xmlns:og='http://ogp.me/ns#' Yeah. Good Times.: "All Kids Do That" Part 1: Picky eating. Guest post from @extremeparenthood

Friday, December 9, 2011

"All Kids Do That" Part 1: Picky eating. Guest post from @extremeparenthood

I'm not sure if this is going to be a "series" or not, but I've gotten a great response from my request for input and I want to be able to give everybody a chance to say what's on their mind. If you've emailed or tweeted me, I assure you I have your name and email and you will be hearing from me (whether you like it or not) in a week or so.

However, before Thanksgiving, I had asked Sunday, the incredibly awesome blogger mom who writes at Adventures in Extreme Parenthood, to write me something about how "picky eating" is a completely different ballgame with an autistic kid. It was inspired by me once having tweeted something about Child 1 not being able to eat anything without ketchup on it, and getting a response along the lines of "my kid puts ketchup on everything, does that mean he has autism, too?" That was a while ago, but it has festered in my brain ever since, even before the #youmightbeanautismparent awesomeness. I have 2 kids who are picky eaters, you see, and they both like to put ketchup on their food, but... it's different. It's different in a way that I don't think I'm capable of explaining, which is why I had to ask for help.

And on that note.... here's Sunday.....


Your kid is picky, my kid is Stalin.

One of the easiest ways to piss off an autism parent is to chime in after every struggle they voice with, "Well, my Johnny does that too!"

Case in point: The ever-popular "Which mom's kid is the pickiest eater" debate.

And to clarify... I WIN.

Or to be more exact, every single parent who has a child with autism (or other special need) will win that debate or ANY debate over the frustrations of child rearing. But not because we want to win it. Because the facts are so strongly evident in our favor.

My older son, Sam, is eight years old and since the age of 18 months he has eaten these foods:

  • Grilled cheese or peanut butter and jelly sandwiches
  • Animal crackers (but only a certain brand)
  • Pretzels (none of those sneaky stick shapes! ONLY the traditional pretzel shape)
  • Homemade chocolate chip cookies (which I bake on a weekly basis)

No candy, no ice cream cones, no birthday cake, cotton candy, or any of the other sweets most children beg and plead for ad nauseam.

Unfortunately, this means that he also will not eat any of the items typical children hate, such as: brussel sprouts, spinach, carrots, liver and onions, and anything with the word VITAMIN FORTIFIED blazing across the front of the package.

His younger brother, Noah, who is six has very much the same type of diet. However, he will at least eat bananas and a handful of other toddler-friendly foods like Goldfish crackers and fruit snacks.

Neither of my sons will eat anything that requires the use of a spoon or a utensil. If you offer them one they will either use it as a drum or throw it across the room aiming for the cat laying on the corner of your couch. So, it would be best to just keep those forks and spoons to yourself.

By far the WORST thing anyone can say to me (or any special needs parent) about their child's picky eating is this,

"You know Dr. Phil (my pediatrician, my grandmother, God almighty himself) said that if you just serve them wholesome, well-rounded meals three times a day they will eat it if they get hungry enough."

To which I would reply..... "You wanna bet?!"

When Sam was five years old and had been on his sandwich & cookie diet for three years straight his Pediatrician suggested I give him regular foods for each of his meals and in her words, "Chances are he'll get hungry after a day or two and give in"

Once again I replied..... "Wanna bet?!"

After three days I called the Pediatrician to check in and told her he still wasn't eating. She suggested I keep going. So, I made sure he had plenty of fluids and I kept offering him things like Eggo waffles for breakfast, mac and cheese with a side of apple slices for lunch, and for dinner something HORRIBLE like pizza and ice cream for dessert. He wouldn't eat any of it. Not.A.Bite.

After five days the Pediatrician told me to stop and give him the sandwiches and cookies he had grown accustomed to. She apologized and agreed that clearly this self-limited diet was much more than just a case of being picky about food. She said that clearly this was more of a phobia. Very rare, but not unheard of in children with autism.

In the years since then we've chosen to deal with this situation by not dealing with it. In other words, parenting is all about picking your battles. Even parents of special needs kids have deal breakers...for instance, fecal smearing. My boys both went through that stage and they learned really fast that Mommy is NOT happy and it is NOT okay. But, picky eating is one battle I am choosing not to fight. If Sam and Noah want to eat peanut butter and jelly sandwiches for breakfast, lunch, and dinner for four years straight that is A-OK with me. But shitting on my couch and spreading it on the walls will get you 86'd from my living room faster than you can say, "Don't squeeze the Charmin".

