Now he's back at school and he's really sad. It's awful. I haven't seen him smile since Sunday, I think. He's pale; he looks horrible. I try to talk to him and he tells me to "go away." Yesterday he literally pushed me away. I ask him if he's sad and he says "I don't want to talk about it." I ask him if he's happy and he says "no." Then he tells me to go away. I'm not even allowed in his room.
Probably the greatest gift I have received from this blogging thing is having become friends with adult autistics, who can (do their best to) help me understand what's going on in his head, because they've been there, too, for the most part. (I call them "Rachel and the Two Emilies." Okay, that's what I call them now. What happened to Laura, though? I miss her.) I can't remember which Emily once commented here that she always hated when her parents would constantly ask her what was wrong, because she couldn't tell them and yet they kept asking, and ever since she told me that I have stopped asking; stopped asking constantly, anyway. I have this problem, you see, and that's I'm really bad at not knowing stuff. If there's some piece of information that I know is out there, I want it. I want to know, good or bad, I want to know what it is. But I can't know, in this case, so I need to stop asking him. I need to leave him alone and just not know.
It's fucking killing me.
I hate this; I hate this, I HATE THIS!! I want to fix it... but I can't. Even if he told me "I'm sad because I hate school so very very much," there would still be nothing I could do to fix it, but at least I would know. I wouldn't be playing this constant guessing game; thinking that I know what the deal is and hoping that I'm right. But there's nothing I can do. I'm totally helpless. I HATE THIS.
I've been thinking lately about how raising your children is about making them be farther away from you. When they're babies, you know about every poop, every pee, everything they eat, every time they smile... and the older they get, the less you get to know these things, and that's apparently the mark of good parenting. That you know nothing about what they're doing and thinking and you just have to hope that one day they'll come back to you. I'm constantly fighting the urge to grab them up and run home with them to safety. But that's not what I'm supposed to do, as a "good" parent; I'm supposed to let them make their own way and hope that I've given them enough skills and self confidence so that they can do it.
Fuck that. Seriously. My baby is sad! I want to know why! Maybe I can fix it? Surely there's something I can do to help?? But he doesn't want to tell me, and I know that he hates it when I ask, so all I can do is sit here helplessly, waiting for him to smile again, which might be on Friday after school. I hope.
Stupid autism. :(
Just in case you thought today's post wouldn't be even a little bit funny, here is a haiku that I wrote last night while seriously under the influence of muscle relaxers (which work really well, by the way, my back is much better). I actually considered making it today's post, but that's really pathetic; even for me!
Brain no worky good
Can't make fingers do blog post
Okay, Jill sleep now
Robbie · 690 weeks ago
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Big Fat Gini · 690 weeks ago
jillsmo 103p · 690 weeks ago
Kim · 690 weeks ago
Think of it as his first attempt at self-regulation. Trust that he's learned some coping skills from you and from watching other kids at school.
But if he ever starts saying scary things like "I wish I was dead", then you swoop in and get him some help.
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@ItsBridgetsWord · 690 weeks ago
pugariffic 41p · 690 weeks ago
Here's what i know-
I suffer from depression. It started after i had my daughter. On most day's, I can keep my depression in check. (with the help of medication) When shit blows up, I can't cope. The depression kicks in. It's not that i FELL into a depression (not saying that it can't happen, its just never happened to ME personally) there's always a TRIGGER to my depression.
What I figured out with Tommy-
He was fine at home 80% of the time. the other 20% was when things out of my control would happen such as electricity going out or cable not working. School was the trigger. It's not that i didnt KNOW it. I just KNEW in my mind that i'd MAKE him like school. He hated everyone there. He'd purposely break every rule. Take down the computer network system. He would tell everyone that he was going to Blow the school up. Constantly threatened the teachers.. it became a joke.
What i'm saying is.. don't ignore it. Going INTO puberty already in a depressive state, is NOT pretty. I'm not sure how conversant he is, or what comprehension he has.. i'd pursue it. If he's shutting down to you, then go around him. Talk to the teacher(s), whatever personnel is with him. Is he being bullied? Is something bothering him or hurting him and he doesn't know how, or may be afraid/embarrassed to say something? (Tommy would pop wood everywhere... and would want to show the world. My friends son was the opposite. He'd become so embarrassed he'd shut down, lock himself into rooms.. and eventually began hurting himself to make it go away)
Just think.. you could have Tommy!!! :D When we push too hard we get "shut the fuck up and get out of my room you fucking bitch!!!"
