xmlns:og='http://ogp.me/ns#' Yeah. Good Times.: Angst, ennui, desolation and other words I found in a thesaurus

Thursday, January 5, 2012

Angst, ennui, desolation and other words I found in a thesaurus

Child 1 is depressed. He had an awesome winter break; I can't remember the last time I saw him so happy. There was no school, no schedule, he could do whatever he wanted and wherever he wanted, he got to ride BART all the time, he went sledding in the snow, it was fan-fricking-tastic.

Now he's back at school and he's really sad. It's awful. I haven't seen him smile since Sunday, I think. He's pale; he looks horrible. I try to talk to him and he tells me to "go away." Yesterday he literally pushed me away. I ask him if he's sad and he says "I don't want to talk about it." I ask him if he's happy and he says "no." Then he tells me to go away. I'm not even allowed in his room.

Probably the greatest gift I have received from this blogging thing is having become friends with adult autistics, who can (do their best to) help me understand what's going on in his head, because they've been there, too, for the most part. (I call them "Rachel and the Two Emilies." Okay, that's what I call them now. What happened to Laura, though? I miss her.) I can't remember which Emily once commented here that she always hated when her parents would constantly ask her what was wrong, because she couldn't tell them and yet they kept asking, and ever since she told me that I have stopped asking; stopped asking constantly, anyway. I have this problem, you see, and that's I'm really bad at not knowing stuff. If there's some piece of information that I know is out there, I want it. I want to know, good or bad, I want to know what it is. But I can't know, in this case, so I need to stop asking him. I need to leave him alone and just not know.

It's fucking killing me.

I hate this; I hate this, I HATE THIS!! I want to fix it... but I can't. Even if he told me "I'm sad because I hate school so very very much," there would still be nothing I could do to fix it, but at least I would know. I wouldn't be playing this constant guessing game; thinking that I know what the deal is and hoping that I'm right. But there's nothing I can do. I'm totally helpless. I HATE THIS.

I've been thinking lately about how raising your children is about making them be farther away from you. When they're babies, you know about every poop, every pee, everything they eat, every time they smile... and the older they get, the less you get to know these things, and that's apparently the mark of good parenting. That you know nothing about what they're doing and thinking and you just have to hope that one day they'll come back to you. I'm constantly fighting the urge to grab them up and run home with them to safety. But that's not what I'm supposed to do, as a "good" parent; I'm supposed to let them make their own way and hope that I've given them enough skills and self confidence so that they can do it.

Fuck that. Seriously. My baby is sad! I want to know why! Maybe I can fix it? Surely there's something I can do to help?? But he doesn't want to tell me, and I know that he hates it when I ask, so all I can do is sit here helplessly, waiting for him to smile again, which might be on Friday after school. I hope.

Stupid autism. :(



Just in case you thought today's post wouldn't be even a little bit funny, here is a haiku that I wrote last night while seriously under the influence of muscle relaxers (which work really well, by the way, my back is much better). I actually considered making it today's post, but that's really pathetic; even for me!


Brain no worky good
Can't make fingers do blog post
Okay, Jill sleep now



Comments (27)

Loading... Logging you in...
  • Logged in as
Feeling powerless sucks! I hope things start to look up for your kiddo and you too!
My recent post I gave up....
Big Fat Gini's avatar

Big Fat Gini · 690 weeks ago

I think this sums it up, "raising your children is about making them further away from you." Because that's where I am with our oldest right now. Sometimes I feel like he's a stranger and that there's nothing I can do about it. I wish that I had some wise words for you.
1 reply · active 690 weeks ago
How old is he?
Fourth and fifth grade is when they start to separate from the protective cocoon of parents. This is a good thing. I'm sure that when and if he's able to tell you what's bothering him, he will ask you to help.

Think of it as his first attempt at self-regulation. Trust that he's learned some coping skills from you and from watching other kids at school.

