But it's kind of like nobody actually read what I wrote and is just having a visceral reaction to the idea of the pill in general, so I'm going to take a moment to re-state everything I said, but this time in bullet points, to make it easier to understand and to eliminate the straw man.
- My son is sweet and awesome and I love him exactly the way he is right now
- My life has actually benefited from my child having autism. Without autism I believe MY life would be worse off. But this isn't about me.
- Autism causes my child sensory and emotional pain
- I would like for him to not be in pain, and if there was a pill that would do that, I would give it to him
- After the pill, his sensory and emotional pain would be gone and he would STILL be the same person he is now: sweet and awesome.
EDIT: I just put this in the comments and I'm putting it here, too, so that it won't get missed:
I have no problem with somebody disagreeing with me, particularly in a well considered way. You know me and you know that I encourage people to give me their opinion regardless of whether or not it will be controversial or if I agree with it. It's not that difficult for me to have my work out there on an emotional level, to tell you the truth. I've been at this online thing for a LONG time and as long as people are respectful, I'm happy with disagreement.
What I DO have a problem with is people who don't read what I actually wrote, who formulate an argument that I didn't make and then attack me for something I didn't say. That I have a big problem with.
This post isn't for what anybody said over at BlogHer or even what was said on Facebook, this post is for the people who commented HERE.
EDIT2: There's something really wonky about my commenting dealie here. Comments get posted but then they seem to disappear on their own somehow. Most of them are mine, since I comment here more than anybody else, and I have no idea what the deal is. SO, if you've commented, and it's gone now, it's not because I deleted it, because I don't delete comments, it just went away for some reason. I'm sorry about that! I always get an email notification which contains the contents of your comment so if that happened to you, let me know and I can send it to you for re-posting.
thatsrightisaiditdotmom 30p · 725 weeks ago
My recent post Things That Happen In Library Bathrooms
Handflapper · 725 weeks ago
My recent post We all knew this day was coming
Cheryl D. · 725 weeks ago
What kind of mother are you?
My recent post These Moments Are What I Love about Being a Mom
Lizbeth · 725 weeks ago
My recent post I have a little guessing game
dawn 58p · 725 weeks ago
I can't stand judgemental folks. They rub me the wrong way.
Rachel · 725 weeks ago
So you have a lot of courage to come out and say how you feel about it. I rarely wade into this one, because it's so difficult to keep things rational. Even though you and I disagree about certain particulars, I completely identify as a parent with wanting to ease your child's pain and I understand that that's where you're coming from. What good parent doesn't want to do that? I've wanted to do that every single time my kid has been in pain over something. It's called loving your kid.
You don't have to explain yourself to anyone, Jillsmo. Just enjoy your kids and your life.
And if you're interested, I have a post up on the cure question at:
http://www.journeyswithautism.com/2010/11/03/neur...
I'm not posting it to convince you of anything. I'm just letting you know about it so that you know that there are people out here who get the nuances and don't get all hysterical and shit.
(((((((hugs)))))))
Rachel
My recent post Autism in the Classroom- Personal Reflections
Dana K · 725 weeks ago
My recent post Military Spouse Appreciation Day
Rachel · 725 weeks ago
But I see that several people gave what I think are very well-considered responses, so I just want to give those folks credit where credit is due. Not to take away from your own reaction, jillsmo; I understand that it's difficult to have your work out there on a really emotional issue. I just don't want to seem to be casting aspersions on the people who are responding, and disagreeing with you, in a civilized way. The tone of that discussion, so far, is several orders of magnitude higher than some of the crap I've slogged through.
My recent post Autism in the Classroom- Personal Reflections
jillsmo 103p · 725 weeks ago
I have no problem with somebody disagreeing with me, particularly in a well considered way. You know me and you know that I encourage people to give me their opinion regardless of whether or not it will be controversial or if I agree with it. It's not that difficult for me to have my work out there on an emotional level, to tell you the truth. I've been at this online thing for a LONG time and as long as people are respectful, I'm happy with disagreement.
What I DO have a problem with is people who don't read what I actually wrote, who formulate an argument that I didn't make and then attack me for something I didn't say. That I have a big problem with.
This post isn't for what anybody said over at BlogHer or even what was said on Facebook, this post is for the people who commented HERE.
crayon · 725 weeks ago
My recent post Geewhosresponsibleforthesefontsmail
Big Daddy · 725 weeks ago
Btw, fuck the lazy haters.
My recent post Oprah & Aimee
Rachel · 725 weeks ago
I do see a ton of hostility in the comments to this post, however, directed at the people disagreeing with you.
It sucks when autistic people and autism parents end up in these kinds of conflicts. It saddens me no end. It's a complete, full-out breakdown of people to see the perspective of the other. It's not just on the autistic side. It's on both sides.
This is why I don't get involved in these cure discussions. They always end up in this place, and it depresses me no fucking end. So I'm going to bow out now.
My recent post Autism in the Classroom- Personal Reflections
jillsmo 103p · 725 weeks ago
Brian · 725 weeks ago
My recent post Broad Autism Phenotype
jillsmo 103p · 725 weeks ago
Brian · 725 weeks ago
My recent post Broad Autism Phenotype
jillsmo 103p · 725 weeks ago
I'm not sure we can still be friends.....
Brian · 724 weeks ago
My recent post Boy With No Pants On- part 2
jillsmo 103p · 724 weeks ago
Brian · 724 weeks ago
My recent post Why AJ has the best Momm So good- we have 2 ms
Zoe · 725 weeks ago
Having an inside perspective on autism, I consider it a fundamental part of me and would never want to get rid of it. You say that your son would still be the same person without autism, only less disabled -- but, given how pervasive autism is, I don't think that's possible. In my opinion, if this magic pill existed, anyone who took it would become a completely different person than they were before they swallowed it.
I'm sort of surprised by how mad people are that anyone would show up here and disagree with you (people commenting saying "fuck the haters" and all that). I'm not saying you're a bad person -- I'm just saying that when people talk about autism and whether it's a good or a bad thing, they should pay attention to what autistic people think about that.
jillsmo 103p · 725 weeks ago
I also appreciate your insider's perspective on autism, and you're right, it's entirely likely that after the magic pill he wouldn't be the same person; that's the difficulty in arguing about something that doesn't exist, we have no actual facts or data we can point to in order to prove our theories; it's all just unproven theory based on experience and instinct. I trust your insider's perspective as much as I trust my friend Rachel's insider's perspective (she's up a few in the comments there). I just know my son, really well, as we all know our children, and that is my gut instinct on the issue. I could be wrong, and my greatest wish is that one day he will be able to tell me that I AM wrong. I think it's possible that one day he will, and one day he will school ME in the ways of neurodiversity, and I will be his biggest cheerleader, like I am today. I just want him to be happy, and if the theoretical pill would make him happy, I want him to have it.
And, yeah, I have some pretty loyal readers, many of whom have children who are not as high functioning as my son. We're kind of used to getting attacked by people who (usually anonymously) make some pretty harsh personal attacks about the quality of our parenting, so when it seems like there may be a "hater" in our midst, we tend to rally. You are obviously NOT a hater and I apologize for that (while at the same time really happy that I have such good and loyal friends, to tell you the truth).
Victoria · 725 weeks ago
@Special_Happens · 725 weeks ago
My recent post Friday Finish • No Words 05-06-2011
Michel · 724 weeks ago
My recent post Friday Update
@TheRealDaniG · 724 weeks ago
Also, if you need me to fight anyone, let me know. 5'1" almost 100 lbs can be pretty intimidating...
My recent post My mom was hot still is
solodialogue 73p · 723 weeks ago
My recent post Play