The point is that a parent of a child with special needs doesn't want to have their frustrations invalidated by someone insisting that their child does the exact same things...because they don't. Not on the same level that our children do and not coupled with dozens of other challenging behaviors all happening at the same time every day with no end in sight.

What we do want to hear is "Wow, that sounds really tough." and leave it at that.



Comments (68)

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I am so there with you!!!!

My son will eat Vegemite toast (rarely peanut butter), hot chips, occasionally wheatbix, and milk arrowroot biscuits. He will have the odd lollipop or small piece of plain square chocolate. That is all. The only thing that keeps me sane is that I give him a multivitamin (liquid form in a drink).

We also tried not giving him options and it lasted 4 days before I went insane and gave up. They say kids won't starve themselves...... Ah yes they actually will!
Thanks Jill for letting me crash here on your blog.
1 reply · active 694 weeks ago
I do not fight with my daughter about food. I know I'm luckier than most parents whose child is autistic/has an autistic spectrum disorder. I can usually coax her to try other foods. Sometimes. After they have passed the "smell test". Everything new she has to smell. It's cute when at home, but out? Yeah, we get weird looks. Oh well. We ignore them. Apparently calamari has passed the smell test. She loves it. And steamed meat dumplings are another that have passed the smell test. Along with some others listed below. :D

Her favorite food is Chicken Nuggets. She doesn't care where we get them, or how they're made (McDonald's, Burger King, some chain restaurant, a local restaurant, Mommy makes them), if they're chicken and they have coating and she can pick them up with her fingers, she'll eat them.

She just started eating peanut butter and jelly at 6 years of age. Which is funny as that's all I ate for my first 2 trimesters of my pregnancy with her. Nothing else would stay settled in my stomach except for pb&j. :D

And heaven forbid if I give her red meat. She won't even eat the little burgers from McDonald's some kids seem to love. Hamburger Helper? She'll pick out all the ground burger and eat the noodles/sauce and that is it. There are only a few veggies she'll eat.

Fortunately, she loves to take her vitamins. She takes them once a day.

But using utensils? Not on your life! Even if it's chopped up pieces of chicken or pork chop and you use a fork to pick them up? Nope. Spaghetti? She looks like she rolled in it because she's used her fingers for that! Though, she does use a fork for eggs.

No gum chewing in our house neither. She hates the sound of people chewing it. Yes, my daughter has Super Sensitive Hearing. I know people look at me in amazement, but it's true. (Okay, people with either NT kids or no kids usually look at me like I'm crazy).

And don't get me started on syrup! K wont' eat it. It's fine when we go to IHOP because they have syrup on the table. But when we go anywhere else, and the waitress brings the syrup, K will either have a meltdown or practically throw the syrup at the wait person or I have to step in quickly and hand it back to the bewildered person. We always order the kids pancakes WITHOUT SYRUP. We stress this. I cannot count how many waiters/waitresses says "But I thought you were kidding". Nononono. You see this now highly agitato child sitting next to me? It's because syrup is now on her plate. And it's touching her pancakes. Now we have to do a lot of overtime soothing and crooning, and I'm now the Holly Hugs-A-Lot dolly for my child.

Sorry ... Needed to vent.
7 replies · active 693 weeks ago
Wow Sunday. I have a BIGGER respect for you right at this moment. It makes me happy that Tommy's Limitations arent as restricted but its come with years of working intensely with him. You're so right. We have to CHOOSE out battles. It comes down to SOMETHING in that tummy vs NOTHING in that tummy... well SOMETHING always wins in my book. The SCARY thing is these doctors!!!!!!!! When Tommy was 3 and still not talking the Doc told us "well stop doing everything for him. Don't feed him. Make him ASK for food". Yeah, we didnt even entertain that idea. Just switched doc's as soon as we got home. What HIDEOUS suggestions.

