xmlns:og='http://ogp.me/ns#' Yeah. Good Times.: "All Kids Do That" Part 14: Potty Training

Monday, March 19, 2012

"All Kids Do That" Part 14: Potty Training

See the tab above for more information about this series.

Okay, I got a little backed up/confused/befuddled about this series and my schedule and all that, but I'm pretty sure I've got things under control right now. If you have not received an email from me today, and you have sent me something for this, please contact me and let me know. After this post, I only have one more waiting in the wings, and all I have after that are promises of posts but no actual posts. I would really like somebody to write about sensory issues, stimming and obsessions, so somebody get me something please! (Also, if your name is Emily, and you are not related to me, just a reminder that you have made promises of a Guest Posting nature..... And if your name is Rachel, I can't remember if you've made promises or not, but I'm choosing to remember that you have. :) I'm calling you girls out!!!)

Today I am happy to welcome Lisa, who blogs at Autism Wonderland. Hi Lisa!!!


All Kids Do That: Potty Training
Lisa Quinones-Fontanez

I don’t know why they say it; things like, “oh that’s all kids…” with a wave of their hand, whenever I say something, almost anything about my six year old son, Norrin. When Norrin had trouble those first few days weeks months of kindergarten – oh, that’s all kids. When Norrin doesn’t want to sit down to eat a meal – oh, that’s all kids. When Norrin doesn’t sleep at night – oh, that’s all kids. And every year when I explain that Norrin doesn’t really understand the concept of Christmas – oh, that’s all kids.

Whenever anyone tells a special needs parent “all kids do that” – those four small words completely dismiss the diagnosis, the struggles of our day to day lives.

At least, that’s how I feel when I hear those words. Maybe they say it to make me feel normal. Maybe clumping our kids together makes understanding autism a little easier for them. Whatever the reason is, I know it’s not all kids. And when it comes to potty training – it certainly isn’t like all kids.

I started potty training when Norrin was two and half years old; the usual boy age to start. Whenever I talked about our potty training challenges with “typical” moms, they were all quick to tell me “all boys take a long time.” Then proceeded to tell me how it took them three weeks with their boy as opposed to the one week it took for their girl (or something crazy like that). And these moms offered suggestions, reward methods, books to read…but I knew none of these things would work for Norrin.

Well, it didn’t take three weeks to potty training Norrin. We’ve been training for the last three years.

Because what Norrin needed was time. He needed to understand the concept. He needed the motor planning to be able to pull down his pants (and/or to wipe backside). Norrin needed to strengthen his core so he could stand still and straight. Norrin needed to learn how to stop an activity and go to the bathroom – first with prompting and eventually without. Norrin needed the words to say “I have to go potty” or “I need help.” And he still needs help with fine motor skills like unbuttoning jeans and manipulating a zipper.

In order to get Norrin potty trained, we needed the assistance of an ABA therapist, several special education teachers and aides, speech and occupational therapists. We needed to use timers, visual aids, social stories and prompts. (Let’s not forget the wonders of Miralax!)

And along our potty training journey there were plenty of discarded underpants, stained carpets and wet floors. We went through bottles of detergent, tubs of disinfectant wipes and rolls of paper towels. And needless to say, the boxes and boxes of pull ups that we are still using. Yes – Norrin is potty trained during the day. Night time potty is a whole different story…

So instead of suggestions on what we should be doing, instead of dismissing the diagnosis by saying “that’s all kids,” take the time to listen and understand that in some ways our kids are different. Understand that because our kids are different, that our parenting needs to be different. And when it comes to stuff like potty training – what worked for your kid, may not necessarily work for a kid on the spectrum. Unless of course you used a book called “How to Potty Train in 10 Years or Less.” Because if you find that book, please be sure to pass that bad boy along.



Comments (25)

Loading... Logging you in...
  • Logged in as
Toni Smith's avatar

Toni Smith · 679 weeks ago

I can so relate to this post. My 5 year old (almost 6) is not fully potty trained. Still wears pull-ups during day and night. Instead of saying "all kids do that" I get "He should be potty trained now, not acceptable" or "You aren't doing a good job getting him to go" or "He's stubborn, just make him go, throw away the pull-ups"....I could go on and on and on...well you get it! So I applaud this post and wish so many would understand what we as special needs parents go through instead of passing judgement!
1 reply · active 679 weeks ago
Oof! I can't believe you get judgement from people! Like you're happy he's not potty trained!? Sheeeesh.
My recent post Sigh, Wine Drinking. It’s Kind of Like a New Year’s Resolution. Even though it’s March.
i think parents say "all kids do that" because they're trying to reassure us that everything's fine. what they don't realize is how small or frustrated that makes us feel.
ugh. i'm glad you finally got the daytime part worked through and eventually the night times will come too, right? and if not, they make really big pull ups for overnight wearing if they should be needed.
1 reply · active 679 weeks ago
"i think parents say "all kids do that" because they're trying to reassure us that everything's fine. what they don't realize is how small or frustrated that makes us feel."

