Disclaimer #2: Please feel free to disagree with me, by the way. We're all entitled to our opinions and I have NO problem with you telling me yours.
Today is the first day of Autism Awareness Month. Tomorrow is World Autism Awareness Day. You're supposed to do stuff like make your Facebook profile picture blue, or put a little twibbon in your Twitter avatar, wear a blue shirt or get blue light bulbs for your house (that one is actually pretty cool. Hubs, can we get blue light bulbs for our house???)
I'm not going to do any of those things. (But I totally support those of you who are, by the way; hence the asshole apology above).
If you're reading this blog, following me on Twitter or one of my Facebook friends, chances are good you're already pretty aware of autism; I'm not really sure that adding a twibbon is going to change any of that. I understand the purpose of the month, though: to get people talking about autism and therefore raise awareness! (oh, and also so that Autism Speaks can have a great fundraising month). I'm sorry but I'm just not a believer in Slacktivism. I don't see the point in having a blue Twitter avatar. It already says right there in my profile that I have a kid with autism, shouldn't that make you kind of aware right there? If you weren't aware of autism, and you saw me walking down the street, would my blue t-shirt suddenly make you aware?
And why the color blue? Is that because it's the color of Autism Speaks' logo? Yes, I think that's why, since they're the folks behind this, aren't they? I have nothing against them, myself, but I know some autistic adults who say "Autism Speaks doesn't speak for me." Are we excluding these autistic adults from the whole "awareness" scenario as a result of our blue Facebook profile pictures? I don't like that kind of "awareness."
Thursday afternoon I was at school picking up the kids and a staff member stopped me. They're worried about her granddaughter and she had a bunch of questions for me. I stopped and talked to her until the bell rang when I had to go. This kind of thing happens to me all the time; people stop me, or they call me, or they email me, etc. I always take the time to talk to them, to tell them about my experiences and what I know, and I always try to follow up with them.
This is how I raise awareness about autism, and I do it every day; not just one day or one month out of the year. I'm going to do it next week and I'm going to do it in May, when Autism Awareness month has ended. And my Facebook profile picture is staying as is.
EDIT: So, after all my posturing, both Child 1 and I ended up wearing blue shirts today. Does it still count as awareness if you do it accidentally?
hastaclaridad 14p · 730 weeks ago
@mommyof2changas · 730 weeks ago
jentroester 36p · 730 weeks ago
My recent post A Month of Awareness Ill take a year
Big Daddy · 730 weeks ago
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Calormom · 730 weeks ago
@dog4deeds · 730 weeks ago
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Tessa · 730 weeks ago
sharon · 730 weeks ago
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lhand0124 49p · 730 weeks ago
Now THAT'S bein' an asshole!
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Cheryl D. · 730 weeks ago
Hehe! I'm kidding! I feel the same way you do. I have no problem with all the autism awareness activities. I feel I do my part as it is though! I'm not going out of my way to do anything. On the other hand, however, tomorrow happens to be April Fool's day!
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Amy · 730 weeks ago
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Sunshine · 730 weeks ago
I really kinda support ACTUAL awareness during this month... I don't think I spend a lot of time being super vocal about Autism with those who don't already understand ASD on a personal level. I also personally find, in this particular case, vague symbolism to be more effective than other, um, "ribbon causes." I mean, let's face it, I mean no disrespect to those affected by HIV or Breast Cancer, but Mission Accomplished, Awareness Raised. That's not really the case with autism. People for the most part genuinely have no idea what it really is, and might actually have their curiosity piqued when they see about 20 blue lights driving on their way home tomorrow to go google what it's all about, IMHO.
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Christy · 730 weeks ago
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Meredith · 730 weeks ago
Kelli @ No. 7 · 730 weeks ago
Kelly · 730 weeks ago
Personally I am forcefully using this month to try to get througgh to my family. We have had the boys officially for two years now and no one in my family has even read a Temple Grandin book. Trying to explain to them the difference between functional IQ and echolalia, that "high functioning" doesn't mean they are brilliant in the typical way, no - they don't have a "rainman" talent, etc are all things that I have worked on with my family. This month, I am really going to be actively "ministering" and preaching the Gospel of Autism to my family. This month just gives me the excuse I need to keep putting these things in font of them.
But, yeah, I am so fucking aware of autism...puhlease!