But if he ever starts saying scary things like "I wish I was dead", then you swoop in and get him some help.
My recent post Mr. De Mille, I'm Ready for My Closeup
Wow. I can't tell you what is going on in HIS head, I can tell you though, that at 11 i believe the hormones started. (i NOW recognize) that with MY son.. his growth spurts through puberty, bring LOTS of sleeping and LOTS of depression. He'd go from aggressive, to completely shut down refuse to get out of bed (except for food). One day he slept 18 hours.We were just treating the SYMPTOMS. We were treating the aggression, the "over-tired" (thinking it was a side effect of a med) treating his constant anxiety. We weren't looking at the depression and what was causing the depression. Tommy's verbal. He can answer questions, and tell you exactly what he wants and needs. The comprehension isn't there with him.

Here's what i know-
I suffer from depression. It started after i had my daughter. On most day's, I can keep my depression in check. (with the help of medication) When shit blows up, I can't cope. The depression kicks in. It's not that i FELL into a depression (not saying that it can't happen, its just never happened to ME personally) there's always a TRIGGER to my depression.

What I figured out with Tommy-
He was fine at home 80% of the time. the other 20% was when things out of my control would happen such as electricity going out or cable not working. School was the trigger. It's not that i didnt KNOW it. I just KNEW in my mind that i'd MAKE him like school. He hated everyone there. He'd purposely break every rule. Take down the computer network system. He would tell everyone that he was going to Blow the school up. Constantly threatened the teachers.. it became a joke.

What i'm saying is.. don't ignore it. Going INTO puberty already in a depressive state, is NOT pretty. I'm not sure how conversant he is, or what comprehension he has.. i'd pursue it. If he's shutting down to you, then go around him. Talk to the teacher(s), whatever personnel is with him. Is he being bullied? Is something bothering him or hurting him and he doesn't know how, or may be afraid/embarrassed to say something? (Tommy would pop wood everywhere... and would want to show the world. My friends son was the opposite. He'd become so embarrassed he'd shut down, lock himself into rooms.. and eventually began hurting himself to make it go away)

Just think.. you could have Tommy!!! :D When we push too hard we get "shut the fuck up and get out of my room you fucking bitch!!!"

That's always nice :)
6 replies · active 690 weeks ago
I've been going around him, that's the only reason I have any fucking clue what's going on. The problem is that he's totally fine when he's at school. His teacher emailed me this morning (in response to my desperate "WHAT'S GOING ON OVER THERE??" email) that said she was watching him at PE yesterday and he was smiling ear to ear the entire time.

We have an IEP in a month and I'll bring it up again, but we just had an emergency IEP to talk about the bullying issue (did you read this? http://yeahgoodtimes.blogspot.com/2011/10/helples... and plans were made and such, but I honestly just think that he hates school, doesn't like to be told what to do (much like his mother) and at school he'll just fake his way through, enough so that people will leave him alone. Then at home the whole facade crumbles. His teacher actually told me that was a good thing, because that's what "typical" kids do, too.
I do remember reading about that (even though your link is dead lol)

Well.. maybe she's right? I'm having a really tough time with Tommy not wanting to spend time with him. I make him. I schedule it in to our days. Right now he's bouncing around playing ps3 clueless not realizing that i have his mic muted so ppl don't make fun of him).

Maybe he's just pulling away from you. When my husband said that to me I wanted to kick him right in the sack. HE WOULD NEVER DO THAT!!!! Then one day my DAUGHTER said to me *snarl*

"you know mom.. maybe Tommy just want's to be alone in his room. You guys let ME go upstairs and hang out in my room all day why can't tommy?"

Well because YOU'RE up there on line with PEOPLE, or texting with PEOPLE.. he's up there watching one Weather radar channel that does nothing but show you the same dobbler radar all day with the same repetive music playing in the background for hours.

The little brainchild responds with "well, thats because that's what I want to do.. and maybe this is what TOMMY wants to do".