Yes, this. People say it to autistic adults as well, and I think it's for the same reason - to try to make us not feel different or deficient. But it doesn't work the way they think it does.
"Norrin needed to strengthen his core so he could stand still and straight. Norrin needed to learn how to stop an activity and go to the bathroom – first with prompting and eventually without. Norrin needed the words to say 'I have to go potty' or 'I need help.'"

Yes! This was me, and lots of other autistic kids, but definitely not "all kids". My core strength was virtually nonexistent - worthy of being made fun of ("jokingly") by my gym teacher - and I was still having accidents in 3rd grade because of often not being able to stop an activity to go to the bathroom, or else not being able to ask to go. I don't remember any of my peers peeing their pants in class or on the curb in front of their houses.

And Jill, I definitely want to write one of these, but my brain has been so frazzled this term. Rest assured though, I have not forgotten you! I am hoping to get a bit of a recharge in the next few weeks.
1 reply · active 678 weeks ago
Oh, oh, Emily--this was me, too. (I have Asperger's.) I remember wetting myself in the school cafeteria because I couldn't ask my teacher to go to the bathroom; I was handing out forks that day (my turn for a lunchroom task), and boom, it was all over the floor. Outside my house, at my aunt's house . . . I think mine also stopped by the time I was in 3rd or 4th grade. Nighttime training didn't go into effect until I was eleven or so, and I wet my bed nightly--something friends often found out when they were allowed (rarely) to sleep over, or I was allowed to sleep over at their houses. I still remember my best friend's mom scrubbing my friend's bed and the couch.

I also read what you posted below about other toilet habits.. I just have to say, thank you for posting, because it reaffirms that I wasn't just some kind of weirdo who couldn't handle wiping or make it to the loo in time :) because for a long time, I thought I was just deficient. Now I know it wasn't because of anything that I could help.
My recent post Reading Rage Tuesday: Set alight, char, sear, scorch, and burn those thesauruses.
I would like to try my hand at writing a post on sensory issues. If you need someone. Just e-mail me.
My recent post Spitting and biting...it's just great huh?
1 reply · active 679 weeks ago
You know I think if you want I can do something about future planning also. Just let me know. I know it's a little off with the "All kids do that" theme but I think it's something NT parents do not get, or even close to understand.
My recent post Spitting and biting...it's just great huh?
Stephanie's avatar

Stephanie · 679 weeks ago

Thank you thank you thank you for the post! My Aspie daughter is 6 years old and still in diapers, we haven't even made it to pull-ups yet. I tried them but they are so much more expensive than diapers and with her not yet even having the smallest accident on the toilet after 3 years of work by me, her special ed teachers and therapists, I decided it was not worth the expense at this time. I am so glad i am not alone in this struggle. I hate hearing about "all kids do that" ..no she is the youngest of four, I know not ALL kids do this. She has FINALLY gotten to the stage where instead of denying she is wet or dirty, she will say yes I am wet or yes I pooped, albeit after the fact at least it's a start, right? My question is....do other children hold it and hold it until they can't hold it any longer or is it just my daughter. She was born with kidney reflux disease diagnosed in-utero but has since outgrown it. She can go hours and hours being dry, no rhyme or reason, no pattern as yet, then bam soaked completely through :/
2 replies · active 679 weeks ago
I used to hold it until I couldn't hold it any longer (add that to my list of issues above). I also couldn't wipe myself after I pooped, so my mother had to do it until I was 8 or 9.
(Annnd I just realized I've described my childhood bathroom habits on the interwebs. Dammit, Jill!) Anyhoo, the point of that reply, which I failed to include, was that it's not just your daughter, but not in an "all kids do that" way - more like a "bathroom issues are common among kids on the autism spectrum, and I understand that it must be difficult to deal with everyday" way.
My son is not Autistic. He never potty trained. Eventually, he got too big for pull ups and refused to take an extra set of clothes in his back pack for fear the other kids would laugh at him. So, every day (there was a few years I worked the night shift) they would call from his school and say he wouldn't come out of he bathroom. So I had to go, clean him up, and give him new pants. After that, he learned to hide it, and wash his own underwear.... he still pooped in his pants well in to his teens. Now he doesn't. Well... I don't keep track anymore, he's 17. As far as I know, he still does it. All kids don't do that. Believe me, we tried everything, including a doctor... So, I guess my point is, that just because we get "NT" kids, doesn't mean we get all the cool stuff that comes with them.
Sometimes I wonder if recognizing a similar behavior is less of an issue than the assumption that the "remedy" can be the same for all children?
My recent post Hello...housekeeping!
I love how you keep your sense of humor through it all, and you teach without preaching. Well done.
My recent post Monday Motivation
I cannot tell you how much I appreciate this post.

