So, there's that age-old question that gets tossed around a lot: "If there was a pill that would take away your child's autism, would you give to to him?" The politically correct answer, and one that I hear most of the time, is no. Because my child is a unique snowflake and I would never want to change who he is; autism is a part of him and I wouldn't want him to be a different person.
See, I have a different take on that. My son is sweet and mellow and kind and scary smart and beautiful and happy... and he would still be all of things without the autism. In my opinion, not having autism would not change any of his wonderful qualities, it would not change who he is: he would still be the same person, just without the burdens that autism brings.
Now, it's important to mention that I am very much aware at how I have been changed as a result of autism. It's brought out my Mother Warrior; my "I am his fiercest advocate" side. It's allowed me to appreciate, so much more than I would have, all the NT-like things that both of my kids do (that are actually quite annoying).
The endless string of questions: I remember the day when I longed just to hear "Mama"; I can tolerate these questions that seem to never end.
When they sit on me until my legs and arms fall asleep: I remember the day when I wished he would just give me a hug without squirming to get away; I can deal with numb arms a little while longer.
How they insist on doing things for themselves, but not up to my "standards": I remember when I thought I would always have to get him dressed; he can go to school with his shirt on inside out.
And there are more, of course, but the truth is that it isn't about me. This question isn't about how I have been changed, and how much my life has, dare I say, benefited from having a child with autism. I may say that I wouldn't want to change anything about who he is because things are perfect just as they are, because they're not perfect for him. So, it's not about how much I've learned to appreciate these qualities in myself... it's about him.
So, yes. If there was a pill that would allow him to walk into the kitchen when there was already food on the table and not make him gag and have to run out of the room... I would give it to him.
And if there was a pill that would help him be able to navigate simple social situations without anxiety and without the ridicule and torment that I know he will face some day... I would give it to him.
And if there was a pill that would take away the unexplained and extreme anxiety about the fact that the light in his brother's room is on a dimmer switch... I would give it to him.
And if there was a pill that could help him take the thoughts that he has inside his head and form them into words, without having to struggle, and without frustration and with enough clarity that other people understood what he was saying... I would give it to him.
And after the pill, he would still be sweet and mellow and kind and scary smart and beautiful and happy... and he would also be free. Free of these things that burden him; free to be who he is.
So yes... I would do that for him. If I could.
D.J. Kirkby · 729 weeks ago
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SquashedMom 74p · 729 weeks ago
At least I hope they would. Because otherwise? Its cruelty. Because it causes Jake PAIN and TORMENT that he can't tell me what he is thinking, or understand what I am telling at crucial times. And yes, yes I would take that away if I could, not a moment's hesitation, thank you.
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Meredith · 729 weeks ago
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Heather · 729 weeks ago
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Happy Elf Mom · 729 weeks ago
Actually I don't want to take the autism away so much as give the kids the ability to speak, use the potty and all that. Because personality-wise I'm ok with all my children as they are regardless of whether some of those personality markers are influenced by autism...
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Ken Lilly · 729 weeks ago
If you say no to that question, most likely? Not being honest with oneself. :)
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tulpen · 729 weeks ago
But apples and oranges. That has nothing to do with Autism. My answer would likely be the same as yours.
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flyingqueenb 38p · 729 weeks ago
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Kara · 729 weeks ago
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Brandon.in.Idaho · 729 weeks ago
Much love, much support, and 7 kudos to you.
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Kelly · 729 weeks ago
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autismandoughtisms 31p · 729 weeks ago
I'm really appreciating the posts and comments on your blog lately. Not because I agree with all of what is said (though that is largely the case), but because it needs to be said and understood, and not just swept under the carpet because some people with easier lives might be "offended".
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Lillian · 729 weeks ago
Hm.... very tough decision. I'm not sure :) .
Lillian
Emily · 729 weeks ago
Me, I am... not on the autism spectrum in the least, but that doesn't make me any less bipolar or with chemical imbalances and a blitz of meds. That said: Honestly, if *I* could take a pill and make me less unique very special snowflake and more... earner of money and doer of dishes... I would too. It's similar to the post about Autism Culture or Autie Pride etc that you posted below. My question to your readers (Tulpen?) with deaf kids is how they feel about Deaf culture vs. mainstreaming those kids and whether they think it's analogous. It is Tulpen, right? With Owen? Anyway, that one. Take it away, cousin and friends!
LOVE
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Christy · 729 weeks ago
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Janine · 729 weeks ago
My oldest son....no, he has grown to accept his quirkiness, loves his abilities as he is extremely intelligent and is happy just the way he is.
My youngest son, no.....or maybe a little tiny bit, just to get him up to speed with school work.
I'm ADHD, and I wouldnt give it up for the world....it gives me energy, and as long as I use tools to help me cope I manage really well.
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Susan · 729 weeks ago
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Rachel · 729 weeks ago
I would like to give other people a pill to make them shell out lots of money to people who need support services, however. I wonder why no one has done any research on this question.... :-)
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Tina · 729 weeks ago
I heart you.
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Yuji · 726 weeks ago
Beautifully, beautifully written! And, very thought provoking.
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Zoe · 725 weeks ago
Also, a lot of people are saying they would eliminate autism to get rid of the bullying and discrimination that autistic people face. To me, that's like saying that we should fix anti-gay bullying by making sure no one is ever gay. The solution to discrimination isn't making everyone the same -- it's teaching people in the majority to be kind and inclusive.
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trollhare 1p · 725 weeks ago
And, uhm... There's one thing I just have to comment:
"the unexplained and extreme anxiety about the fact that the light in his brother's room is on a dimmer switch"
I always thought everyone was aware of that horrible sound dimmer switches make when they're turned on, and not set on max. To me, it's totally understandable to panic on that noise. But the solution I've made for myself is to simply avoid using the dimmer function (either off or on max). I'm sure that is a lot easier than to invent a pill taking away my personality and altering my brain structure.
Dixie Redmond · 725 weeks ago
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Zoe · 725 weeks ago
http://www.autreat.com/dont_mourn.html
"when parents say, 'I wish my child did not have autism,' what they're really saying is, 'I wish the autistic child I have did not exist, and I had a different (non-autistic) child instead.'
Read that again. This is what we hear when you mourn over our existence. This is what we hear when you pray for a cure. This is what we know, when you tell us of your fondest hopes and dreams for us: that your greatest wish is that one day we will cease to be, and strangers you can love will move in behind our faces."
Dana K · 725 weeks ago
I have had major depressive disorder my whole life. The lifelong struggle I have had has made me who I am. If a pill had been available (that worked - they weren't passing out kiddie-prozac to poor kids several decades ago), I would hope my mom would have given it to me. I would love to have had a childhood that wasn't clouded by depression I neither asked for nor understood. I would love to not have every memory tainted by a brain that doesn't function quite properly.
I'm not saying that depression & autism are the same thing but I am saying that as an adult, an adult who is successfully taking an SSRI and functioning like a (mostly) normal thirty-something year old woman, I would give anything to have been happy as a child. Hell, if there was a pill that would cure my son's genetic disorder, I'd give it to him.
Please note that saying "if" something existed is not the same thing as saying "I wish" something existed.
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Jen · 725 weeks ago
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