xmlns:og='http://ogp.me/ns#' Yeah. Good Times.: Insanity, cont'd

Thursday, October 20, 2011

Insanity, cont'd

So, remember when I wrote about how all these kids and cats loved me so much that they were all smothering me practically to death? Well, you may have noticed that I talked about 3 cats and only 1 kid who were doing this. There's a reason for that, but I saved it for a separate post.

It's funny because of all the small creatures who live in my house, the only one of them that I wouldn't mind smothering me would be Child 1, except he practically never comes near me any more. Oh, he'll ask for food, and he'll ask for help getting Child 2 to leave him alone, but he never "hangs out" with me, and he never spends extended periods of time in the same room as me. He spends time with Child 2, in the mancave, playing Mario Kart, but otherwise he's usually in his room by himself drawing or something.

It's frustrating. I'm very frustrated. I can see in his face that something is going on in his head, but I can't for the life of me figure out what it is or how to get him to tell me what it is. I know he doesn't like school, I know he doesn't like doing homework, I know that the workload in 4th grade has massively increased over last year, so I can only assume that these are the things that are bothering him, but I don't know for sure and I feel so shitty about it. I've talked to everybody at school and nobody has any clue.

I ask him what's going on and he always says "nothing." I sit with him and ask him what he's doing and how he's feeling, and he says "please leave me alone now" (one of the first skills he learned in ABA: to verbalize when he wants to be alone. Great job?) I stop him and make him look me in the eye and promise me that he's okay, and he does, but I know it's not true. I know he's feeling bad, because I look at his beautiful face and I can tell. I'm his mother and I know something is going on. He has red circles under his eyes and he's constantly pretending to be sick so that he doesn't have to go to school. I want to know what it is. I want to know!! I can't help him feel better if I don't know why he's feeling bad. I feel awful, and helpless, and frustrated, and sad; most of the time.

I don't know what to do. Any suggestions? :(

UPDATE: I've talked to everybody at the school and they're all totally perplexed by this because, they say, at school he's perfectly fine. He's happy, he's compliant, he does the work, he does a great job, all is well. Then WTF????????? We're going to have him talk to the school psychologist and see if she can get anything. I'm totally at a loss and I feel like a total failure. I'm a shitty mom, I can't even get my kid to tell me why he's falling apart emotionally. I suck. I feel like shit. FUCK!!!!!!



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Chrissy Jadwisiak's avatar

Chrissy Jadwisiak · 701 weeks ago

Wow... ok usually your posts make me laugh HARD.... this one hit a nerve and made me cry. I have this going on with my middle son. He's not autistic he's sort of lost in the shuffle. I mean it's rough. I'll ask him whats wrong and he cant tell me because he cant explain his feelings to me because he's been lost in the shuffle of me dealing with my other two kids. I hate that he's like this and it breaks my heart completely. He's in therapy for it. Which makes me hate that I'm the cause even more. :(
As for your problem. I totally understand what you're saying.. would the school be up for you observing your son for a day without your son knowing so that you could see if you could figure out the problem?
I wish I had more insight for you...
:(

I don't know. Does he work with a therapist at school? It might be a good idea to bring it up there, or with his teacher, and let them know what is going on at home. See if he's the same way at school as he is at home.

My little Aspie is usually more clingy than not- she's always up in our business, so it's not something I have dealt with directly. She does have a staff of workers at the school, though, and anytime something different is going on here at home, or there at school, we talk with one another to make sure everyone is aware of it, and to see if either side knows if something happened.

Good luck, hun...
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My heart aches as I read this. I wish I had the answers. I would love to solve this problem for you and take away this hurt.

Thinking about you xxoo
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It may be that he hasn't figured out what he wants to say or how he wants to say it yet. I know that you want to KNOW right now what is wrong so you can fix it. But right now, he may be in the preverbal stage of defining the problem so he can talk about it. He may feel that you're pressuring him, and that can cause anxiety. He's already under the stress of the 4th grade, and everything else piles on, just like it does with adults(with or without autism).

