xmlns:og='http://ogp.me/ns#' Yeah. Good Times.: Yes. I would.

Saturday, April 9, 2011

Yes. I would.

EDIT:  Here's an update for all my new readers


So, there's that age-old question that gets tossed around a lot: "If there was a pill that would take away your child's autism, would you give to to him?" The politically correct answer, and one that I hear most of the time, is no. Because my child is a unique snowflake and I would never want to change who he is; autism is a part of him and I wouldn't want him to be a different person.

See, I have a different take on that. My son is sweet and mellow and kind and scary smart and beautiful and happy... and he would still be all of things without the autism. In my opinion, not having autism would not change any of his wonderful qualities, it would not change who he is: he would still be the same person, just without the burdens that autism brings.

Now, it's important to mention that I am very much aware at how I have been changed as a result of autism. It's brought out my Mother Warrior; my "I am his fiercest advocate" side. It's allowed me to appreciate, so much more than I would have, all the NT-like things that both of my kids do (that are actually quite annoying).

The endless string of questions: I remember the day when I longed just to hear "Mama"; I can tolerate these questions that seem to never end.

When they sit on me until my legs and arms fall asleep: I remember the day when I wished he would just give me a hug without squirming to get away; I can deal with numb arms a little while longer.

How they insist on doing things for themselves, but not up to my "standards": I remember when I thought I would always have to get him dressed; he can go to school with his shirt on inside out.

And there are more, of course, but the truth is that it isn't about me. This question isn't about how I have been changed, and how much my life has, dare I say, benefited from having a child with autism. I may say that I wouldn't want to change anything about who he is because things are perfect just as they are, because they're not perfect for him. So, it's not about how much I've learned to appreciate these qualities in myself... it's about him.

So, yes. If there was a pill that would allow him to walk into the kitchen when there was already food on the table and not make him gag and have to run out of the room... I would give it to him.

And if there was a pill that would help him be able to navigate simple social situations without anxiety and without the ridicule and torment that I know he will face some day... I would give it to him.

And if there was a pill that would take away the unexplained and extreme anxiety about the fact that the light in his brother's room is on a dimmer switch... I would give it to him.

And if there was a pill that could help him take the thoughts that he has inside his head and form them into words, without having to struggle, and without frustration and with enough clarity that other people understood what he was saying... I would give it to him.

And after the pill, he would still be sweet and mellow and kind and scary smart and beautiful and happy... and he would also be free. Free of these things that burden him; free to be who he is.

So yes... I would do that for him. If I could.



Comments (71)

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I like your perspective on 'the pill' .
My recent post Cakey Friday
Bravo!
I love my daughter's quirkiness--I really do! But I would like an easier life for her too, that for sure! I'd like a life filled with friends. Where controlling her emotions would be easier and that she wouldn't get bent out of shape over every little thing! I wouldn't lie. I'd give her the pill too! Excellent post!
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1 reply · active less than 1 minute ago
I struggle with this one. I dont know if I would or not. It's impossible for me to know what I risk losing if he takes the pill. Of course I say this from the fortunate perspective of parent with a 'high' functioning' 2 year old whose quirks are endlessly endearing. And he is seemingly happy. I may feel very different this time next year.
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Yeah. Love my boy the way he is but wouldn't mind getting rid of the anxiety he feels about such seemingly trivial things. Also, it may be a bit selfish, but I could do without the maniacal laughing and repetetive questions. He is so happy and brings so much to everyone he comes in contact with. I wouldn't want to change that.

My recent post How Was It
I am with you 100%., no, maybe 1000 %. I think that those that say "no" either are or have kids who do not have tremendous language difficulties, who fall into the "very high functioning but quirky" end of the spectrum. Because if they could stand beside me, could see Jacob trying and trying and trying and trying and trying and trying and FAILING to find the words to tell me the many important thoughts in his head that just die unexpressed because he just doesn't have the language to communicate with, because his processing is both slow and wonky? They would understand.