I enjoyed reading your vent! Thanks for sharing :)
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I almost could've wrote this Sunday!!! My battle I choose NOT to deal with is the food too.
And that final line of : 'What we do want to hear is "Wow, that sounds really tough." and leave it at that', well that is exactly what everyone else should know to say when they talk to us ;-)
Yikes! That's intense. I feel like showing this post to my mom and going SEE I COULD HAVE BEEN SO MUCH WORSE (because I decided I was no longer eating meat when I was 8. She thought it was a phase. Its been 16 years)

But seriously, that sounds really tough. Honestly.
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i tried to fight the food battle too, but decided it wasn't the battle i wanted to fight. cause you know what he will eat? gummy vitamins. *dusts off hands*

we JUST got our boy to eat cheese pizza. to which all my friends, and his therapists always respond "really?". No. I've been making it up all this time. Right now he's diving into a plate of foie gras. asshats.

and yeah--i want to hand out a little "how to respond card with the following options: a) wow, that' sounds difficult. b) that must frustrate you. C) let's have a cocktail to ease your stress

to which i would no doubt get the response, "well, that card would work with anything"

My point exactly.

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4 replies · active 694 weeks ago
The best thing I have ever read on "picky eating" and autism is this: http://www.literarymama.com/creativenonfiction/ar...

Your post reminded me of it -- it's worth a read.
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1 reply · active 694 weeks ago
That really does sound SO tough. I can only imagine.
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1 reply · active 694 weeks ago
love the guest post. you're awesome. she's awesome.
We had our dev ped tell us not to fight K with food. He said that was the least of our issues...haha. My husband still wants to fight that fight, but I am done. Thankfully, as K has gotten older she has added a few new foods. I was a picky kid, so I knew I would never fight about food, period, special needs or not. My son, for instance, eats cocoa pebbles for breakfast (only that cereal) and a cheese sandwich for lunch/dinner. That is it. He will eat snacks and some fruit, but no veg has ever passed his lips...literally. He takes a vitamin, and I am good. Kids will not just starve and then eat whatever you put in front of them...esp not our kids!
My recent post No Whammy, No Whammy, No Whammy
"The point is that a parent of a child with special needs doesn't want to have their frustrations invalidated by someone insisting that their child does the exact same things...because they don't. Not on the same level that our children do and not coupled with dozens of other challenging behaviors all happening at the same time every day with no end in sight. "

YES! This is so true for those of us with autism as well. I can't count how many times I've heard "but a lot of people are like that" or "I have trouble with that too" or "oh, that sounds just like [person-without-autism]" My personal favorite (and by favorite I mean DO NOT SAY THIS IN MY PRESENCE EVER EVER EVER) is "I think everybody is on the spectrum to some degree."

I can definitely sympathize with your frustration over hearing the same thing from other parents. Comments like that make a frustrating situation so much worse.
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2 replies · active 693 weeks ago
I'm speaking from the other side..as an adult with SPD and probably a bit Aspie. Tomatoes are my kryptonite but I had/have massive issues with textures. I can starkly remember throwing up after being forcefed things and sitting at the table until all hours with food I couldn't eat in front of me. My dad once tried to PAY me to eat a lettuce leaf. No dice. I didn't eat pizza until I was 19 (and to this day only certain types)..burgers or sandwiches with anything except meat and cheese would have been about the same age. My anxiety around food has reduced (thank you Effexor) but the hyper sensitivities are still there (oral, touch, auditory, smell)
As an OT treating kids with ASD and SPD, it gives me masses of insight..the most severely restricted diet I've come across was an 8 yr old who drank milk in the morning and ate chicken nuggets and chips from mcdonalds at night..because the plate he used to eat off broke. We got him to try some biscuits and also wear new clothes (he had refused to wear anything different for 18 months)
2 replies · active 693 weeks ago
I'm so glad you posted this, people don't understand how our kids are picky. I'll admit to being a bit jealous about the sandwich eating. My daughter would like to live on bacon. Since the store changed their pretzels (only mini twists) she will not get near them.
I can tell when a tomato has touched my hamburger too. Ick.
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We are lucky that Moe will eat a lot of different things, but what he will eat on any given day is a complete guess. Sometimes, Moe will look at something on his plate and shudder with such a physical reaction it is like I put living snails on his plate. Did I mention he once ate a snail? Anywhooo, great post, and I couldn't agree more about picking your battles. Moe rarely uses a fork, but if the food gets in somehow, whatever. My typical kid keeps me on my toes, but it is qualitatively different.
LOVE this post! It just sums it all right up, doesn't it? Here there is no way my kid will touch a utensil for the intended use. He has never eaten chicken, cereal or mac and cheese without gagging. He pockets food if it's not the right size, shape or texture and holds it until he finds a way to spit it out - complete with gag reflex... And yes, I have now officially been waving the white flag for a while. Eat the tiny broken up taco from Taco Bell with fake meat - at least it's something! Gahhh!!! Sympatico... totally.
Serenity Now's avatar