In my opinion, which might be completely full of shit, what is needed here is a time out. Stop asking all those questions for right now. Instead, just sit in the same room and let him be. Go out and do something that he likes to do, and let him tell you about it. Don't ask him any questions about anything emotional. Doing this periodically will re-establish you as someone who won't stress him out.

This method also works on husbands, by the way.

You could also ask him to draw a picture of what is bugging him, if he still can't tell you. But if he does start talking, or he does draw you a picture, remember to keep a Spock-face about it. He may see any emotional reaction from you as a negative reaction.

Also: I love you, too, Jillsmo!
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I think a lot of what Tina says is true. I, for one, don't respond well to pressure or overt requests to talk about emotional things. Causes total verbal freeze-ups.

Is there any way you could find for him to write about it? I'm not gonna tell you to read his journal or anything...but lots of us find emotional writing much easier than emotional talking.
I wish I had an answer for you. I know Bethany totally clams up if I ask her anything. One book I read said to ask silly questions that throw them off, like "so did anybody throw up today?". Or "did you see anyone'e boogers today?". It makes them laugh and then they start talking about what happened during the day. It really works with Bethany. It cant hurt to try with Child1.

Good luck!
With my daughter, I find that I sometimes have to ask very specific questions. If I ask, "How's it going?" she just can't answer such a general question. You can ask him if he likes school or if the workload is manageable. Let him know you're there to help him. I hope this helps!
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Would he be able to write/type how he feels better?
He might just need a bit more time to process what he's going through. One of my Aspie boys (I'm an OT) said to me this week "you know my cat died? I almost cried" his cat died about 6 weeks ago and he showed no reaction at all at the time but has obviously been stewing over it all this time.
I've found a combination of what Tina said and Cheryl D. said to work for us with my Aspie. It's hard to find that balance of asking, and asking those very specific questions, and giving them space to not stress them out. In early elementary school, I could tell something was wrong, but my son couldn't verbalize it. It was "I have a stomach ache." "I don't want to go to school." Then he ended up beating a kid on the playground who started some shit, and he felt better. Turns out he was being bullied and the teachers and admin told him to stop tattling, so the next time the kid gave my son shit, my son finished it. Not a method I recommend though.
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Have you tried taking a walk or shooting some hoops or raking leaves with him? I've found that my son is more comfortable talking if he and I are doing something together instead of just face to face talking.
1 reply · active 701 weeks ago
Yup, totally. Even sitting side by side instead of face to face removes the pressure for eye contact and makes talking easier.
I can't really offer any answers, only support.

My NT daughter sometimes gets sullen as a fourth grader. She's similarly tight lipped about what's troubling her when that happens, and I do recognize that it's not really apples to apples here. Just encourage him in the things he enjoys, and allow him a safe haven (homework notwithstanding) from the things that trouble him when he's at home. Let him know that he's loved and that you're there for him.

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Reading this made my heart hurt...and I wish I could wave a magic wand and all could be better. When it comes to autism in my house, I often say it's like a game of 20 questions yet I play it alone. Like a game of freaking Clue that I constantly lose. It sucks to see our kids going through stuff and not knowing why. My son is only in kindergarten and he's having a really rough time transitioning, he doesn't have the verbal skills to express what he's feeling.

Have you tried talking to a mom of one of the kids in your son's class?

Either way I agree with blogginglily - let him know he's loved and that you're there.
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My son likes to talk in the car. He doesn't have to maintain eye contact because I'm watching the road.

I also ask him what was the best thing about school that day (usually, his response is "leaving"), and what was the worst. Then I tell him my best/worst thing. It doesn't take long, then he can retreat into his room, or get online and ignore me.

Maybe you can ask him to draw a picture about what he's feeling? Like suggest that he draw an invention that would make his troubles go away...maybe something like that would work.
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I have to tell you, we are at the exact same place and I'm reading everyone's comments as if they were laced in gold. GOLD. I can tell something is going on with Alex and he just can't verbalize it. And it's killing me. And him. He comes home sullen, moody and has been sad, so sad. I just want to pry open his head and see what's in there. By the time I get him from school he is too far gone to even think of talking or doing something. I took the opposite route and am pulling him from school for a week so he can relax and regroup. The poor kid is sick before school he doesn't want to go so bad. Sigh.