My daughter is 4.5 and still in pull-ups, despite our efforts at potty training. We have small successes -- she's actually used the potty several times, and she will now frequently tell us that she's "stinky." (We did *not* teach her that -- that grew on her own tree ...)

Of all people, though, I am getting push-back about potty training progress from my daughter's special ed teacher, who claims that my daughter is using the potty at school "no problem." The implication is that we (her parents) are obviously screwing something up at home, and it drives me bonkers. It also makes me wonder why we keep getting notes home to restock her pull-ups at school ...

Sometimes, I worry that I project my own insecurities, fears and frustrations onto other people, creating a feeling that I'm being judged (or my daughter is being judged) when - in fact - I'm judging myself. But, every time I hear a NT parent dismiss those insecurities, fears and frustrations, I can't help but think: Really? Your three-week potty training struggle is the same as mine? Come to me with that noise when you've clean up someone else's bodily fluids (or solids) every day (and from locations other than her body) for five years straight -- *then* we can compare all-kids-do-that notes.

Once again -- grateful to know I'm not alone. :-)
Thank you for "learning" us "NT" parents; I am fascinated by autism but have had no clue what you, as parents, must contend with in dealing with us outsiders. Through your blog, I have learned alot and hope that maybe I will have the opportunity one day to be the one who just listens..
Oh, preach it, sister! We have only just gotten a handle on the potty training issues. And Danny is EIGHT! We went through all kinds of pooping problems: constipation, him not being able to feel the urge, etc. etc. It has been the bumpiest ride--full of heartache and sweat and tears. And I'm not exaggerating at all. In fact, I haven't even tried to begin potty training my youngest who turned 3 last week. I'm just so scared of how it will go.
My recent post "Exploring Feelings: Cognitive Behaviour Therapy to Manage ANGER" review
Thank you Jill once again for hosting this great - much needed - series! I think it's great for us to share our stories and to realize that it's just us. And for those reading, who do not have special needs kids - I hope that these posts provide some insight :D
My recent post Great Expectations
Good stuff, Lisa. We're putting the full court press on Lily over spring break. ABA help. . . sequestering in the bathroom. . . prompting. . . rewards. . . musical underpants. . . the works!
My recent post 10!
2 replies · active 679 weeks ago
That is so unfair that Lily gets to wear musical underpants and I don't.

*pout*
Oh my god - I'm embarrassed by even the *word* underpants. If mine played music, I think I might actually die.
There are so many different ways of potty training, and the most of them are very complicated. It was so with my son, Brandon. He didn't understand why he has to do it on his own, he couldn't picture himself that he will need to do it without his mommy. It was a hard way to reach the goal, but after he could be proud of doing it alone, he liked it really.
My recent post dental implants
I don't have first-hand mom experience in this topic - my son was easy to potty train. But my daughter is going through this with her six-year-old son, so I'm grateful for the insights and strategies here. I'll pass on the message that she's not alone, and that there's hope...there's always hope.

"There's always hope" is my mantra when dealing with my son's skin picking, nail biting, binge eating and his other fun and time-consuming "hobbies" he just can't seem to stop himself from doing.
My recent post On Leading a Charmed Life
We are just starting to think about potty training and it sucks. We've been waiting for them to notice when they are going and they are! Awesome. It's the first step, right? Well, I'd like to think it's going to lead to some success on the potty but right now it's just leading to stripping off their clothes and smearing crap everywhere if they are alone in a room for 2 minutes when they poop. Naps are out unless they are wearing zip-up pajamas on backwards. anyone know where I can get 4T onesies? You'd be my hero.
THANK YOU for writing this series! I found you through http://sortedmegablocks.wordpress.com/

My daughter has Fragile X, and while she trained quickly, she's very sensory. 10 years old and she still won't wipe. I have to prompt her to wash her hands, because "soap is slimy", and she won't flush because the sound hurts her ears. I do a LOT of underwear washing.

*going to read the rest of these posts - will probably be up til' 4am!*

Post a new comment

Comments by