That's always nice :)
jillsmo 103p · 690 weeks ago
We have an IEP in a month and I'll bring it up again, but we just had an emergency IEP to talk about the bullying issue (did you read this? http://yeahgoodtimes.blogspot.com/2011/10/helples... and plans were made and such, but I honestly just think that he hates school, doesn't like to be told what to do (much like his mother) and at school he'll just fake his way through, enough so that people will leave him alone. Then at home the whole facade crumbles. His teacher actually told me that was a good thing, because that's what "typical" kids do, too.
pugariffic 41p · 690 weeks ago
Well.. maybe she's right? I'm having a really tough time with Tommy not wanting to spend time with him. I make him. I schedule it in to our days. Right now he's bouncing around playing ps3 clueless not realizing that i have his mic muted so ppl don't make fun of him).
Maybe he's just pulling away from you. When my husband said that to me I wanted to kick him right in the sack. HE WOULD NEVER DO THAT!!!! Then one day my DAUGHTER said to me *snarl*
"you know mom.. maybe Tommy just want's to be alone in his room. You guys let ME go upstairs and hang out in my room all day why can't tommy?"
Well because YOU'RE up there on line with PEOPLE, or texting with PEOPLE.. he's up there watching one Weather radar channel that does nothing but show you the same dobbler radar all day with the same repetive music playing in the background for hours.
The little brainchild responds with "well, thats because that's what I want to do.. and maybe this is what TOMMY wants to do".
This is a tough one. And a really TOUGH age. You can't quite BLAME it on puberty.. but you want to blame it on something.
My recent post Sweet Mall Victory
pugariffic 41p · 690 weeks ago
I worry a TON!!!! about Tommy. I dont want him to live in seclusion. He'd be so happy if I'd let him. (my hub is the same way.. genetic trait? ha!) I get you're worried that he's not happy. But, are you HAPPY 24/7? Maybe he's just really pissed off that school had to start back up. I would be! School always sucked for me too. But I did what I needed to and got the hell out of there. (((hugs)))
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jillsmo 103p · 690 weeks ago
I get that he's still an almost 10 year old boy and he's going to do 10 year old boy things... I just don't know what those ARE. All I have is his 6 year old brother to compare him to. Do 10 year old boys tell their mothers to go away and want to be alone all the time?
pugariffic 41p · 690 weeks ago
I wish I had more answers for you. But I don't :( Just like every autistic child is different, so is every child in general. I can tell you that Tommy.. requires a lot of space. He likes to do his fun stimmy stuff. Most of the time, he wants to do it alone. Sometimes, he'll LET us join in .. but for the most part.. not. I require hugs and kisses.. because I'm mom.. and i can't live without them. I require him to acknowledge his sister. As parents.. we're rarely 50-50 in his mind. He usually likes one of us WAY MORE BETTER than the other lol Usually I'm the preferred one. For the past couple months, i've been chopped liver. Dad gets tons of unprompted hugs. I get zillions of "where's dad? what time is dad home?" and an hour later.. repeat.
I blame autism all the time. I have to. I need to blame something. I've blamed an ikea footstool and threw it threw a wall. That didn't help. Just made more work for me. Ripped my closet system apart in a raging fit because I hate autism so much. That didn't help either. Just again, made more work for me (and had to figure out how to explain MY actions to my kids).
I live in a different world than much of you. I never wanted Tommy mainstreamed what so ever. So the battles that a lot of you face with your children in public school... i can't relate to. I just hope with all my might that you have the supports you need in public school.
You can really drive yourself crazy trying to figure things out. I HAVE to understand everything Tommy does. I analyze every single behavior coming from him. It's really not healthy. I'm learning this now. (yay for Dr. Ruth!) I'm missing out on life. On the good stuff. On my daughter. On my husband... because I'm hoovering over Tommy constantly. I hope you don't get to that place. It's a hard place to crawl out of.
Sorry I rambled. Hopefully.. something helped.
My recent post Sweet Mall Victory
jillsmo 103p · 690 weeks ago
And exactly. Child 1 is up there watching youtube videos of BART trains again and again.
