Okay, I got a little backed up/confused/befuddled about this series and my schedule and all that, but I'm pretty sure I've got things under control right now. If you have not received an email from me today, and you have sent me something for this, please contact me and let me know. After this post, I only have one more waiting in the wings, and all I have after that are promises of posts but no actual posts. I would really like somebody to write about sensory issues, stimming and obsessions, so somebody get me something please! (Also, if your name is Emily, and you are not related to me, just a reminder that you have made promises of a Guest Posting nature..... And if your name is Rachel, I can't remember if you've made promises or not, but I'm choosing to remember that you have.

Today I am happy to welcome Lisa, who blogs at Autism Wonderland. Hi Lisa!!!
All Kids Do That: Potty Training
Lisa Quinones-Fontanez
I don’t know why they say it; things like, “oh that’s all kids…” with a wave of their hand, whenever I say something, almost anything about my six year old son, Norrin. When Norrin had trouble those first few
Whenever anyone tells a special needs parent “all kids do that” – those four small words completely dismiss the diagnosis, the struggles of our day to day lives.
At least, that’s how I feel when I hear those words. Maybe they say it to make me feel normal. Maybe clumping our kids together makes understanding autism a little easier for them. Whatever the reason is, I know it’s not all kids. And when it comes to potty training – it certainly isn’t like all kids.
I started potty training when Norrin was two and half years old; the usual boy age to start. Whenever I talked about our potty training challenges with “typical” moms, they were all quick to tell me “all boys take a long time.” Then proceeded to tell me how it took them three weeks with their boy as opposed to the one week it took for their girl (or something crazy like that). And these moms offered suggestions, reward methods, books to read…but I knew none of these things would work for Norrin.
Well, it didn’t take three weeks to potty training Norrin. We’ve been training for the last three years.
Because what Norrin needed was time. He needed to understand the concept. He needed the motor planning to be able to pull down his pants (and/or to wipe backside). Norrin needed to strengthen his core so he could stand still and straight. Norrin needed to learn how to stop an activity and go to the bathroom – first with prompting and eventually without. Norrin needed the words to say “I have to go potty” or “I need help.” And he still needs help with fine motor skills like unbuttoning jeans and manipulating a zipper.
In order to get Norrin potty trained, we needed the assistance of an ABA therapist, several special education teachers and aides, speech and occupational therapists. We needed to use timers, visual aids, social stories and prompts. (Let’s not forget the wonders of Miralax!)
And along our potty training journey there were plenty of discarded underpants, stained carpets and wet floors. We went through bottles of detergent, tubs of disinfectant wipes and rolls of paper towels. And needless to say, the boxes and boxes of pull ups that we are still using. Yes – Norrin is potty trained during the day. Night time potty is a whole different story…
So instead of suggestions on what we should be doing, instead of dismissing the diagnosis by saying “that’s all kids,” take the time to listen and understand that in some ways our kids are different. Understand that because our kids are different, that our parenting needs to be different. And when it comes to stuff like potty training – what worked for your kid, may not necessarily work for a kid on the spectrum. Unless of course you used a book called “How to Potty Train in 10 Years or Less.” Because if you find that book, please be sure to pass that bad boy along.
Toni Smith · 679 weeks ago
Mayor Gia · 679 weeks ago
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sherilinr · 679 weeks ago
ugh. i'm glad you finally got the daytime part worked through and eventually the night times will come too, right? and if not, they make really big pull ups for overnight wearing if they should be needed.
Emily · 679 weeks ago
Yes, this. People say it to autistic adults as well, and I think it's for the same reason - to try to make us not feel different or deficient. But it doesn't work the way they think it does.
Emily · 679 weeks ago
Yes! This was me, and lots of other autistic kids, but definitely not "all kids". My core strength was virtually nonexistent - worthy of being made fun of ("jokingly") by my gym teacher - and I was still having accidents in 3rd grade because of often not being able to stop an activity to go to the bathroom, or else not being able to ask to go. I don't remember any of my peers peeing their pants in class or on the curb in front of their houses.
And Jill, I definitely want to write one of these, but my brain has been so frazzled this term. Rest assured though, I have not forgotten you! I am hoping to get a bit of a recharge in the next few weeks.
greengeekgirl 93p · 678 weeks ago
I also read what you posted below about other toilet habits.. I just have to say, thank you for posting, because it reaffirms that I wasn't just some kind of weirdo who couldn't handle wiping or make it to the loo in time :) because for a long time, I thought I was just deficient. Now I know it wasn't because of anything that I could help.
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Melissa M · 679 weeks ago
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Melissa M · 679 weeks ago
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Emily · 679 weeks ago
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profmomesq 50p · 679 weeks ago
My daughter is 4.5 and still in pull-ups, despite our efforts at potty training. We have small successes -- she's actually used the potty several times, and she will now frequently tell us that she's "stinky." (We did *not* teach her that -- that grew on her own tree ...)
Of all people, though, I am getting push-back about potty training progress from my daughter's special ed teacher, who claims that my daughter is using the potty at school "no problem." The implication is that we (her parents) are obviously screwing something up at home, and it drives me bonkers. It also makes me wonder why we keep getting notes home to restock her pull-ups at school ...
Sometimes, I worry that I project my own insecurities, fears and frustrations onto other people, creating a feeling that I'm being judged (or my daughter is being judged) when - in fact - I'm judging myself. But, every time I hear a NT parent dismiss those insecurities, fears and frustrations, I can't help but think: Really? Your three-week potty training struggle is the same as mine? Come to me with that noise when you've clean up someone else's bodily fluids (or solids) every day (and from locations other than her body) for five years straight -- *then* we can compare all-kids-do-that notes.
Once again -- grateful to know I'm not alone. :-)
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jillsmo 103p · 679 weeks ago
*pout*
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Kim · 679 weeks ago
"There's always hope" is my mantra when dealing with my son's skin picking, nail biting, binge eating and his other fun and time-consuming "hobbies" he just can't seem to stop himself from doing.
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erinclot 73p · 677 weeks ago
Yocheved · 609 weeks ago
My daughter has Fragile X, and while she trained quickly, she's very sensory. 10 years old and she still won't wipe. I have to prompt her to wash her hands, because "soap is slimy", and she won't flush because the sound hurts her ears. I do a LOT of underwear washing.
*going to read the rest of these posts - will probably be up til' 4am!*