrpants 59p · 694 weeks ago
I've been reading these blogs, and there are so many stories that pretty much go like the one above. " my kid vomits at the sight of people eating so we took him to Ruby Tuesdays"...WTF? Why do you guys do all this stuff?
I don't get it. My kid was a pain in the ass, not Autistic, he grew out of it. We went back to church. He's a great kid now. But I don't know if I could go through what you parents do, and I would avoid difficult situations like starving my kid to see if he would have a banana even if a doctor said to.
Mom2MissK 74p · 693 weeks ago
Luckily, with lots of hard work and therapy, Little Miss's diet has expanded somewhat -- and for the rest of it, let's just say "thank God for Pedia-sure!" I totally feel for all the parents who commented that their kids have SEVERELY limited diets and I hope that there is some light at the end of the tunnel (and that light is not a pocketing, vomiting, silverware-throwing train-wreck!). Hugs to all you!
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amorninggrouch 45p · 693 weeks ago
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karen · 693 weeks ago
Wow. He eats cinnamon raisin toast and chocolate milk at each snack, lunch, and dinner. Other than that he will eat that packaged instant oatmeal for brekky, but only if it's "cinnamon spice" flavour. For his school snack he will actually have chocolate pudding, and some cinnamon cookies. Recently at a waterpark he ate a hotdog and I nearly freaking passed out. I used to complain about the peanut butter and jam sandwich, and now he'll never eat it.
Wow. Thank you so much for posting this.
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karen · 693 weeks ago
My recent post Sometimes Life Kicks You Right In The Poodle
karen · 693 weeks ago
My recent post Sometimes Life Kicks You Right In The Poodle
appliedbehavioralstrategies 13p · 693 weeks ago
I'm angry that any parent would try to compare their typical child to the picky eater with autism.
I'm even angrier at your physician who should know better. First, your physician should know this is not rare. It is a known FACT in the autism research literature. When Kanner first described autism in 1943, 6 of the 11 children had severe feeding issues. That is over 50%. Second, your physician should know that simply offering other foods will not work. All your physician has to do is read the research on pediatric feeding disorders. Only highly trained experts should be helping your children. All your physician did was encourage you to teach your child how to hold out even longer.
I run a clinic that treats picky eating. We have seen children just like your two--we've even seen a couple of kids who were pickier than your child. I'm sad that you have to go through this. It can be treated. Check out our blog where you will see some success stories (What Works Wednesdays).
Thanks for sharing your struggles. People need to know the struggles that parents of children with autism face.
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tulpen · 693 weeks ago
"Just stop giving him food through his tube. Once he gets hungry enough, he'll eat!"
I'd be one rich ass mother fucker.
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Patty · 689 weeks ago
I know my son is not nearly as picky as some kids on the spectrum, but he really only eats about a dozen foods regularly. I happen to be grateful he has that big of a repertoire, but boy am I sick of people acting like their kids are the same. Danny is not just picky--he is tactile defensive. This is not about him just wanting junk food. I mean, the kid will rarely eat cake, won't touch pudding with a 10-foot pole and hates whipped cream or cool whip. And he only eats ice cream once in a while--with NO chunks. So not the same as those other people. And he will NOT just get hungry enough and eat. He'd starve before letting mac and cheese touch his lips.
Paula Reinhart Johnson · 688 weeks ago
Sandi · 686 weeks ago
Misty · 679 weeks ago
Allie · 678 weeks ago
Sorry, I'm a little late to the party on this post.
Jenny Saul-Avila · 666 weeks ago
jaynn 57p · 663 weeks ago