Thanks Jill for this post and thank you for the comments--there is gold in your words.
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I have no advice, only support! Thinking of you and Child 1.
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So sorry. Does he keep a journal? Sometimes that helps get things out.
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Call and talk to the teacher to see if he or she is seeing anything or has any ideas??
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Chrissy Jadwisiak's avatar

Chrissy Jadwisiak · 701 weeks ago

Oh honey you are not a shitty mom. Beyond what people like to think we dont have all the answers. Sometimes it really really sucks. I'm so sorry you're going through this and I wish you didnt have to.
Oohh.. yes, I'm with Heather about the journal idea.
Hugs!
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Comment to your update: You're not a shitty mom because you realize it and take it seriously and don't turn a blind eye to reality, when your kid may be falling apart emotionally. You may not be able to fix everything, but you don't pretend that nothing could possibly be really wrong.

I had another thought...he may not even fully realize what's not fine, if he has nothing to compare it to. If it's something that he has no way of knowing what the alternatives might be...if he can't know what "better" would be, then it's hard to know what "wrong" is to begin with.

Also, is there maybe another adult friend in his life, who's not from the school, who he likes and seems comfortable with? Like a neighbor or old babysitter or aunt or uncle he likes but doesn't see very often--somebody with some distance, who he might let it spill to?
does he take the bus? could something be bothering him there? Could he be understanding that he is different and it's bothering him? I don't know what to say.I wish i could help
I wish I had something intelligent to say along the lines of a fix. I pondered that earlier today, but now that I see your update, I have to say something...anything. In second grade, my daughter started to have sorts of lovely anxiety issues, and when I went to the principal (I was desperate one morning after dropping her off at school), she told me that I needed to keep in mind that my daughter might not have had the ability to put her fears in words (I saw someone else eluded to the same), or that she really might not really know why she was acting that way. I was so not satisfied (I AM A FIXER DAMMIT...TELL ME WHAT TO FIX), but over time realized that there could be some truth in the not knowing. I just stayed nearby in case I was needed basically, and eventually the phase passed. Through the years I have realized that both of our kids are ON at school..the whole time they are there. When they come home, they just want limited pleasantries and then to just be. Bed time tuck in was usually when any real info got shared (and always after the husband gave kisses and went downstairs unscathed). Well, I guess the main thing I really wanted to say (after that lengthy introduction...sorry) is that SHITTY MOMS DON'T CARE LIKE YOU DO!!!!!!
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Hate when this happens with my Aspie. Sometimes it comes out in therapy. I don't know why but sometimes he seems to do better with someone other than mom being there. This used to bother me but I figure he is a teenager! Also it seems to work better sometimes if his attention is elsewhere- fidgeting with something. But other than that I agree with others that he may still be working on what is wrong and how to explain it. Very sorry you are going through this (hugs).
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My son and I parted ways many years ago, it was very sad, he wished his mom would divorce me, I lost a lot of "father/son" time. Over time, he began to realize that he was missing out on having a dad. I began giving him advice on stuff he was interested in, and taking him places he wanted to go...now we are a team and he really likes me. So, I feel your pain, but things will get better I promise. :)
Jill, I so hate mom guilt. I know you're soing the best you can. Try not to fret too much cuz I'm sure it will be OK.
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My kids are now 27 and 30 and we had several of those times like you are having and it cuts right down to your soul knowing that something is wrong and you just want to know what so you can fix it, or get at what is causing it! Much love to you....this too shall pass! You would never convince me you are nothing less than a terrific mom...just the fact that you are so bothered by this tells it all...you are great!
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I'm crying for you right now, because we had this when Xavier began 4th grade.

We found out, that Xavier was getting bullied, after he had been throwing up and with stomach aches for 3 wks.

His Dr said it was a long stomach flu, and I believed him.

Until it all fell apart one day at school.
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