At least I hope they would. Because otherwise? Its cruelty. Because it causes Jake PAIN and TORMENT that he can't tell me what he is thinking, or understand what I am telling at crucial times. And yes, yes I would take that away if I could, not a moment's hesitation, thank you.
My recent post SNSS- When Its More Than Sibling Rivalry
I don't know how much autism contributes to all my son's wonderful attributes. I would be frightened that his essence would be changed. I would always respect his right to take this pill, if HE chose to. I only can have this opinion with my set of circumstances, I couldn't presume to understand anyone else's experience. IF I could give everyone else a pill, that took away judgement, exclusion, and ignorance.....I would be handing those suckers out like M&Ms baby!
My recent post Gah!
If this magical pill would take away the PMS-like moodiness, anxiety, and give my boy the ability to sleep past 6am, I'm totally on board! Although I've barely slept in over 4 years, so... Oh yeah, and if this pill would make my 9yo magically understand his lower functioning 4yo brother, or put them both on the same plane - yep, still on board. I can't keep up with the list (that always changes and no one informs me) of things that cause a melt down. If this pill changes that too, still on board for giving it to my kids.
My recent post Back to Our Regular Programming
hells yeah i'd give my son a pill to take away autism- I actually talked about that on the first of April (though I used the magic wand analogy lol). I also think the "No Pill" camp is generally children who are much higher functioning than my own- my son can't have a conversation with anyone- who would want to live that way for their entire life? W I would give him that pill without a moment of hesitation..
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Having four autistic children (and a fifth who says it would RUIN HIS LIFE if he got diagnosed, but we all knowww), I can tell you two children would get half a pill and others none. Probably the immunization against autism, when they come up with one, will have thimerosol in it.

Actually I don't want to take the autism away so much as give the kids the ability to speak, use the potty and all that. Because personality-wise I'm ok with all my children as they are regardless of whether some of those personality markers are influenced by autism...
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Awesome post. Interestingly, it was expected that my daughter, post-stroke, would be 'different". Not so. She is still the very same person, with all kinds of awful crap added to her life.
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1 reply · active 729 weeks ago
Yes I would. I want to know what it's like to go about my day and not worry about the huge meltdown awaiting me because of the change in the weather or any other thing that would be normal to others. I would like a day in the week where I am not worried about which therapist is showing up at the house that day.
My recent post Well it was a nice plan
I would give him a pill to take away all the angst that comes with autism that we see--but I want my little boy intact. Can they do that? Otherwise I'll pass. Now if they make one to keep me from turning into a moody bitch once a month I'l take it!!!
My recent post Hes laughing at me See!
I consider there to be nothing wrong with that answer either, political correctness be damned. Hell, if there was a pill for ME that could take away certain things about my own life, that could make certain adjustments to my own psychology and physiology, I'd want to have an option for it as well. I consider it human nature to want that.

If you say no to that question, most likely? Not being honest with oneself. :)
My recent post I Got Yer Piece of the Action Right Here- Bub
I've answered this question in regards to my son's Deafness and my answer is a quick and sure NO. It would seriously mess him up.

But apples and oranges. That has nothing to do with Autism. My answer would likely be the same as yours.
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I love you. As in respect immensely and am humbled by your friendship, love you. LOVE YOU.
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1 reply · active 729 weeks ago
YES! Particularly if it came in the form of a Flintstone chewable. While this pill is hypothetical, some pills to help symptoms that nearly incapacitate one's enjoyment in this life, are not. And when the time comes for us, and it's sooner than we think, I will say yes to those too.
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Brandon.in.Idaho's avatar

Brandon.in.Idaho · 729 weeks ago

It takes a lot of courage to go against the stream like that. And I wouldn't call this controversy week. This is a subject that is near and dear to your heart. What's so controversial about that? It's your blog, and you can write about anything you like.

Much love, much support, and 7 kudos to you.
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I would give the pill, too. In a heartbeat. Because my son struggles so much with social issues, and I fear he will grow up to be very lonely. More than he is now. He is not happy, and I just want him to be happy. And he is growing increasingly aggressive during his meltdowns. I didn't comment on Kelli's post yesterday because I just didn't know what to say. But a part of me is very afraid that I may be walking in her shoes in the not-too-distant future. Yeah. I would give the pill.
Yupper. I am Team Drugs. My kid's anxiety is debilitating, his lack of "functionable" intelligence and communication skills are making me rethink that whole "high functioning" label. Hell, we have already tried a number of anti-psychotics on him to control his aggression, irritability and imoulsivity. You bet your sweet bippy I would give him that pill. And follow it with champagne for me and The Hubs!
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1 reply · active 729 weeks ago
I'd give my son the pill, but I would fully understand if others didn't. The spectrum is so diverse in the severity of how it affects individual's abilities and quality of life, that I think anyone flat out saying "the pill should never be available" (or "everyone autistic person should take such a pill") needs to take a step outside of their own autism-experience bubble.