Serenity Now · 694 weeks ago

My ASD son eats the same thing for breakfast and lunch every single day (english muffin, 3 vegetarian sausage links) and we rotate through 5 dinners: pizza, Costco Micky Mouse chicken nuggets (only that brand), buttered spaghetti, Kraft mac and cheese (only that brand) or Trader Joes panko-breaded tilapia (only that brand). It has been this way for 2.5 years, and the one time I tried to give him non-Kraft mac and cheese, he gave up eating it for over a year.

He recently ate a piece of ice cream cake at school for a kid's birthday, and I was SO EXCITED! The teacher was like, whoa...it's cake. But he had never willingly eaten ice cream before.

I always hear parents complaining about how unhealthy McDonalds is, but I would love to be able to get my son a happy meal every once in a while. When we go out, I have to carry english muffins and warm vegetarian sausage links in my purse. Sigh.
3 replies · active 693 weeks ago
Can't tell you the number of times I heard the dismissive, "all kids do that." Nicely written!
What a great post! As someone who has worked with several autistic kiddoes, I did a lot of nodding along to things in the post and in the comments below.

Cxx
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I have probably been guilty of doing some kind of "my kid also does X but he isn't autistic". But if I did, it was in an effort to comfort a friend. I think that sometimes we can get so wrapped up in our personal ordeals that we lose sight of the fact that other people are having similar struggles and it's not just you or your kid. But I can still get your point. My real question is this. When my son was little, he was an absolute pile of writhing, screaming, pain in the ASS!, We just ga ve up. We stopped going to church since it was the only place he couldn't sit still. We stopped doing anything with him that was just going to obviously suck for us...So, why do parents of Autistic kids try all this stuff that won't work, or will be difficult or will end badly?
I've been reading these blogs, and there are so many stories that pretty much go like the one above. " my kid vomits at the sight of people eating so we took him to Ruby Tuesdays"...WTF? Why do you guys do all this stuff?
I don't get it. My kid was a pain in the ass, not Autistic, he grew out of it. We went back to church. He's a great kid now. But I don't know if I could go through what you parents do, and I would avoid difficult situations like starving my kid to see if he would have a banana even if a doctor said to.
5 replies · active 693 weeks ago
Ahhh, the stories I could tell about feeding my Little Miss! I love getting that ASQ-SE questionnaire and answering that question "are meal times stressful in your house?" Surely, they can add a "HELL YEAH" column for us!

Luckily, with lots of hard work and therapy, Little Miss's diet has expanded somewhat -- and for the rest of it, let's just say "thank God for Pedia-sure!" I totally feel for all the parents who commented that their kids have SEVERELY limited diets and I hope that there is some light at the end of the tunnel (and that light is not a pocketing, vomiting, silverware-throwing train-wreck!). Hugs to all you!
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1 reply · active 693 weeks ago
I teach high school students with ASD. Once in awhile the regular lunch program is altered, and some of hte regular lines aren't open. of course this means one of my kids does not eat lunch. one day i went down searching for what i knew he ate (or THOUGHT i knew) and came back to my room with the pb and j uncrustable. Little did I know i got grape instead of strawberry and the thing got flung across the room, accompanied by screams. :( Apparently not close enough. Poor kid.
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I can't begin to tell you how happy and refreshed I feel after reading this. I've done a few posts lamenting my son's HORRIBLE EATING. I am so with you, Sunday: I tell everyone that I believe in my heart that if I only gave Jack food I wanted him to eat, for days and days, he would starve himself rather than eat it.

Wow. He eats cinnamon raisin toast and chocolate milk at each snack, lunch, and dinner. Other than that he will eat that packaged instant oatmeal for brekky, but only if it's "cinnamon spice" flavour. For his school snack he will actually have chocolate pudding, and some cinnamon cookies. Recently at a waterpark he ate a hotdog and I nearly freaking passed out. I used to complain about the peanut butter and jam sandwich, and now he'll never eat it.