This is a tough one. And a really TOUGH age. You can't quite BLAME it on puberty.. but you want to blame it on something.
My recent post Sweet Mall Victory
Here's where i am with Tommy. In my eyes Tommy's always been autistic. I've always approached him as "my autistic child".. His new psychiatrist (to whom i love to death for opening my eyes to a different world) says His diagnosis is just that. A diagnosis. He's still a teenager, so he's still going to ACT like a teenager. He may act in way a typical teenager wouldn't act, but he will still have days where he'll be an asshole, and there will still be days where he's the greatest kid on earth.

I worry a TON!!!! about Tommy. I dont want him to live in seclusion. He'd be so happy if I'd let him. (my hub is the same way.. genetic trait? ha!) I get you're worried that he's not happy. But, are you HAPPY 24/7? Maybe he's just really pissed off that school had to start back up. I would be! School always sucked for me too. But I did what I needed to and got the hell out of there. (((hugs)))
My recent post Sweet Mall Victory
Sometimes I feel like my entire life is just one big giant autism related worry.

I get that he's still an almost 10 year old boy and he's going to do 10 year old boy things... I just don't know what those ARE. All I have is his 6 year old brother to compare him to. Do 10 year old boys tell their mothers to go away and want to be alone all the time?
Same thing here sistah! My daughter is 14.. Tommy is 17. I have no idea what 17yr old's do (other than what I did at 17.. and he's certainly not doing any of THOSE things!) I think the BIGGEST reason I STOPPED having friends (i was mostly MY choice to keep people FAR away from me) is because I can't look at other kids Tommy's age. NT 17 yr old. (or whatever age he is/was at that time) It's just too damn hard for me to physically SEE the comparison. Even with my daughter, i AM nothing but fueled by autism. I am his CONSTANT caregiver. Sometimes, I have to really dig deep just to give my daughter what she needs. It's not the same though. She knows she's missing out on a relationship with me. She's said it to me several times. I've actually asked HER to do a guest blog for me.. on being a sibling. What its like not just having an autistic brother.. but from a child's point of view.. what it's like losing your parents to autism. Having to do things split up all of the time.

I wish I had more answers for you. But I don't :( Just like every autistic child is different, so is every child in general. I can tell you that Tommy.. requires a lot of space. He likes to do his fun stimmy stuff. Most of the time, he wants to do it alone. Sometimes, he'll LET us join in .. but for the most part.. not. I require hugs and kisses.. because I'm mom.. and i can't live without them. I require him to acknowledge his sister. As parents.. we're rarely 50-50 in his mind. He usually likes one of us WAY MORE BETTER than the other lol Usually I'm the preferred one. For the past couple months, i've been chopped liver. Dad gets tons of unprompted hugs. I get zillions of "where's dad? what time is dad home?" and an hour later.. repeat.

I blame autism all the time. I have to. I need to blame something. I've blamed an ikea footstool and threw it threw a wall. That didn't help. Just made more work for me. Ripped my closet system apart in a raging fit because I hate autism so much. That didn't help either. Just again, made more work for me (and had to figure out how to explain MY actions to my kids).

I live in a different world than much of you. I never wanted Tommy mainstreamed what so ever. So the battles that a lot of you face with your children in public school... i can't relate to. I just hope with all my might that you have the supports you need in public school.

You can really drive yourself crazy trying to figure things out. I HAVE to understand everything Tommy does. I analyze every single behavior coming from him. It's really not healthy. I'm learning this now. (yay for Dr. Ruth!) I'm missing out on life. On the good stuff. On my daughter. On my husband... because I'm hoovering over Tommy constantly. I hope you don't get to that place. It's a hard place to crawl out of.

Sorry I rambled. Hopefully.. something helped.
My recent post Sweet Mall Victory
I fixed the link.

And exactly. Child 1 is up there watching youtube videos of BART trains again and again.