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Michel · 730 weeks ago
Happy Elf Mom · 730 weeks ago
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dawn 58p · 730 weeks ago
You know, that Autism awareness thing ain't for us. its for all the normies that need something to "feel" about. I'm taking some time this month to focus my blog a little bit, but that's all. And if i don a blue shirt, it's because the black one is in the wash. ANd i think we're getting a blue light for the porch--but only because it will go with the green one and red one elsewhere around the house. And Lord knows i WON'T change it back May 1.
keep on fighting the good fight sista.
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nuttydingo 56p · 730 weeks ago
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nuttydingo 56p · 730 weeks ago
You're still my BFF....
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Princess Muffintop · 730 weeks ago
AMo
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Grace · 730 weeks ago
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Gini · 730 weeks ago
You're not an asshole. Well, you are, but you're the kind of asshole people like because you're an asshole for the right reasons (and I'm really just seeing how many times I can use the word asshole). How is Light It Up Blue any different from posting what color bra you're wearing to support breast cancer? Or, telling people where you like to put your purse when you come home (still don't get that one). Instead, take the time to talk to that mom who is tired and frustrated and scared. Don't automatically judge the family with the child throwing a tantrum in the middle of Target.
A blue Facebook page is just a blue Facebook page.
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Rachel · 730 weeks ago
Beside, what happens on May 1st? Do people magically become unaware again? I mean, more so than usual??
To be fair, I don't like any of the "awareness" months. I think we should be aware of the existence of other people all the time. But that's just me. :-)
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@pugariffic73 · 730 weeks ago
I sound angry huh? Well, im not angry.. just bitchy lol
Amanda Broadfoot · 730 weeks ago
As you may or may not know, I raged against Autism Awareness Month last year. And I still agree with most of the things you complain about: I'm not changing my profile picture. I AM getting a blue light bulb, but I have a cute outfit that isn't blue planned for the Spring Festival tomorrow. And I'm not sure how much a blue Eiffel Tower is going to do for Billy.
That being said, I live in Florida where a lunatic Governor wants to slash funding for our kids and adults with developmental disabilities. Our state does not require all insurance to cover autism therapy. And there are still a bunch of people I run into that think all autistic people are brain-dead mutes -- many of them very well-meaning, just ignorant.
For that reason, I've gotten on board with Autism Awareness Month this year -- in my own way. I've helped bring a pro-neurodiversity film, "Loving Lampposts," to our area. One of the great things about this film is it introduced viewers to happy, successful autistic adults. I'm sponsoring an art contest at Billy's school, because I wanted to start the conversation about autism with his peers before he gets to the age where bullying (outside Disney World) is a real problem :-)
I'm helping organize a talk about developmental delays at our local MOPS group, and I'm joining a walk to the Capitol to protest budget cuts and introduce legislators to MY autistic child and let them explain to his face why they want to cut his services. (Of course, if they do, he'll probably respond with a few verses of "Ding Dong the Witch is Dead" or the entire script of the Veggie Tales Easter Special, but that'll probably be all we need to make our point :-)
Anyway, just want to say that all autism awareness isn't created equally. But like Big Daddy said, the real awareness happens May 1 ... and the rest of the year.
Love ya! Merry Autism Awareness Month!!!
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Lizbeth · 730 weeks ago
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solodialogue 73p · 730 weeks ago
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tulpenelefanten 28p · 730 weeks ago
Is more awareness going to change my child's life? Make it any easier? Prevent another child being born with that particular challenge? Not bloody likely.
By the way.
Yesterday was Congenital Diaphragmatic Hernia Awareness Day. You totally knew that right?
Yeah.
And it was my fucking Congenital Diaphragmatic Hernia survivor's fucking birthday too.
YEAH!!!!
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Jessica 96p · 730 weeks ago
Love you and your blue shirt, even if you didn't mean it.
SquashedMom 74p · 730 weeks ago
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Amanda · 730 weeks ago
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akazookeeper 60p · 730 weeks ago
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Sandra · 730 weeks ago
As for the blue tshirts, be sure to tell all it was purely coincidental.
Love how you brought humour into this post.
This was really a great read.
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Yummommylicious · 730 weeks ago
sockmommy 19p · 729 weeks ago
I don't really give a fig about Autism Speaks, so I'm not defending them by all means. With that said, I believe they picked blue because of the 4x more boys than girls thing. At least that's what the news said.