Wow. Thank you so much for posting this.

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1 reply · active 693 weeks ago
Wow, still freaking out over this post. So is there anything to be done or do we just be happy that our kids eat what they eat???
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1 reply · active 693 weeks ago
I'm going to link to this post from my ow, my angst facebook page : )

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I cannot help but read your post and get angry.

I'm angry that any parent would try to compare their typical child to the picky eater with autism.

I'm even angrier at your physician who should know better. First, your physician should know this is not rare. It is a known FACT in the autism research literature. When Kanner first described autism in 1943, 6 of the 11 children had severe feeding issues. That is over 50%. Second, your physician should know that simply offering other foods will not work. All your physician has to do is read the research on pediatric feeding disorders. Only highly trained experts should be helping your children. All your physician did was encourage you to teach your child how to hold out even longer.

I run a clinic that treats picky eating. We have seen children just like your two--we've even seen a couple of kids who were pickier than your child. I'm sad that you have to go through this. It can be treated. Check out our blog where you will see some success stories (What Works Wednesdays).

Thanks for sharing your struggles. People need to know the struggles that parents of children with autism face.
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I can actually 100% relate and I don't have a child with Autism...'cause when my kid was 100% tube fed? If I had a dollar for every person who told me;

"Just stop giving him food through his tube. Once he gets hungry enough, he'll eat!"

I'd be one rich ass mother fucker.
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I know I am totally late to the party on this one, but I have to chime in and say AMEN, sister! It drives me NUTS when someone says their kid is picky because he won't eat broccoli. Really? Really? Yeah, so not the same thing I am dealing with here. My son has never eaten pasta. Won't touch any veggies, except for corn on the cob. He has only recently actually allowed regular corn to pass his lips, but only when it's served at school. Not when I make it at home. Though he enjoys cheese and loves toast, he won't eat a grilled cheese.

I know my son is not nearly as picky as some kids on the spectrum, but he really only eats about a dozen foods regularly. I happen to be grateful he has that big of a repertoire, but boy am I sick of people acting like their kids are the same. Danny is not just picky--he is tactile defensive. This is not about him just wanting junk food. I mean, the kid will rarely eat cake, won't touch pudding with a 10-foot pole and hates whipped cream or cool whip. And he only eats ice cream once in a while--with NO chunks. So not the same as those other people. And he will NOT just get hungry enough and eat. He'd starve before letting mac and cheese touch his lips.
1 reply · active 689 weeks ago
Thank you!!!!! My son lives off buttered pasta and KRAFT Mac and cheese! Feeding therapy didn't help a whole lot and frustrated all of us a great deal! I decided it wasn't a battle I wanted to fight!
My son had to go to the ER for an allergic reaction once and the nurse was hell-bent on giving him a popcicle. I tried to tell her multiple times that he would not eat a popcicle, even if it were the most delicious-looking thing on a stick we had ever seen. She insisted that all children love popcicles and got one for him anyway. She handed it to him and he threw it on the floor. Imagine that.
1 reply · active 679 weeks ago
Amen. We've been through intense feeding therapy after episodes of vomiting and pocketing that resulted in a "pediatric feeding disorder" dx. Now my little guy is up to 10 foods which is a record for him. I am so tired of eating advice that never works and like you, have decided it's not a battle I want to fight right now. The only way my kid will eat his meal (if I'm lucky) is by sitting at his own table in our living room. I'm sure people think that's awful but if it's the only way he'll eat, then we do what we gotta do.

Sorry, I'm a little late to the party on this post.
I sometimes wonder how NTs experience their food preferences, because for me it often goes beyond "I don't want to eat this" to "the thought of eating this makes me lose my appetite and it is mental-physical struggle to do so". Part of it is certainly comfort in the familiar (I feel rather bad for my parents on that trip to Europe--but I was 14 and a known picky eater, so it couldn't have been surprising), but sometimes it's not a choice not to eat something, it's an actual inability where the very act of biting, chewing and swallowing is a difficult enterprise. Even though I've broadened my tastes a lot as an adult, eating out can still sometimes be tricky because stuff like tomatoes and mushrooms are EVERYWHERE *twitch*.

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