I'm really appreciating the posts and comments on your blog lately. Not because I agree with all of what is said (though that is largely the case), but because it needs to be said and understood, and not just swept under the carpet because some people with easier lives might be "offended".
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You mean would I give my son a hypothetical pill that would make his life easier, his thinking more clear and increase his chances to experience life at its fullest and lead an independent and productive life ?
Hm.... very tough decision. I'm not sure :) .

Lillian
Hey, longtime cousin, first time questioner. I posted on Jill's FB but she told me to bring it over here.

Me, I am... not on the autism spectrum in the least, but that doesn't make me any less bipolar or with chemical imbalances and a blitz of meds. That said: Honestly, if *I* could take a pill and make me less unique very special snowflake and more... earner of money and doer of dishes... I would too. It's similar to the post about Autism Culture or Autie Pride etc that you posted below. My question to your readers (Tulpen?) with deaf kids is how they feel about Deaf culture vs. mainstreaming those kids and whether they think it's analogous. It is Tulpen, right? With Owen? Anyway, that one. Take it away, cousin and friends!

LOVE
Cousin Emily (@Sab on Twitter)
Me too, for all the reasons you said. Let me know when you find said pill.
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I would give the pill to my daughter Stef.....Id love for her to be able to talk, to have friends etc. She is very autistic and unfortunately it doesnt allow her beautiful personality to shine through.
My oldest son....no, he has grown to accept his quirkiness, loves his abilities as he is extremely intelligent and is happy just the way he is.
My youngest son, no.....or maybe a little tiny bit, just to get him up to speed with school work.
I'm ADHD, and I wouldnt give it up for the world....it gives me energy, and as long as I use tools to help me cope I manage really well.
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Love your honesty and openness. Seriously, YOU are awesome.
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1 reply · active less than 1 minute ago
I am autistic, and I would not take such a pill, because many of my gifts and best traits derive from my autism and I wouldn't want to change any of those. It's an essential part of my life experience and outlook, and I wouldn't be the same person without it. I've had 52 years to get to know and love myself, and I'm used to things as they are.

I would like to give other people a pill to make them shell out lots of money to people who need support services, however. I wonder why no one has done any research on this question.... :-)
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Just because you love your children just the way they are doesn't mean that you don't want them to reach the fullest potential that they can reach. You wouldn't deny a diabetic their insulin. So if there was a pill that would help, I can't see why someone wouldn't at least consider it for their children.

I heart you.
My recent post Happiness
This is a beautiful post. I agree with you that if there was that pill, I'd take it for my son to remove the autism. Autism is what stops his brain from receiving the correct message. It is a neurological disorder - not a part of his personality. I have posted about this too and wondering if it would change him. If it connected those synapses that are misfiring and let him know where his body was in space, let him communicate with me... remove all the impediments - then he'd still be just like you said "Free of these things that burden him; free to be who he is." - I love that!
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I would too. No question, for all the not selfish reasons as the selfish ones too.
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Katherine's avatar

Katherine · 728 weeks ago

I would give my kiddo the pill in a heart beat because I also believe my kid is a beautiful unique snowflake who has autism that makes him have to manage fears and anxieties and stress and sensory difficulties, and struggles daily with social interactions and understanding the world. He would still be the same unique and beautiful snowflake without all that crap.
I'm in. Bring on the pills.
My recent post Nothing Gold Can Stay
You just summed up all the things I would take away from and give back to my son. Nobody would lament the loss of that bloody anxiety, would they.
When I read the question "If there was a pill.......would you give it to your kid" I was all "Well duh! Of course!" Isn't that what America is all about? Can't sleep? Ambien. Can't smile? Prozac! Can't keep blood sugar right? Insulin! High Blood Pressure? There's a pill for that...........Not to make light or fun of the situation, you have a great post here..............I just think that if there was a pill for ANYTHING that ails myself, my kids, or someone I love.........I'd fight tooth and nail to get it, if it promised a better future.
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I totally get where you are coming from and my first response is to agree with you completely. Who wouldn't want to take away their child's anxiety, the difficulty in communication, the socialization challenges? But, sometimes I wonder what my son would be like without his autism. Does it play a part in why he is, in some ways, "scary smart" like your child? Is that the reason why he has all of these quirky interests that add to his sweetness? Sure, as long as we are talking hypothetically, I'd like to take away all the bad things. But, the reality is that I'd be at least a little hesitant to make that call without knowing for sure how much he'd change.