And I can blame it on something... I can blame autism, DAMMIT! :(
Stupid autism indeed.

I agree...it's about raising them to be farther from you, yet I don't think there is a single time that we want them out of reach of our heart. Often my oldest is in that place. I just can't touch her.
That's the suckiest part of all this - not knowing.

My son is going to be 6 in a few weeks, much of his speech is scripted so I never know what he's really thinking. But there are times when he says "I'm scared." - usually about school and I have no way of knowing why. I wish I had the answer for you but I don't.
My recent post Resolutions for the Special Needs Parent
I'm going through something similar with Audrey. She's showing a LOT of anxiety about going to school, especially since the break. But everyone says she's perfectly happy at school, which I can believe. She is 100% compliant and happy-faced with them, and then a beast for me at home. Is she just playing me like they say typical kids do...just putting on a big show so that I'll be all bribing her and giving in to her at home because I feel so awful? Or is she just holding it together for them and crumbling when she gets home? I honestly don't know. But those are two very different problems.
My recent post A Very Special Winter Break
Awww I'm sorry you have to watch your son struggle with that, it must be hard :(

the haiku is adorable, though.
My recent post Mayor Gia Meme 2012!
See this is why I love blogging--there is some great stuff up there in the comments. This is something I do that helps us. I sit him down, let him know how worried I am and I let him know how hard it is for him to "fake it" through the day. I repeat over and over that I know it's rough for him.
I give him a squeeze (or whatever) and here's the hard part---I try to give him some space. I have found I get through talking to him but I've not yet mastered the walking away part.

I usually just keep going over verbalizing things that I know he can't---hallways too noisy, getting bumped at lunch, not enough time to calm down, too much cold water in the bathroom, etc. and it tends to calm him down knowing that SOMEONE out there gets a little bit of what he's going through.

I hope that helps. Hugs.
My recent post Winter Break in Cookies...
embrace the unknown,
even though it kills you now.
you're an awesome mom.

My recent post Oh, For the Love of…
I hope the weekend brings some sparkle back!
My recent post Random snowfall
I'm happy to be one of your Emilies. I'm not sure if the comment you referenced is on this post: http://yeahgoodtimes.blogspot.com/2010/10/fuck-au... or if Other Emily said something similar.

You could always try to simplify the process of sharing what is bothering him. An example from my own experience that might help illustrate:

When I first met with people from the autism support program at my school, they asked me what kinds of things I would like help with. I had no idea what to tell them. If there was a list of things (spoken or written), it would have been much easier, because I could have just checked boxes or answered yes or no, and the options they gave me might have helped me think of other things. Doing something similar with Child 1 might make it easier for him to convey information, if he wants to.

I really like what Lizbeth said above. If he clearly doesn't want to talk about it, regardless of whether he is actually able to or not, then I would just do what you can to support him and put him at ease, while at the same time letting him know that you are simply there for him. Do you think he might enjoy a mother-son picnic at a BART station?
My recent post Assumption of Asperger’s
1 reply · active 690 weeks ago
That's a good suggestion, to give him choices, except I want to ask "what can I do to make you feel better?" and there really aren't any choices for that question. I know that I don't have a choice except to just ride this out and hope that he knows that I love him (I only tell him that about 100 times a day) and that he can come to me for hugs and stuff when he wants to.

He would definitely prefer a father-son picnic at a BART station, and they're going to do just that this weekend, although at this point, even though I'm sick to DEATH of riding BART, I would totally go with him :(
I'm so sorry. I wish I knew what to tell you. I work with students with autism, and I am always trying to find ways to help. I hate the feeling of being unable to make your child better. When my son who suffered the stroke was in the hospital, I wanted nothing more than to make his seizures stop and help him feel better, but I couldn't, and it killed me. I think mamas have this primal instinct to fix whatever's wrong, and if they can't, it eats at them. I hope your little man starts to feel better and very soon. P.S. Love the haiku. Need the name of the meds. Mine no worky :(
I'm not a parent. But I do have a psychology Bachelor's, and I did take a college student with Asperger's to his college classes for a school year. So I'm not entirely in the dark, but also not entirely in the know.