And I can blame it on something... I can blame autism, DAMMIT! :(
aneighbours 8p · 690 weeks ago
I agree...it's about raising them to be farther from you, yet I don't think there is a single time that we want them out of reach of our heart. Often my oldest is in that place. I just can't touch her.
AutismWonderland · 690 weeks ago
My son is going to be 6 in a few weeks, much of his speech is scripted so I never know what he's really thinking. But there are times when he says "I'm scared." - usually about school and I have no way of knowing why. I wish I had the answer for you but I don't.
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Lynn · 690 weeks ago
My recent post A Very Special Winter Break
Mayor Gia · 690 weeks ago
the haiku is adorable, though.
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Lizbeth · 690 weeks ago
I give him a squeeze (or whatever) and here's the hard part---I try to give him some space. I have found I get through talking to him but I've not yet mastered the walking away part.
I usually just keep going over verbalizing things that I know he can't---hallways too noisy, getting bumped at lunch, not enough time to calm down, too much cold water in the bathroom, etc. and it tends to calm him down knowing that SOMEONE out there gets a little bit of what he's going through.
I hope that helps. Hugs.
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thissideoftypical 57p · 690 weeks ago
even though it kills you now.
you're an awesome mom.
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Andrea · 690 weeks ago
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thoughtyautie 29p · 690 weeks ago
You could always try to simplify the process of sharing what is bothering him. An example from my own experience that might help illustrate:
When I first met with people from the autism support program at my school, they asked me what kinds of things I would like help with. I had no idea what to tell them. If there was a list of things (spoken or written), it would have been much easier, because I could have just checked boxes or answered yes or no, and the options they gave me might have helped me think of other things. Doing something similar with Child 1 might make it easier for him to convey information, if he wants to.
I really like what Lizbeth said above. If he clearly doesn't want to talk about it, regardless of whether he is actually able to or not, then I would just do what you can to support him and put him at ease, while at the same time letting him know that you are simply there for him. Do you think he might enjoy a mother-son picnic at a BART station?
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jillsmo 103p · 690 weeks ago
He would definitely prefer a father-son picnic at a BART station, and they're going to do just that this weekend, although at this point, even though I'm sick to DEATH of riding BART, I would totally go with him :(
Laura@Catharsis · 690 weeks ago
Jen · 690 weeks ago
The only thing I can think of, instead of trying to ask him what's wrong, and get that out of him (I know I hated school when I was 10, and I'm technically "cognitively normal"), ask him what different he would like to do. On a weekend or something. I don't know if this would do anything, because Routine might be sacred, but it's something positive that he might want to talk about at length, or do, instead of something that might be causing anxiety that he can't really express.
confessionsfromhh6 43p · 690 weeks ago
blogginglily 73p · 690 weeks ago
And I loved my parents dearly, but they always wanted me to do STUFF with them. . . go fishing, have fun. . . you know. . . stupid stuff that detracted from my computer games and book reading and basketball or whatever.
I'm the same kind of person with regard to needing to know. I have to understand what's wrong. "Just tell me what's wrong!" If my wife says, "Remind me, I have to talk to you about Emma." I'll say, "About what?" and she's always, "We'll talk later." and then it eats at me RELENTLESSLY all day long until I find out and I keep hounding her for at least a brief summary of what it is, so I know it isn't some horrible horrible thing. . . and it'll turn out to be something moronic like, "we need to think about summer camp." and I'll be like, "I worried all damn day for THIS?" But I digress. At least with my wife she'll TELL me. So I know it's gotta suck that he's bottling it all up.
And I don't want to make you feel worried or anything, but when I was in 6th grade, I ran afoul of the most popular kid in school, who had hitherto been my friend, and for a solid year he made my life hell. And I didn't tell my parents about it for months and month. . . maybe 10 months. They didn't understand why I suddenly didn't want to go do things that I used to love. . . and it was because I knew he and his new friends would be there to make my life hell.
My point in even bringing that up is. . . just stay in the loop. With your aforementioned personality trait of needing to know, I doubt that advice is really necessary. And it's probably just him trying to "be free", but stay in the loop.
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Suniverse · 690 weeks ago
I'm seriously considering becoming the overbearing, nosy mother I could be. Join me?
veryverybusymom 26p · 690 weeks ago
So sorry you're dealing with this. My 15-year old daughter is not autistic, but it sounds like you were describing her in your post. I hope he finds his happy place over the weekend & it last through the next week of school.
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