Beautifully, beautifully written! And, very thought provoking.
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Totally Agree! I have two kids with ASD and I would give them 5,000 pills (it would take that many to get ONE in their mouths, the rest would surely be spit back at me) to rid them of autism...
It very much surprises me the way people are talking about this. You can't "get rid of autism" without getting rid of the autistic person, because autism is inherent in the brain -- it's part of who that person is. I'm sure this post will be met with a dismissive attitude, but I am autistic and I would never want to stop being me and start being a different person, even if that meant that things that are hard for me would get easier.

Also, a lot of people are saying they would eliminate autism to get rid of the bullying and discrimination that autistic people face. To me, that's like saying that we should fix anti-gay bullying by making sure no one is ever gay. The solution to discrimination isn't making everyone the same -- it's teaching people in the majority to be kind and inclusive.
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2 replies · active less than 1 minute ago
I agree with Zoe.

And, uhm... There's one thing I just have to comment:

"the unexplained and extreme anxiety about the fact that the light in his brother's room is on a dimmer switch"

I always thought everyone was aware of that horrible sound dimmer switches make when they're turned on, and not set on max. To me, it's totally understandable to panic on that noise. But the solution I've made for myself is to simply avoid using the dimmer function (either off or on max). I'm sure that is a lot easier than to invent a pill taking away my personality and altering my brain structure.
1 reply · active 725 weeks ago
I love reading this. I love the honesty. Yay you! My child is 18 and I would love to see him not struggle the way he does in many ways. So yeah. I like the way you framed this. I sometimes dream about what my son would be like without some of the obsessions and challenges that get in his way. And how it would be great for my younger son to have a brother that is an older brother and not like a younger brother.

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I pretty much think your logic is flawed, Jillsmo. <a rhef="http://poopingredguy.blogspot.com/2011/05/give-boy-pill.html"> And here is why.
My recent post Give a boy a pill
1 reply · active 725 weeks ago
And apparently my ability to put a link in a comment is flawed as well.
My recent post Give a boy a pill
THANK YOU so much for this post. This is EXACTLY how I feel, but have been too cowardly to admit. I feel so judged by many in the autism community because I would cure my son in a heartbeat. In a heartbeat. And that does not mean I don't love my son the way he is. I just want to make life a bit easier for him. And there's nothing wrong with that, right?
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Relevant here:
http://www.autreat.com/dont_mourn.html

"when parents say, 'I wish my child did not have autism,' what they're really saying is, 'I wish the autistic child I have did not exist, and I had a different (non-autistic) child instead.'
Read that again. This is what we hear when you mourn over our existence. This is what we hear when you pray for a cure. This is what we know, when you tell us of your fondest hopes and dreams for us: that your greatest wish is that one day we will cease to be, and strangers you can love will move in behind our faces."
6 replies · active 724 weeks ago
Wow. I just read through all of these comments. I also read your entire post, even though it doesn't seem like everyone else did.

I have had major depressive disorder my whole life. The lifelong struggle I have had has made me who I am. If a pill had been available (that worked - they weren't passing out kiddie-prozac to poor kids several decades ago), I would hope my mom would have given it to me. I would love to have had a childhood that wasn't clouded by depression I neither asked for nor understood. I would love to not have every memory tainted by a brain that doesn't function quite properly.

I'm not saying that depression & autism are the same thing but I am saying that as an adult, an adult who is successfully taking an SSRI and functioning like a (mostly) normal thirty-something year old woman, I would give anything to have been happy as a child. Hell, if there was a pill that would cure my son's genetic disorder, I'd give it to him.

Please note that saying "if" something existed is not the same thing as saying "I wish" something existed.
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1 reply · active less than 1 minute ago
I can separate my daughter from her Autism. There are times whens he is really clear and I know that is who she is UNDER the Autism. I know there are those who are extremely high functioning adults, and love what their form of Autism brings to their lives, but it's important to remember, it isn't like that for everyone. My daughter struggles day in and day out, and I would take those struggles away in an instant if I could. I am sure she feels the same way since, on a daily basis, she says how much she hates herself and her life. The anxiety, the meltdowns, the "bad" parts...they are more extreme. It's not the same as typical kids living a typical childhood. The cost of therapy, the stress it puts on our family, the fact that we are thisclose to divorce and financial ruin. That on top of how it affects my daughter and how much SHE hates it...yes, I would take it from her in a second. It is a parasite...I do not wish for another kid, as a previous commenter said. Not at all. I KNOW who my daughter is underneath it all. We all want Autism to be gone. Period.
My recent post The Spectrum

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