The only thing I can think of, instead of trying to ask him what's wrong, and get that out of him (I know I hated school when I was 10, and I'm technically "cognitively normal"), ask him what different he would like to do. On a weekend or something. I don't know if this would do anything, because Routine might be sacred, but it's something positive that he might want to talk about at length, or do, instead of something that might be causing anxiety that he can't really express.
I hate that feeling too. We go through it in cycles with my 10yo. Hormones started this summer. If you believe what you read, hormones and puberty are even more fun in kids with autism - yay. Every time we have a day where my son is a complete jerk, or what I call "putting the "ass" into asperger's," I keep thinking about this one blog I read where an adult Aspie said he was less of an asshole once he started meds. But then I think maybe we just need to ride this hormone train and wait to sort out the bodies later to see what's the typical hormone/puberty shit and what really is the autism because some days it's REALLY hard to tell the difference. My younger son is on meds (hallelujah sleep!), so I always offer to make the older one an appt with the psych if he needs a neutral party to talk that isn't mom or dad? Maybe offering up some neutral 3rd party would help? A family friend or relative Child 1 likes? A favorite teacher or therapist? I don't know. I honestly feel as lost as you some days. This shit blows.
I can't really offer much except recollections of myself at his age. 4th or 5th grade we wanted to hang out with our friends more than we wanted anything to do with our parents, and I know that even though I was a bit of a mama's boy I gravitated more toward my dad and "boy stuff" and started pulling away from mom and "girl stuff". I remember around that time no longer wanting people to call me "Jimmy" (that was actually 3rd or 4th grade) and wanting to be a "big kid" and to have time to myself. That very well may be it.

And I loved my parents dearly, but they always wanted me to do STUFF with them. . . go fishing, have fun. . . you know. . . stupid stuff that detracted from my computer games and book reading and basketball or whatever.

I'm the same kind of person with regard to needing to know. I have to understand what's wrong. "Just tell me what's wrong!" If my wife says, "Remind me, I have to talk to you about Emma." I'll say, "About what?" and she's always, "We'll talk later." and then it eats at me RELENTLESSLY all day long until I find out and I keep hounding her for at least a brief summary of what it is, so I know it isn't some horrible horrible thing. . . and it'll turn out to be something moronic like, "we need to think about summer camp." and I'll be like, "I worried all damn day for THIS?" But I digress. At least with my wife she'll TELL me. So I know it's gotta suck that he's bottling it all up.

And I don't want to make you feel worried or anything, but when I was in 6th grade, I ran afoul of the most popular kid in school, who had hitherto been my friend, and for a solid year he made my life hell. And I didn't tell my parents about it for months and month. . . maybe 10 months. They didn't understand why I suddenly didn't want to go do things that I used to love. . . and it was because I knew he and his new friends would be there to make my life hell.

My point in even bringing that up is. . . just stay in the loop. With your aforementioned personality trait of needing to know, I doubt that advice is really necessary. And it's probably just him trying to "be free", but stay in the loop.

My recent post Proud of My Girls
Parenting does mean you are raising your kid to be away from you and I also hate it - so very, very much. It makes me crazy to not know every single thing the girl is thinking [despite there having been MANY MANY DAYS where I would want her to shut the fuck up already with the constant narration].

I'm seriously considering becoming the overbearing, nosy mother I could be. Join me?
I like your haiku. Maybe you should take muscle relaxers more often.
So sorry you're dealing with this. My 15-year old daughter is not autistic, but it sounds like you were describing her in your post. I hope he finds his happy place over the weekend & it last through the next week of school.
My recent post Corduroy – 2012

Post a new comment

Comments by